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New To The Board! Help With Statementing

49 replies

chinchi · 02/11/2010 14:33

Hello everyone. Im new to this board, and was hoping that someone could please help me with the Statementing process for DS?

He turned 3 in August, and has recently started pre-school. We had a diagnosis of CP last year, mid-moderate. The school's inclusion manager and SENCO are wanting to start the process to get a Statement for him, and I have been to the IPSEA website and downloaded their template letter to request this.

He has only been in preschool for 4 weeks now, but the nursery staff and even the headmistress have commented on the amazing progress he is making. He has speech delay, but this is coming on fantastically. He wears an AFO splint on his left leg, and a heel support on his right foot, but is fully mobile.

Both SALT and DS's consultant say that they believe he doesn't meet the criteria for funding as the CP is mild. I know that is a seperate issue, but how can I get across that I want him to be assesed for a statement, when he is improving all the time?

The inclusion manager is really pushing for it, and because I want him to go to that primary school next year, I am all in favour of getting a statement in place. I just don't know how I am expected to word my argument?

He has an IEP, and has already met some of the aims on there- starting nursery was the main one as they thought they would have to wait for funding for a classroom assistant, yet they took him on a staggered entry basis, and he is now attending 5 mornings a week with no extra assitance.

SALT dont want to see us again until March 2011, and physio hasnt requested another appointment, although she is going into nursery next week to see DS.

The inclusion manager said my letter would be submitted with their request, so I want to put forward a good case, but not sure how?

Sorry for waffling, but I really hope somebody can help! Thankyou!

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Lougle · 02/11/2010 14:40

Hi and welcome to the SN board Smile

What is it you are hoping for in a Statement?

A Statement of Special Educational Need is a legal document which identifies the Special Educational Needs of a child, and the provision that is needed to meet them.

If your DS is only affected physically, and the effect of the physical difficulties are minimal enough that he can attend preschool with no extra support, what do you want a Statement to say?

If you can answer that, then I am sure that we can come up with a way of saying it Smile

chinchi · 02/11/2010 14:53

Good question :) This is all new to me so Im not really sure if I am honest!

At the moment, the biggest benefit for me would be that it would guarantee DS a place at the primary school that is attached to the pre-school he attends now. It was over-subscribed last year and as we live over a mile away, it isn't our nearest. I know I can't tell them that though!

He needs extra help to be understood as his speech is quite muffled. I understand him well enough because of all the time I spend with him. Even DH has to ask me what he is saying sometimes as he talks like he has a bunged up nose :) I am a little shocked that SALT said he wouldnt meet the criteria for funding considering his own Dad cant understand what he is saying sometimes. I suppose then, that speech would play quite a big part in the Statement. I am often told by the nursery staff that he is doing well, yet thinking about it, how well do they understand what he is saying?

Im not too sure regarding his mobility. He can walk around without needing to hold onto something, but he walks on his tiptoes on his left side, and is somewhat slower than other children at getting around. He cannot run or jump.

Ive still not answered your question have I Lougle?! Am I telling them his extra needs, or am I asking them to assess them for himself? I imagine I sound quite daft don't I Blush

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chinchi · 02/11/2010 14:59

Sorry- that should read am I asking them to assess him.

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justabouttosellakidney · 02/11/2010 15:05

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justabouttosellakidney · 02/11/2010 15:06

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Lougle · 02/11/2010 15:08

You don't sound daft at all! My DD1 is now at a special school since I got wise to the system - you should see some of my early posts!

Ok, well shall we start from the beginning?

Statements are great. However, they are only intended for the very 'worst' children with SEN. The statistic is that 2% of children nationally require a statement.

The other Special Educational Needs provision is made through in-school mechanisms - School Action and School Action +; the only difference being that in School Action +, the school also has help from outside agencies.

Most schools are given 'devolved funding' which means that around 80% of the SEN funding is given to the school each school year, regardless of the number of children on their books with SEN. Therefore, they are expected to meet the needs of the majority of children with mild and moderate SEN out of their existing budget.

What is useful about a Statement is not the funding, that is irrelevant, but rather as you say, the legal backing and the fact that you choose the school.

If your DS doesn't have clear speech, then it may be that this is established as a need as time goes on. At 3, he is at the upper end of the limit for speech clarity, because they are starting to expect that most people could understand him at this time.

It is interesting that you say he is 'fully mobile' but go on to say that he can't run, jump,etc. I think we as parents play down the difficulties our children have.

There is no harm in asking for statutory assessment, and in part, the assessment is about identifying his needs. However, to get them to assess in the first place, you need to show them that a Statement is likely to be needed.

