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Is this toy ok?

6 replies

Ieattoomuchcake · 09/11/2010 22:08

Wasn't sure where to post. DD is just six months old but has brain damage (PVL) which we've been told means she will have motor problems and likely develop cerebral palsy.
We have been told to avoid things which will encourage her up onto her toes, eg bouncy things you hang in the door frame.
GPs have asked what we want for her Christmas and I've seen an activity centre thing I fancy for her. It's a fixed seat, not bouncy, and baby can spin around and play with different activities on a kind of raised ring thing around the seat. Hope I've explained it sufficiently. I think it's called an activity centre.

We don't have physio again till 17 December so I can't check w her till then.

Does anybody have any idea/experience of whether this is likely to be inappropriate?

Thanks.

OP posts:
starfishmummy · 09/11/2010 22:27

Could you ring the Physio to ask his/her opinion? if you could find a pic of it online that you could give.them a link it might help.

anonandlikeit · 09/11/2010 22:39

Personally i would go for whatever you think will stimulate your dd the most & what you think she will get the most fun from.

If you have been warned against certain things then follow specific advice (we were told NO babywalkers or door bouncers too)

ferryman · 10/11/2010 11:35

hope you dont mind me joining in, this is my 1st time to post here. i have a 4 yr old who has cp and pvl. know the activity thing you are talking about. dd loved it when she was little and her physio had no problem with it. re walkers one physio told us no and the other with the intervention team said yes to open up her world and give her a different perspective. its hard watching and waiting to see if pvl will have any adverse effects. we were told worst case senario but she certainly isnt that. she does have problems and attends an early intervention school but she is a funny mischievous little lady. anyway after all that id say go for the activity center.

badkitty · 10/11/2010 15:11

Hi, just to put an alternative view, we were advised by physio against those type of activity centres for the same reason as walkers etc - i.e. encourages them up on toes and in bad position. My DS is 2 in December and has CP. Personally I think it depends how long they spend in it and am sure short periods won't do much harm! Our physio was very insistent though that when DS wasn't in his chair for eating etc he should play on the floor (on back or preferably tummy) as that is where he will develop skills - and I do think spending so much time doing that has helped.

Ieattoomuchcake · 10/11/2010 20:53

Thank you all for your posts. It feels nice to have some contact with parents who have been in a similar position.
Ferryman - yes it is so hard just waiting to see what effect the PVL will have. DD is developing well so far and people keep making comments like she'll be crawling in no time etc. Maybe she will, but there's always the thought in the back of my head that who knows when problems will become apparent, what the extent will be.
I think we will go with the toy. I think that for any child it's important they don't spend too much time in something like that. She is such a monkey and rarely naps so I need lots to entertain her with! And there will be plenty of hours in the day for her to be on the floor.

Thanks again for taking the time to reply.

OP posts:
USoRight · 10/11/2010 22:05

DGS who is 2 had a fisher price jungle activity centre, (stationary no wheels). His physio just looked and didnt comment!! DGS doesnt have leg stiffnes except when excited, and he loved it. He had hand problems and it is great for encouraging hand/eye coordination and also reaching high as it has a parrot dangling high up.

PVL often causes spastic diplegia, where the legs get stiff but because CP is weird Confused she may have nothing at all!! The seat also causes the legs to open. It encourages head control and balance, dont worry about the tip toe business unless you actually see it. Also sit DD astride your hip as much as possible as this stretches all the hamstrings etc. The activity centre is great for short periods and for when you need to eat, especialy if they get grumpy on the floor.!

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