Parents of young children with cerebral palsy-A few questions.

[Squiggers]

Hi everyone,

I've never posted on here before. My 3 year old daughter has very recently been diagnosed with Cerebral Palsy. I've found the last few weeks since the diagnosis quite hard. I don't know why I'm finding it difficult - she's the same amazing little girl. The label doesn't change anything, or make her anything she's not. Anyway - I'm currently not telling anybody outside of my immediate family the diagnosis. I feel there is no point as people can't see there is anything different about her. However, I'm wondering if it's odd of me to not tell people. I just don't want people to treat her differently. What do you do if your child has CP but it's not immediately obvious?

Also my DD gets very emotional and upset when she's tired. Our consultant mentioned CP children get tired alot quicker than other children. Is this true? I'm not sure what is just the expected behaviour of a 3 year old, and what's CP.

Sorry if I've waffled, or worded anything inappropriately.

I'd love to hear from anybody else with a toddler with cerebral palsy. I feel quite isolated and ignorant at the moment.

Thanks for reading.

Hiya, my DD is 11 year old with mild ataxic CP. We had a similar start to her life and the not knowing how things will turn out was really, really tough

Core muscle tone was the main issue for DD too and she couldn't sit securely until around 18 months. We did loads of physio and core strengthening exercises which really helped. DD also started horse riding with RDA at 3 years which is great exercise for core strengthening.

We found the CP label does make it easier to access support from a range of services that will be helpful but the important thing is that you will be her strongest advocate! Its quiet on here but there's lots of groups on FB - I found it really supportive in the early days to chat to other parents going through the same experience.

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