To an unnamed professional...

[badkitty]

Would you wave a plastic ring on the end of a piece of string at an NT 2 year old, tell him to grab it, and expect him to display any interest? Would you patronisingly say that your musical baby book is "helping to teach him about cause and effect", a concept which he has understood perfectly well since he was 7 or 8 months old? Please don't assume that just because my son is disabled and can't speak he is not mentally as able as the next child. Stop treating him like a 4 month old baby. He thinks you and your toys are very boring.

fume fume fume

Don't tell me that he is making fantastic progress when he isn't, just because he is doing better than you expected.

Don't tell me that I am an expert in my child and then subsequently dismiss anything I have to say as irrelevant.

Don't tell me the because you haven't seen him demonstrate something that he can't do it.

Oh. yes - seconded and thirded Stark.

You can fuck right off with your visual prompts. You do a non-job.

And stop being shocked that DS displays extreme distressed / distressing behaviour despite your pretty laminated pictures and ringing me up to see if I am okay. I've been dealing with it for years.

My NT 5 year old once sat silently throughout a whole SALT session. He only spoke to her once when after not playing any of her 'games' she asked him to help her tidy up. He said, 'no, you do it". When i asked him why he didn't speak or play he said because it was boring and TBH he had nothing to say to her. Out of the mouth of babes, eh!

If he picks up your silly card showing a picture of a crisp and says 'I want a biscuit please'

GIVE HIM A BLOODY BISCUIT, don't give him a crisp.

Please dont waste anymore time trying to teach my DS how to use makaton signs and sybols he i never going to use. The day he asks for some Chapatis or Dahl will be the day I eat my own arm. I dont care that they are in the core vocabulary!

Don't tell us you have ruled out the 'nasty metabolic diseases' then test for a lot more of them ,it's quite stressful...is a personal favourite of mine

Don't tell me my boy cant read emotions on peoples faces.
Please do remember it is a spectrum and no 2 children are the same.

Don't ask me, ' does he really need the midazolam?' before you take blood since you know you will need to 'stab' him at least a dozen times before you get any blood out of him. Eh would any other 5 year old think this was ok and sit nicely ( even though they haven't had all the trauatic experiences he has)....... I think NOT! x

Don't keep banging on about how ds doesn't need a polly parrot 1:1 on his shoulder.

For the thousanth time I agree. He needs a full-time quality 1:1 who knows how to not polly parrot.

Oh and my son does not have a medical'phobia' ( definition of phobia is an irrational fear) he has a bloomin rational and logical fear of all things medical. In his experience, men/women in white coats with stethoscopes hurt you. Very rational don't you think?

Nice one shaz298

shaz298 - there is a recognised phobia called 'white coat syndrome'. Adults get it, NT or not - so why they think that DCs should be fine with being stabbed is a mystery!

If you keep us waiting for ages in your clinic, my DS2 will be grumpy and DS1 will be worse.

No my DH won't be there, if he came to every appointment he would be sacked.

My DS1 gets dropped off at school at 9am and picked up at three fifteen. I don't do appointments for DS2 at these times, end of.

I totally understand your son's feelings shaz298. I only let the most senior phlebotomist do bloods on me as she always gets it on first or second attempt. I refused to let the midwife do it.

Don't tell me " Lots of children do that" or " We have never seen that here".

I am sick of hearing it, I have 3 children 1 grandchild and have worked with children for 20 years and I know my youngest child needs support!!

Thanks folks! He did have a port a cath due to difficult acces but it was removed earlier in the year when he had surgery and was infected. Thankfully he doesn't need to have bloods done regularly but when they need to be done or he needs I.V. fluids or antibiotics we really struggle. His wee veins are so overused and don't see to be repairing...............on the upside. At least he's highly unlikely to be an intravenous drug user when he's older Bit off topis sorry xx