Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Iisad123... You okay?

20 replies

TheArsenicCupCake · 16/11/2010 17:20

You have two :( faces up and I can't open either thread.

What's up lovey?

OP posts:
StarkAndWitchesWillFindYou · 16/11/2010 17:25

Yeah. I bin trying to open them too. PMed her. I think she says it at the end of another thread so she won't mind me saying that the M/S stupid preschool that she has been blackmailed into keeping her dd at is getting her down.

TheArsenicCupCake · 16/11/2010 17:35

Aghhhh .. Not suprised.. What is wrong with our bloody education system!

You know what we need.. We need a campain to stop all of this rubbish!

Maybe in numbers we can do something.. There should not need to be sites like SOSSEN .. We shouldn't need help lines.. Our dc's have the same right as all dc's to an education and to be able to bloody access one... To have one in saftey where they aren't bullied.. Or parents who are doing their best to be sidelined and people who don't know our dc's making crucial decisions for them.

Btw I am an angry mummy today!

OP posts:
StarkAndWitchesWillFindYou · 16/11/2010 18:25

Arsenic Can't you see, this IS our Campaign. The contribution on MN isn't significant, what with the open board stuff and the inter-emailing of people that barely know each other with copies of Parental Advice, Case Law etc.

Don't underestimate MN and the collective knowledge. It's grass roots stuff. A collection of individuals battling on the battle ground, but it does make a difference.

Every well thought out Freedom of Information request, tribunal, complaint, uncomfortable SALT, - it all makes a difference for our children and other people's who don't know how to help themselves.

The stamina of the MNers on this board amazes me. I'm proud to be here amongst you all, Lisa included. She'll make good for her DD. She is an excellent parent with all the right experience. That is the most important thing for her dd at this particular stage.

SantasMooningArse · 16/11/2010 20:08

It's only going to get worse- disability and social care are two areas losing access to legal aid

TheArsenicCupCake · 16/11/2010 20:13

Your right :) .. I'm just having a frustrated day today ( should be used to it < hollow laugh>)

I think I get narked because the system isn't the best.. And yet it could easily be so much better with just a few simple things... And those who object, stand in the way and make life harder than need be, could easily be the next SN parent fighting to just get their child an accessable education.

And with better provision at an early stage the long tern effects are so far reaching not just for that child or family.

Your right again, lisa will do just fine.. We all know it and if we can help her on that road it will be a pleasure.

Just right now I want to bloody rally up every sn family in the uk and go march! ( whether it's schools or nappies, I'm fed up of lip service policies and people with there heads so far up their own backsides that they are upside down).

You know I had a conversation basically about how ds is a valuable comodity because of his value added factor! Aghhhhhhhhhh

vent over..

OP posts:
mariagoretti · 16/11/2010 20:17

Losing legal aid now won't change the rights that are already established by case law. It just means that new cases will be harder to bring, and so the case law will take longer to build up.

Please remember that most unions offer a legal helpline to their members. They often offer members some help for non-employment related issues and they have a lot of experience in discrimination cases and money issues. I know a lot of people aren't working, but those who are might want to consider joining a union for this reason if no other.

TheArsenicCupCake · 16/11/2010 20:17

And your right too sancti.. It will only get worse.

OP posts:
lisad123isgoingcrazy · 16/11/2010 20:27

thanks for asking ladies, im ok, just very upset about having to leave my DD2 at a place that doesnt understand her difficulties and clearly dont want to. Im tired of fighting for something I shouldnt have to!!
I have worked in the system and even with my knowledge its still a mind field.

I do feel like im being blackmailed into keeping her somewhere I dont want to :(

Yes lets all march, would gladly do that

TheArsenicCupCake · 16/11/2010 20:35

Its crap lisa.. Just remember you are the best mum I. The world and the best person to fight for what your dd needs.

