applying for statement, ds just diagnosed with epilepsy need advice

[helentheresa]

Hello, i was hoping someone could give me some advice. i am in the process of applying for a statement and my DS has just being diagnosed with epilepsy. I am not sure what to write his needs are in an educational setting as a result of this diagnosis; any advice greatly apreciated.

Hi
Sorry - I have no experience of epilespy but bumping for you as some on here do have.

hi my daughter was diagnosed 2 years ago with epilepsy. and we have just gettin the school to apply for a statement x

Hmm. Ds epilepsy comes under medical on his statement but we do have a care an drawn up with step by step protcwl so they know when to yell for help and what needs just needs noting and carrying on .School also have identified area for ds to sleep post seizure where he can rest but stilbe observed

there also aware of possiable triggers to fortunate as ds in speech unit class Is small and teacher herself made contact with epilepsy charity to fond out more

My DDs epilepsy is covered mainly under the health part of her statement. Bascially extra supervision, although she has a high level anyway, and what happens if she does fit, such as her medication and aftercare etc is all on a list at school, so everyone dealing with her knows how tio administer her medication. DD is lucky in a way as the ASD unit she is in has a fanbulous sensory room, which she goes to if she ever "sees fairies" as she puts it, or starts acting any different.

Thank you all for your advice.

We just talked to the school nurse and the epilepsy charity Epilepsy Action. Sometimes you may be allocated an Epilepsy nurse at the hospital clinic and they may be able to help as well.
Although my dd has epilepsy (was diagnosed aged 3) she does not have a Statement as there are no other learning needs. She is on the list of Children with /Additional Medical Needs though. All she needs is medication to be given in school and an emergency care plan passed to all staff in case a seizure happens at school.
When she was first diagnosed dd did seem to have development delay and problems with speech but this did improve when medication level was correct and seizures were better controlled.
Hope this helps.