So gather all your reports, etc. Does your DS get DLA at all? This is quite a good piece of evidence, because to get DLA you have already proved that he needs more help and supervision than a typical child of his age.

chinchi · 02/11/2010 15:14

Thanks very much justabouttosellakidney. When you put it like that, yes, he would need extra help with things like P.E. We are going through the potty training process, and we are still trying to overcome the problem we have of him pullin his own trousers down as he has slight weakness in his left arm. Up until now, I have had to help him as he would struggle to realise that he needs to do this in enough time in order to sit on the potty to avoid having an accident.

I really hope I didnt offend by mentioning that a big advantage would be a guaranteed place at primary school. I realise how difficult it is to get a statement, and I appreciate all the help and effort school have put in so far Blush

I think I am going to struggle to put my point across because he has managed so well, so far in nursery without the classroom assistant that school were so desperate to have in place before he started.

Should I mention things like he cannot put his own shoes on as he cannot put his splint on? Should I mention the potential problems with toilet training? I am worried about SALT as I mentioned that she doesnt want to see us now until March, and was very impressed at the last appointment, yet I often have to tell people what DS says as he doesnt say things clear enough. Could he report jeopordise things?

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chinchi · 02/11/2010 15:22

Thankyou so much Lougle. DS does get DLA- middle rate care and he has just qualified for mobility. He also has a Blue Badge.

I think I am guilty of playing down his difficulties :) He can walk, without support, but cannot run or jump. He either walks up the stairs holding onto the wall, or 'crawls' up on all fours. He tends to hobble along because of his habit of tip-toeing.

He is capable of things like holding a pen, following instructions, following routines, yet cannot really fully make his needs understood. He uses Makaton alongside speech, but tends to answer peoples' questions rather than initiate speech himself.

DH was shocked when I told him DS would be starting school next year (DH is Turkish and school age is later over there). He seems to think he wouldnt cope on his own, mainly because of his speech delay.

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Lougle · 02/11/2010 16:29

See, I find that interesting - the child you introduced was so capable I wondered why on earth you would expect a statement. Now you reveal that he has HRM and a blue badge Wink

Okay, so what you have to bear in mind is that at school there will be things he is expected to do independently that are not in the SALT's remit.

He will be expected to go to the toilet without assistance.

He will be expected to get changed for PE with only a little help.

He will be expected to be fairly independent, and follow instructions from the front of the class.

Now, if the likelihood is that he will need help with those things, then he may need a statement.

So you can visit the IPSEA website, and download their template letter, then adjust it to fit.

You need to present worst case of your DS. DON'T do what you did in your OP Grin

justabouttosellakidney · 02/11/2010 18:15

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justabouttosellakidney · 02/11/2010 18:17

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chinchi · 02/11/2010 22:17

Thanks very much to you both for your replies. I think because I have focused on all that he has achieved, I tend to shy away from the things that he can't do. I thought I was being daft applying for a statement, but when I have re-read all that I have typed, it has become more clear :o.

If I have a go at the letter, would you both be as kind as to give suggestions etc?

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justabouttosellakidney · 02/11/2010 22:25

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chinchi · 02/11/2010 22:31

I have started the letter, but Im stuck on the first part already! DS doesn't at the moment receieve any additional help in nursery, so how can I argue that I don't think this is enough?

He is treated the same as the other children. SALT and physio are yet to visit him in nursery. There is no one-on-one with him and staff. They havn't made any adaptations as they havnt yet been advised by anybody to do so.

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StarkAndWitchesWillFindYou · 02/11/2010 22:39

Chinchi 'Some' professionals will play on your optimism and support you in playing down the difficulties, simply as a way of detering you from applying for resources.

Sorry to be so gloomy. You sound quite determined and already ahead of many so hopefully it isn't gloomy at all, but it might be a little tough so be kind to yourself.

justabouttosellakidney · 02/11/2010 22:48

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chinchi · 02/11/2010 22:48

Thankyou StarkAndWitchesWillFindYou. I am new to all of this, so Im yet to find out who is 'on my side' :)

The inclusion manager has been very honest and although she has commented herself at how well DS is doing, she has told me to not be so forthcoming with his achievements in order for us to get somewhere with all of this :)

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chinchi · 03/11/2010 07:06

Please would you mind taking the time to read and give comment on my letter? I have followed the template from the Early Support booklet I have at home.

Request For Formal Assessment

Dear Sir/Madam,

I am writing to ask you to assess the special educational needs of my son * (D.O.B *), under Section 323 of the Education Act 1996. I am making this request as is my right under Section 329 of the Act.

