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I am giving up because ...DS has no SEN.

52 replies

genieinabottle · 18/10/2010 16:18

I have had a meeting at school, teacher was supposed to be telling me more about DS's needs and more so what they are doing to help him.
I got there and SENco was also present, and as i was alone this time they went on at me hard.
DS has no additional needs. In fact other children in the classroom who have no DX nor identified needs are doing less well than him.
DS can talk, understand, interact, play with his peers just fine. He has very good imagination when playing games with others, he has no sensory issues, he is very bright,... i won't carry on you get the idea.

Each time i said something i was being contradicted by them. I said black they said white.
I asked what about all the evidence in all the professionals 'reports and his dx report, well the answer was yes he has a dx of asd but they don't see he has extra needs at school.

They have not written up a new IEP as he simply is doing so well in all areas.
EP who is going shortly after half-term will be going in to observe to see if she does see any needs and then advise re:IEP.
EP who hasn't seen DS since last november has said to senco on the phone that despite his dx of autism and speech and lang.disorder his needs are very mild anyway.
I'm sure nothing will come out from her going in to see him after half-term.

I don't know what to do anynmore. My hands are tied, DS has a two dx that serve no purpose.
I cannot handle the stress anymore. Just phoned DH up and told him about the meeting, he had a go at me for not standing my ground, he said they are lying and blamed me for being fobbed off by them.

I'm giving up. Sad

OP posts:
colditz · 18/10/2010 16:21

hand the whole issue over to your husband.

redhappy · 18/10/2010 16:21

Oh Genie don't give up! But stop thinking about it and give yourself a break if you need to, recharge your batteries.

How is he finding school now? How is he at home? Do you think he needs extra help at school?

IndigoBell · 18/10/2010 16:22

:)

They are total b

Is moving school an option?

childrenofthecornsilk · 18/10/2010 16:24

Contact NAS and tell them what the SENCO has said. See what advice they give.

EleanorHauntedHandbasket · 18/10/2010 16:24

This reply has been deleted

Message withdrawn at poster's request.

Ineed2 · 18/10/2010 16:26

I know how you feel and have had a similar experience myself with school staff, although Dd3 does'nt have a dx so it is even worse for you and your ds to be treated like this. How dare they think they know more about your child than you or the professionals involved. I don't know what you should do next because they are just unbelievable.Angry.

genieinabottle · 18/10/2010 16:29

I think he is just about coping as he isn't having meltdowns there or anything, but then DS is very passive and has never been one for aggression.
At home all he does is either stims or go in the wii, he has challenging behaviours like never before, and hours long tantrums like never before.

I told them that , answer was all children are irritable when they are tired after school.

Of course i think and i know he needs extra support at school especially in terms of engaging appropriately with others and understand verbal instructions, small group work too.
But teacher said he has no problems, even though he is only on the 6th percentile for core language, and has the understanding of a 3.5 y old at his last salt assessment 3 m ago.

OP posts:
genieinabottle · 18/10/2010 16:32

"I'm sorry if I'm misunderstanding, but isn't it a good thing he is doing well and has no perceived SN at school?"
EleanorHHB, yes that would be a good thing is it was true.

But how can he not have SEN when he has autism and speech and language delay/disorder ???

OP posts:
Magicmayhem · 18/10/2010 16:34

what year is your DS in?
It is good that he is doing well... at the moment... but things change and they could well put things into place for if his behaviour suddenly changes or he starts to cope less.

how does he cope with change, ie one activity to the next,
how does he cope with playtime/lunch time?
does he have friends? good social skills
does he ask for help
does he understand what is expected off him in lessons
is there a TA in his class?

I'm sure the EP will have some thing to say as they often spot things that the teachers don't.

Will you have a chance to chat with the EP once she's observed your son? maybe you could have a chance to voice your concerns to her.

genieinabottle · 18/10/2010 16:40

DS is in reception.

"how does he cope with change, ie one activity to the next,
how does he cope with playtime/lunch time?
does he have friends? good social skills
does he ask for help
does he understand what is expected off him in lessons"...
Yes to all of these things, i know DS stuggles with. Well last time i checked he did. Nursery could see that. Language unit he went to could see it too.

DS has autism and can appear to cope and be playing with others on the surface, he has difficulties with language, social skills, sensory issues, imagination, routine changes,... but school are denying it all.

OP posts:
genieinabottle · 18/10/2010 16:41

Sorry EP is going in shortly after half-term, but we won't get to speak to her until 2 weels later.
We are also not allowed to be involved with the IEP process , i was told we''l get a copy for us to sign but that's it.

