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issues with CAHMS psych

36 replies

Bonkerz · 29/10/2010 19:32

Just wondered if any of you have any experience like im having right now.

Ds was diagnose in Sept 2008 with autism, ODD and anxiety. this was after a huge battle with CAMHS to get the ADOS test and after the psych said DS had no problems at all and it was my parenting to blame, and i had to place a formal complaint against the psych.
We still have the same psych now and he has been ok untill last month.
About 6 months ago we put DS on Risperidone which worked brill but the effects have now worn off and in Aug the Psych agreed DS would go on Stratterta and he told DS to prepare himself for a med change.
We went for an appointment 2 weeks ago which we thought was to get the new meds and the psych actually told my son that he CHOSE to physically hurt people and that he was going to take him off all medication in Nov at next appointment and told me i should try disciplining my son!
In shock i left the appointment and rang DSs school the next day. DS goes to a private priory school for autistic children and is in a class of 3 children with 1:1 support and they use lots of strategies with him and he has done brill since starting there in oct 2008. The school were shocked at what had been said to myself and my DS and agreed they would support me 100% and divulge all info to CAHMS.
YEsterday i recieved a letter from the psych which was CCd to me and was addressed to a school my son does not attend asking for info on DSs behaviour, the diagnosis on this letter was wrong and it was sent to a completely different doctor via CC too but it was my sons name and date of birth on the letter!
I rang the psych and had a bit of a rant at him and he blatently admitted to getting my son confused with another child.....i then asked him if he had known who he was speaking too in the meeting when he was so harsh on my 10 year old DS and he admitted he had been negligent and owed me some apologies and explanations!!!!!!!!!!!!!!
Im absolutely fuming.
Since the appointment my sons self esteem has hit an all time low, he doesnt know whats going on with his medication and school have reported his 'crisis' behaviour has hit an all time high with him spedning over 9 hours per school week in the calm room.
I have an appointment on 24th November to meet with the psych to discuss all of this and the school have rang him to offer him a meeting at the school so he can see first hand the school and the behaviour.

OP posts:
daisy5678 · 29/10/2010 23:50

Lucinda, you do seem to have a habit of posting without reading others' posts - not just on this thread; you also did it on the one about mainstream teachers.

Mumi · 30/10/2010 01:32

Lucinda:

I have walked into an outpatient psychiatrist appointment, out again with a new prescription, straight into a hospital pharmacy and set off on my way home with the relevant medication, in less than an hour, on at least three occasions when treatment needed to change, over as many years.
All my GP received each time was a letter for his records to glance at and file away, which he was quite happy to do.

You are incorrect.

Mumi · 30/10/2010 01:41

Bonkerz: not much to add in advice except to obviously write everything about the story so far down, including everything from the conversation you had with him that you can remember, and please do complain if you can, even if only to get it on record who your DS actually is!

I wonder if he has gone as far as to confuse the parent of who he thought your DS was too Confused

Best of luck :)

LucindaCarlisle · 30/10/2010 08:47

MUMI, I was once given a prescription for medication by a Hospital A&E department, but they did not adequately explain what they were for, so I did not take the tablets.

Lougle · 30/10/2010 13:10

Lucinda it is down to the patient to ensure they adequately understand what medication is for. Why didn't you simply ask??

LucindaCarlisle · 30/10/2010 13:31

Wrong. The Nurse should have explained clearly what it was for. The Doctor did not assess me properly.

Lougle · 30/10/2010 13:44

Ahhhh, I am remembering you now, LucindaCarlisle, you are the very same poster who felt that while receiving Incapacity Benefit a JobCentre representative should have contacted you and suggested you train as a Social Worker Hmm

The world doesn't come to you, you know.

If you are in hospital, and a doctor or nurse doesn't explain what something is for in a way you can understand, you say "excuse me, I don't know what this is for." Even if that drug is as common as ibuprofen. You could say "I don't have any pain", then the nurse or doctor could explain that it is given to reduce inflammation or as a background painkiller to prevent more acute pain.

Stop whinging and get on with life. This is a nice section of MN. We give and get support here, and everyone is genuine and non-confrontational. That's the way we like it.

I don't like to see arguments over procedure, especially when one poster is so grossly misinformed, yet won't allow another poster to educate them.

The GP is a generalist - very good at giving diagnosis of general medical conditions, and expert at knowing when to refer on, and get specialist advice.

WetAugust is a very much respected poster on this board. She gives sound, good advice, with a good deal of her time invested in helping others on this board.

If you can't post constructively, may I suggest that you don't post at all?

LucindaCarlisle · 30/10/2010 13:48

Not aLL G.P.s are as good as your ideal.

ouryve · 30/10/2010 15:29

I'd definitely be writing a formal letter of complain, Bonkerz, and requesting a referral to a different psych. That one was way out of order and acted in a totally unprofessional manner.Didn't he have his notes with him, for goodness sake?

And putting in my ha'penn'orth that DS1's psych prescribes and tells the GP by letter (which I also receive a copy of) what to prescribe on repeat and when that will be reviewed. I don't think GPs are even allowed to prescribe certain drugs without say so from a specialist.

Mumi · 30/10/2010 15:58

Lucinda, your post directed at me has got nothing to do with my correction, or indeed your original point.
You should take Lougle's advice.

Bonkerz · 31/10/2010 14:00

Eeeek I seem to have started a fight. In answer to some questions.......

My GP has nothing to do with my DS care and never has since she referred us to pediatrician initially. The gp won't prescribe or assess ds meds it has to come from psychologist at cahms who has been the only one to prescribe! Even the occupational therapist has to refer back to the psych for more meds.
Our cahms psych is trained in ADHD and doesn't seem to understand autism at all. He actually told me ds had ADHD I initially but I asked forfurther testing. I have since spokento a number of parents with same psych who have had similar issues with him, one of the parents actually took the dx of ADHD for her son and spent the next 3 years fighting for further help ans he has finally been given a dx of aspergers.

I have written it all down. Appointment is on 24/11 and I will be demanding e planation and writing to lead clinician after that if things are not sorted!

Thanks for advice everyone, giveme.... I'm sure he will be throwing all sorts of help at us for a while to smooth it over as you suggested!!!!!!!!

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