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DS may be Autistic.....

7 replies

molemesses · 18/11/2010 19:49

and I'm not sure if I'm relieved or devestated.

He is 7 and currently in MS school but is really struggling. He was fine a year ago although they did see problems then, he is a lot worse this year.

I'm making an appointment with my GP in the morning to get him refered to a specialist clinic in the city, the school are making statements now to help me to get him refered.

I'm single and he is the youngest of 2 kids...the other being 9 year old dd who is excelling at school.

Basically I'm scared..

What should I expect now? I have no family around as they are too far away, and ds does not like change so moving closer to the is a no no (plus my family will be a bigger hindrance than help).

OP posts:
TheArsenicCupCake · 18/11/2010 20:14

Try not to be scared you and the school are doing the right thing.. You seem to be in a good position as the school seem to be supportive, which will make things a lot easier.

Autism or being on the austic spectrum is nothing to be scared of ( big hug and kindly smile).
Your ds won't suddenly change who he is with a dx either things getting worse or better.
What a dx does is highlight areas of strengh and weakness and gives you a really clear idea of where to start to help him... It will also point you in the right direction and can open access to some helpful provisions ( which is also easier if school are on board).

TheArsenicCupCake · 18/11/2010 20:18

Just an add ( always think of something else when I've hit post!)

what your basically looking at for now and future wise is strategies, you can't cure asc but you can make life more manageble and our children learn and progress even if it's in their own way.

there is loads of good advice on here, your in good company :)

molemesses · 18/11/2010 20:38

Thanks for that.

We have all tried to vary the ways he is taught to suit his moods at the time and rewarding hard work (even if it's just writing one sentance) with something that he enjoys like gardening.

They have said I may be able to get some home help to give me a hand with the everyday stuff - usually I'm ok and the hosue is safe and clean, but other days I just want to cry and go back to bed. Like I did today. I just want someone to help me to mmake things easier for him, he's very stressed, fustrated and upset and I dont know what to do to help him to make him the happy little boy he was. He wont even listen to praise but will accept praise for something if it was a team effort.

This year at school (y3) I havent seen him smile once, nor have his teachers and it's so upsetting as a year ago, he was making so much progress with school work, social aspects, he was looking people in the eye when he was talking to them and had a great sense of humour. In the past few months all of that just seems to have vanished into thin air and it's like having a moody 2 year old teenager in the house.

OP posts:
PolarEyes · 18/11/2010 20:47

My DS1 was dx with ASD when he was a little of 3. The paediatrician said at the time that a few years ago they wouldn't have been able to dx him at 3 but it would have likely been at 7, as school work typically becomes more demanding and the child then starts to really struggle.

You're doing the right thing going to the GP, school sound good but do check with them that they have made the referrals they need to. As ASD is a Social Communication Disorder, it may be worth contacting your SALT dept directly and getting him on a list to be assessed. There may not be a lot available in terms of SAL therapy for him, but an assessment may pick up on things like his level of understanding/social interactions etc.

molemesses · 18/11/2010 20:55

Thanks Polareyes.

I'll get on that tomorrow.

OP posts:
zzzzz · 18/11/2010 21:13

This reply has been deleted

Message withdrawn at poster's request.

moosemama · 18/11/2010 21:25

Mole, you are understandably scared of the unknown. I was you twelve months ago.

I went from having a 7 year old son who was a bit quirky and sometimes hard to handle to having a child that was diagnosed with ASD at his first appointment with the Paediatrician.

You have had some great advice on here so far.

Its great that the school are on board and want to help, as that's half the battle really.

As Arsenic said, nothing has changed, your little boy is still the same little lad he has always been. The reason he is so moody and unpredictable at the moment, is probably because the transition from infants to juniors is particularly tough for children on the Autistic Spectrum for several reasons. They are suddenly expected to organise themselves rather than having a lot of support and assistance from teaching staff, their peers are maturing quickly and social structures in both the classroom and playground are changing and that's without even thinking about the harder work etc. As a result their anxieties build up and up and they find it harder and harder to cope.

My ds spiralled downhill in year 3 and our school were hopeless. He had very little support and what he did get we had to fight for ourselves. You won't have to do that, as the school are right there with you from the sound of it.

Fast forward to now, ds has just entered year 4 and is doing so much better than he was in year 3. We have support from the Autism Inclusion Service and the Educational Psychologists and I have today had a fantastic meeting with the school where they have agreed to all manner of other things to support him, including developing/nurturing a small social group of friends who can help him with his difficulties with social communication.

If you had told me this time last year that my boy would be happy and coping well in year 4, I would never have believed you. Things aren't perfect, we still have hiccoughs and problems here and there, but we are moving in the right direct and I can see light at the end of the tunnel.

I also wouldn't have believed it if you'd told me I would know as much about ASD and the Special Education Needs system as I do, but it all comes in time and you learn a little more every day.

I would recommend doing as much reading as you can around the subject.

There's lots of useful stuff on the National Autistic Society's Website here and would highly recommend reading Tony Attwood's book The Complete Guide to Aspergers as well as Brenda Boyd's books Parenting A Child with Asperger Syndrome and Appreciating Asperger Syndrome. They are the ones that helped me to get my head around things the most.

Oh and keep coming on here and asking questions. It is a lovely place with heaps of support from really lovely people who not only care, but also understand.

We went via the GP to get a referral to a Paediatrician, who then referred ds to the local multi-disciplinary ASD assessment unit. He is due to reach the top of the waiting list for his assessment in April 2011, but that hasn't stopped him getting the support he needs in the meantime.

Hope that helps a bit. Smile

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