* attends the nursery at , and I believe that he needs more help than the nursery can provide. currently attends five morning sessions, but his entry was delayed due to needing to determine whether would be able to cope without one-to-one assistance in the classroom. As the process for Funding is currently on-going, extra physical support for has not yet been provided, and so the staff are unable to spend one-to-one time with him. I believe this support is essential, as due to *'s mobility problems, and speech delay, he needs somebody who is able to understand he needs and ensure that he does not come into any difficulty.

I have written my views on my child's difficulties in the enclosed report.

The following people are involved with my child and are available to provide advice and reports on ** difficulties:

Mr XYZ
Dr ABC

I understand that you are required by law to reply to this request within six weeks and that if you refuse I will be able to appeal to the Special Educational Needs Tribunal.

Report Detailing **'s Difficulties

? * was born at 29+5 gestation by emergency caesarean at , weighing 1.49kgs. He was initially ventilated for just less than 24 hours, followed by CPAP for a further 5 days. He spent a total of 6 weeks in Special Care. He was initially nasogastric tube fed, but this had been removed by the time of discharge from hospital. had an ultrasound scan when he was four days old, showing a small right germinal matrix haemorrhage. A repeat scan a week later showed echogenic flares within the right parenchymal region and sequential scans showed a cystic change in the same region. had a MRI scan of the brain in October 2009 which did not show any overt focal abnormality. He had a diagnosis in July 2009 of mild-moderate cerebral palsy, and displays physical difficulties that are associated with left-sided hemiplegia. * receives middle-rate care and high rate mobility Disability Living Allowance. He is also part of the Blue Badge Scheme.

? Initial concerns arose when at around 8 months, * was not able to sit unaided, and he had fisting of his left hand. Soon afterwards, it was noted that he developed equinus posturing of his left ankle with a tight heel cord. Throughout the course of the year, continued to adopt this posture, and it became more prominent especially when he was weight bearing. Physiotherapy and Orthotic Services were involved. He was supplied with AFO splints for both legs. Botulinum Toxin has been discussed more recently and it was felt that he should be given time to adapt to the latest AFO splint and heel support he was given, with a view of being referred to the Botox Clinic at his review appointment on 11 November. * learned to sit at 10 months, but did not crawl until he was 15 months old, and finally learnt to walk at 2 years and 4 months.

? * does not have any general health problems. He sleeps throughout the night, and will still have an afternoon nap for 1-2 hours. He is quite a faddy eater, and is very reluctant to try foods that he does not recognise. It has been suggested that the occupational therapist introduces messy play with *, to introduce him to various feelings as it is thought he has a sensitivity to certain textures. His weight is below average. He has no known allergies.

? * is able to walk without the need of physical support. He wears an AFO splint on his left foot, and uses a heel support inside his right shoe. Despite the splint, Kerem still attempts to walk on his tip-toes, causing him to 'hobble' and have difficulties with his balance. He is unable to run or jump. The nursery which attends is a busy setting, with children constantly moving around. Although * does not shy away from trying to be mobile, he is hindered when trying to navigate his way around as his muscle tone increases when he is active. Increased muscle tone has also been noted in his left arm when he is active or excited, however, he will use both hands in order to do an activity. He can achieve simple tasks like throwing, pointing and holding a pen.

? 's speech and language skills are somewhat delayed in comparison to other children of his age. SALT have been involved since was around 15 months old. He uses both Makaton and words in order to communicate, but his speech is very unclear and often cannot be understood by people who do not know him well. He uses around 15-20 words, recognising most everyday objects. will answer simple questions, but struggles to initiate conversation. 's Dad is Turkish, and both English and Turkish are used at home, with understanding simple sentences and instructions in both languages. Close family members often have difficulty understanding what is saying, and so it is a big concern that in a setting where is still new, he is not able to express his needs. He does not have one-to-one help in which someone can get to know well enough to ensure that his needs are met. cannot structure questions, and can only form 3-4 word sentences. He understands key words in a question or instruction and often knows what is expected of him. can recognise many sounds and understands gestures. His sight and hearing have been checked and no problems have been reported.

? ** lacks the ability to complete many basic personal tasks that should be expected of him at this age. Due to the stiffness in his left arm and hand, he cannot put on his own shoes, fasten his own coat, or get dressed without support. The potty training process is proving difficult as he is unable to pull down his trousers in time in order to prevent an accident. He manages tasks such as washing, using a fork and spoon, and putting on a hat, but it is the skills that are needed most in a school environment that he lacks.

