S Dd3 has hypermobile joints and low upper body muscle tone!!

[Ineed2]

The OT's came this morning and put Dd3 through a battery of tests, they said her final score would put her on or around the 16th percentile.

I have no idea what this means but am assuming that 100th percntile is at the top and 0 is the bottom. Am I right???

They spotted that she is hypermobile in several joints and that her muscle tone is low in her upper body.

I don't quite know how I feel, part of me wants to shout "I told you so" from the rooftops, but I also feel a bit sick. Especially at the thought that school are still saying there are no issues.

Is there a link between hypermobilty and ASD? Have googled it but no medical stuff came up, lots of evidence from MUMs though, surprise sruprise!!

Hope someone can give me some advice.

I have been trying to find medical links between the two as well, no luck so far, though it was our HV that suggested there is a link.

Sorry I can't help with the OT stuff, am just starting out on this road myself, hope someone will be along soon :)

Thankyou natalie...

The title should have said
"So Dd3 has...etc etc"

Anyone around .

Was hoping someone might be able to explain the percentile scores to me .

Sorry, DS had a battery of tests too from OT but it was a number of years ago now and tbh, i don't remember much about it. Hope this bumps it and someone has more current info.

Thankyou auntevil, I suppose I could just wait for the report to come, its just that there is usually people in the know on here so I thought I would ask.

Oh and just to add, in their usual style school filled in a questionairre saying that they don't see any issues and Dd3 has no problems at school at all..

No report would be complete without that statement! [not sure what emoticon to use here!]

Hi,
You are correct with your interpretation of the percentiles. Being on the 16th percentile would mean that in a group of similar aged children, 15 out of 100 would score lower than your daughter. Our dd was diagnosed as being on the spectrum earlier in the year and is also hypermobile (which I hadn't noticed even though I am an OT , although paediatrics is not my speciality)

My son has Asperger's and low muscle tone and hypermobility. It can make him very tired and floppy. It is very, very common for ASD children to have these sort of issues.

There is clearly a link between these with ASD but I'm not sure there is anything 'proven' clinically. It just tends to be that professionals will say 'lots of these children' have hypermobility/hypotonia etc

DS2 has ASD and low muscle tone. We have to make sure he does lots of exercises to improve his stability and he wears piedro boots.

Thankyou everyone... I went to bed after posting my last message last night and have been at work all day.

I had a feeling that I would be right about the percentiles. I was surprised that she was so low.

Dd3 gets very tired and is very floopy, she dangles off me and the furniture, can only run a short distance and regularly falls. I feel bad now that I haven't done something about this before..

Autevil.. I am guessing you meant the statement about school. I am almost at the end of my rope with school at the moment. How can they have a child 6 and a half hours a day, 5 days a week, for 3 years and not actually notice them???.

I think some schools are very 'selective' in what they see. Do you remember before you had kids and you would hear someone else's scream the shop etc down? I used to see the parent carry on shopping oblivious and think 'can they not hear?'. I have now developed selectivism too! I reckon some teachers are the same re behaviour. If you don't acknowledge something, you don't have to deal with it.

it'll work the same as the height and weight ones, surely? in those the 50th centile is average

hypermobility does seem to be more common in children who are autistic - but I know it definitely also happens by itself, I know people with it who are not autistic, no medical information though, sorry, lol

Auntevil... I have heard of selective hearing many times but have obviously missed selective vision!! I think you are right, that is what is happening with the HT/SENCO, the teacher is sooo young she can't have had more than a couple of years experience so is being led by the HT.
She may be a brilliant young teacher but she hasn't worked with enough children to recognise the ones who are struggling.

I was cross when I knew that they had written that there were no problems at school because when the OT's asked Dd3 if she lies on her desk when she is writing[like she did in the test] and she said yes I thought the school might at least have noticed that!!

Forgot to say, I got Tony Attwood out last night and he mentions Lax joints and low muscle tone in " The Complete Guide to Aspergers Syndrome" in the chapter on movement and coordination.

So thats another book mark in that page then . My Complete guide looks like it is growing book marks. Can't wait to take it to CAMHS with me.

DH has Aspergers and some hypermobile joints (still w sits at 31!)

I have dyspraxia and hypermobile thumbs and ankles

DS1 has ASD and mild hypermobility

DS2 has profound hypotonia and profound hypermobility

So definately a link IMO although the professionals seem to be quite vague about it all.