( oh and sorry to vent while we waited for you :) )

OP posts:
lisad123isgoingcrazy · 16/11/2010 20:40

its fine Arsenic we all need to vent to those that understand. :)
Thank you, some days I dont feel like a good mum just a blubbing mess Blush I wish I could get angry and yell but I dont I just cry! get so mad at myself.

Had to laugh when manager asked today if i was wanting to increase DD2 sessions in Jan when shes entitled to 5 sessions a week! can you guess my reply?

StarkAndWitchesWillFindYou · 16/11/2010 20:44

Hi Lisad. Sorry for talking about you. Hope you're okay.

It's only a few weeks until Christmas and then you can throw this at them:

Practice Guidance for the Early Years Foundation Stage May 2008

Flexible provision

1.13 Many children will receive education and care under the EYFS framework in more than one setting. Some may attend part-time, while others may attend full-time and also use extended services, such as breakfast or after-school clubs. These patterns of attendance will be a key factor in planning.

For children who attend more than one setting, practitioners must ensure effective continuity and progression by sharing relevant information with each other and parents

hth

You can then repeatedly hassle them for their evidence of where they are doing this and get the good preschool to attempt. Then you can show that crap preschool can't even follow their own policies and remove her for reasons of incompetence.

lisad123isgoingcrazy · 16/11/2010 20:50

I dont mind you talking about me, nice to know someone cares :)
I will do that thanks, they have agreed to go and see good preschool :)

keepyourmouthshutox · 16/11/2010 21:11

Take care Lisad. Know how you feel and have great sympathies.

andperseand · 16/11/2010 21:27

TACC - I'll march with you gladly. DS can come too and get in everyone's way jumping on drain covers. (Actually would never get him near all those people.)

Lisa - sending sympathy. Not in quite the same position and DS is older, but now SS refused, facing having to cooperate with trying to get him back into the MS school he is refusing while we wait for appeal date. Every bit of me screams 'no'.

All this talk of 'transparency' is so much rubbish.

auntevil · 16/11/2010 21:28

I always feel guilty on these threads. All 3 of mine went to an excellent pre-school where they have always been more than happy to work with whoever they needed to help each child. Bit of a blip with the first MS primary - but now at a MS that works well and initiates programmes and works out solutions on an individual basis.
There are good schools and well trained staff out there. Finding them is not always easy - but it should be, and that's what we should be marching for! It shouldn't be another postcode lottery as to whether your DC gets a fair whack at an inclusive education system (SN or NT!).

andperseand · 16/11/2010 21:33

Absolutely auntevil! If we had any even reasonably reliable way of finding out which MS schools actually get it and are actually prepared to do it, that would help. No one is able/prepared - for obvious reasons - to put their neck on the line and point us in the right direction.

But always glad to hear there are good experiences out there too, don't feel guilty for your children getting what they needed Smile.

auntevil · 16/11/2010 21:46

I never feel guilty at standing my ground and getting my kids what they deserve. my guilt is more that you can have another parent - eg Lisad, who fights for her children, stands her ground, but in a different LA and gets nowhere. Best practise should be shared by all LA. I should be able to move my DCs anywhere in the country and know that they will receive the same good service. Shoddy, blackmailing and inept services should be named and shamed.

TheTimeTravellersWife · 16/11/2010 22:38

LisaD - cyber hugs. I am a bit of a lurker, but I have de-lurked today!

I often wonder if it would be possible to take a "class action" I think that is the term, of parents and carers in a particular LA, to take that LA to Judicial Review for their unlawful practices.

Having a child with SN and having to fight the system, just to get the same opportunity for her to have an education as other NT children is an utter disgrace.

I personally, would march on Downng Street, if I thought that it would make a difference.

tiredmummyneedswineandsleep · 17/11/2010 20:18

lisa i hope you are ok. how did your meeting go last week? ds dropped the laptop which broke the hard drive Sad it's literally just been fixed.

lisad123isgoingcrazy · 18/11/2010 11:37

here

didnt go well

New posts on this thread. Refresh page