ASD mums how many of you have actually applied for statement yourselves as school were unwilling and not meeting needs???

[genieinabottle]

Just curious about this, wondering how many times school do actually request SA themselves...

I requested statutory assessment myself, school aren't / weren't very supportive. Have now got DS's proposed statement (meeting with LA later to make it a better one..).

Was told DS may not meet criteria by school, all reports, professionals all agreed he needed one - one in the eye for school!

Go for it genie - wish I had done it when DS was in reception - he is now in year 2.

I requested SA myself without the backing of the school. SA was refused after school reported "ds is a happy confident boy and is progressing well. He gets on well with his peers and is happy. He is friendly, polite boy with no issues in school"

You then go about proving them wrong, i appealed and they agreed to SA. They are now refusing to issue a statement and i am appealing in a new school who do notice ds's difficulties.

New class teacher tells a totally different story to the last.

I requested SA myself without the backing of the school. DS got a Statement.

I requested a SA myself. DS wasn't in school yet but I'd read enough here to believe he wasn't going to have his needs met and wanted to get in there first. I got a statement. His needs still aren't being met, but his provision is a thousand times better than it would have been.

genie Love. We all know how frightening it all is. None of us were born anywhere near as agressive as we appear. Most of us are driven by our love for our children and our devestation about how they are being let down.

I don't want to depress you, or anyone really, but there is one thing that keeps me going. I read a stat somewhere that 1 in 5 young people with autism have either attempted or succeeded at suicide by the time they are 25. MY child is NOT going to be one of them. This is an extremely powerful motivator for me and means I can be quite nasty if I have to. A little mistake now can set my ds on a path to that statistic and I won't allow it.

Thanks for replies.

Star, I can imagine that without the statement, your DS's provision would be as rubbish and non-existant as the one for my DS.

I have contacted PP earlier and i was quite impressed with what they said and the plan of action we discussed.
One step at a time hey...

They even mentioned the statementing route as an option.

Requested statement myself in reception and it started in Year 1.

Yes, twice over; once that strated April of year 2 (how many wasted cahnces?) and once in reception year. School kept giving me crap about not allowed to ask in nursery / reception and I gave in and did it myself.

' I read a stat somewhere that 1 in 5 young people with autism have either attempted or succeeded at suicide by the time they are 25.' Absolutely

I do have a DX of asd; I do have an arcx rating scale of 40 when the average is 15: make of that what you will. I tried to take an overdose at 16 becuase I could nto coper with my anorexia.

DS1 already ahs eating disorders. Like hell is he following the rest of the route!

I applied for both dd and ds's statements but they weren't in a school setting at the time (aged two and nearly three) I didn't want them to have to fail in school or for school to not meet their needs though rather than because they already had done.

I requested SA myself. I think school would have eventually done it themselves as they knew they weren't meeting his needs, but they were doubtful that he would get one.

They officially supported my request but they weren't willing/able to put in all the work required to gather evidence and set out his needs in writing.

That's why I always think it's better for a parent to apply - you can spend days researching and writing up letters and forms, whereas most SENCOs will be pushed for time and won't understand your child's needs the way you do.

"school wont even write a fucking reference for Cerebra SALT vouchers. patently refused it last week."

why are they doing this!!! pfff... it is so depresssing at times.

DD1 wasn't in school, but I applied for a SA. GOt a statement and special school, when all profs said 'help at MS'.

I hope they accept it too. about how it's coming down to shoddy provision yet again.
Fingers'crossed for you.