? ** is able to show his feelings. He is a sensitive child, and quite emotional at times if he takes a fall or sees somebody else upset. He often becomes frustrated when he can?t make his feelings understood through speech, and can display this through anger. He is also very anxious when in new surroundings or situations, and this has been visible in nursery as he has been starting the session later than the other children so that the atmosphere would be calm and settled when he arrived and the staff could focus on him whilst the other children started activities.

? * has two younger sisters and has very good relationships with both. is almost 2 years old and so her are able to play together and seek each other for company. is 3 months old, and * is very protective of her, realising that she needs a lot of attention. His paternal Grandparents live in Turkey, but has frequent contact with them through visits and over the Internet using Skype. He has only recently been able to develop on his social skills through starting nursery as he was not previously in a childcare setting. His maternal Grandparents have passed away, and he has no Aunties or Uncles living in the UK. He has only really been used to spending time with parents and siblings, and so he has developed social skills through interacting with the children and staff at nursery. He shies away from adults that he does not know, often showing embarrassment when they try to communicate with him. He has a few friends out of nursery of a similar age, and can find it difficult to engage in play as he cannot communicate well enough to initiate a game or role play situation. He will play alongside other children, but does not tend to play with other children.

? Although the cerebral palsy will not get any worse, there is still a lot of work that needs to be done by professionals in order for * to catch up developmentally to the abilities of children his age. This help is currently available through the health professionals involved with *, but the support needs to be present at nursery, and subsequently school, as he is due to start primary school next year.

? I believe that * needs the help of a classroom assistant who would work with him on a daily basis. This person would be able to learn the way that communicates and understand his needs and emotions. needs support with the most basic of tasks such as dressing and help when using the toilet. He would most certainly struggle when in primary school without this help. He would be unable to dress and undress himself for P.E. and to a certain extent, be unable to participate due to his physical disabilities. As * uses both Makaton and speech, he needs 1:1 interaction with somebody who can learn what he is contributing to the class.

This is where I just seem to trail off! As I previously mentioned, he isn't currently receiving any additional help in nursery and is being treated as the other children. SALT and physio are yet to visit nursery, so I cannot make comment on what help is or isn't available as no suggestions have been made yet. The only help I can suggest is that he would benefit from 1:1 interaction, but nursery have put in an application for funding for this that is still being processed.

Please criticise away and oops- didnt realise parts would show up in bold text with me using * for his name! Ive not done it for any reason like that!

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Lougle · 03/11/2010 07:50

On my phone & kids to get ready. Very comprehensive, but faaaar too positive with faaar too many 'get out clauses' for the LA - will post suggestions later, but well done!

PS you left your DS name in it once (but don't ask deletion yet, because whole post will go!)

justabouttosellakidney · 03/11/2010 07:51

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justabouttosellakidney · 03/11/2010 08:07

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justabouttosellakidney · 03/11/2010 08:08

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StarkAndWitchesWillFindYou · 03/11/2010 08:29

Also, you don't 'believe' anything at all. You are convinced of it, so just say these things as truths.

i.e. not 'I believe this support is essential.....' just 'This support is essential.....'

Remove this. VERY important that you do.If he changes or develops anything, you DO NOT want this in writing to go against accessing services, which this particular statement will.

'does not have any general health problems. He sleeps throughout the night, and will still have an afternoon nap for 1-2 hours.'

Other stuff to take out are things like 'will answer simple questions'. This has to be about his NEEDS, not a chance to show off his achievements. I'm sorry, but each and every 'positive' will negate a negative. So every time you write about a difficulty that is one to you, ever time you write something positive, that is one to them.

You might want to remember that too when the 'professionals' write their reports. I believe that the majority are trained to and want to try to balance their reports with positive things to be kind, but this really does go against you, so don't allow anything to stand in the report that you don't quite agree with or you just think is irrelevant.

StarkAndWitchesWillFindYou · 03/11/2010 08:32

sorry, not clear. Remove the sleep bit.

Oh goodness, poor you. We must sound very scary and brutal. Please understand that we've simply learned from our mistakes that's all.

Absolutely nothing wrong with what you have written, nothing at all, but we know how you can make the biggest impact etc.

chinchi · 03/11/2010 08:55

Thankyou all so much. Don't worry about being brutal! Id rather you all be honest and point me in the right direction! Im on my phone so cant adjust the letter at least until kids are having their afternoon nap (no nursery today due to sickness) I will certainly delete all the parts you have picked up on. I can certainly add that he has fallen on a numbet of occasions and I have been called into nursery twice to change him when he has soiled his nappy as apparently they dont have the provision of staff to change him themselves.

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