OP posts:
ScaryMoaningArrrggghhhs · 18/10/2010 16:44

Genie, call school, say you want to schedule an urgent meeting about today's discussion; trya nd sound friendly.

Send your DH.

genieinabottle · 18/10/2010 16:46

Thanks for replies.

Do you think i should call PP and explain to them what is happening and see if one of their advisor could be with us when we have the meeting with EP ??

OP posts:
childrenofthecornsilk · 18/10/2010 16:47

I'm sure the Rose report states that parents should be involved in the IEP process (but I could be wrong)

Magicmayhem · 18/10/2010 16:47

"Yes to all of these things, i know DS stuggles with". do you mean he struggles with all of them ...

it will be interesting to see his profile scores progressing then?

have you joined the national autistic society... they should be able to give you sonme advice...

childrenofthecornsilk · 18/10/2010 16:48

Yes defo get PP in on it.

Fel1x · 18/10/2010 16:48

call parent partnership too
i went to a talk by them last week and this sounds like exactly the sort of thing they will help with

Magicmayhem · 18/10/2010 16:49

yes... I'd definately get the parents partnership to go with you... and you DH!

genieinabottle · 18/10/2010 16:51

Yes, sorry if i'm not clear with my post Blush i'm just so upset.

DS has trouble with change , transition between activities, talking, joining in appropriately, and requesting help verbally he uses a lot of non-verbal communication for that.

OP posts:
childrenofthecornsilk · 18/10/2010 16:53

SEN code of practice states that SENCO and teacher should decide on action needed to help child progress in consultation with parents. (4.26, 4.27, 5.51)

Magicmayhem · 18/10/2010 16:54

I'd speak to the PP, to get their views on this, then request a meeting with the senco and teacher again, taking the pp woman with you...

has he had an iep before?

phoenixagain · 18/10/2010 16:57

The autism WILL show itself eventually at school.

You have had a set back with this battle but don't forget that you will win the war.

Lougle · 18/10/2010 16:59

Ok, I was fairly ambivalent until a late point in this thread. I believe that the school could be finding that your DS has no real 'issues', because Reception year is play based and less formal than Yr 1 on, so he could be self-selecting activities that he is comfortable with.

However, this point is where I feel that I have to speak up:

"We are also not allowed to be involved with the IEP process , i was told we''l get a copy for us to sign but that's it."

WRONG

"4:27 The IEP should be crisply written and focus on
three or four key targets. IEPs should be discussed with parents and the child."

"4:28 Reviews need not be unduly formal, but
parents? views on the child?s progress should be sought, and they should be consulted as
part of the review process. Further advice on IEPs and on involving pupils can be found in
the SEN Toolkit."

"5:53 IEPs should be reviewed at least twice a year. Ideally they should be reviewed termly, or
possibly more frequently for some children. At least one review in the year could coincide
with a routine Parents? Evening, although schools should recognise that some parents will
prefer a private meeting. Reviews need not be unduly formal, but parents? views on the
child?s progress should be sought and they should be consulted as part of the review
process. Wherever possible, the child should also take part in the review process and be
involved in setting the targets. If the child is not involved in the review, their ascertainable
views should be considered in any discussion.
School"

You are central to the IEP formation, and you need to write a letter stating that you want to be involved in the setting of targets.

If he has no SEN, then why is he getting an IEP???????

blueShark · 18/10/2010 17:05

what do some teachers and Senco know???? I wonder sometimes! I am sorry you are having to go the lengthy way to prove them wrong Sad

At the parents meeting last week (DS in unit for children with learning difficulties) I was told that they must have got the dx wrong with DS as he is not like the others ASD they had and he doesnt display any ASD traits apart from the 'sometimes is at own agenda' and avoids 'sitting down' for whole durations of activities when required. She was sure he is just speech delayed.

I fought so hard for that statement, place at that unit, transport etc and noone is taking it away from em without a battle.

moosemama · 18/10/2010 17:08

Genie I am so sorry to hear this, but please don't let them grind you down. People like that should never be allowed to win at the expense of our dcs.

Its so hard to keep on fighting. I think we all know that only too well. Give yourself a couple of days to regroup and recover then go back and give them a good kick up the proverbials. We will be here to hold your hands while you do it.

My first thought about what to do next is - have your local Specialist School Inclusion/Autism Inclusion Team been in to observe him at all? Do you know if the school has even bothered to contact them? Ours hadn't. Angry

I didn't even know ours existed until a lovely lady at the assessment centre ds is on the waiting list for told me to call them.

I found out later that they should have brought them in when problems were first identified and at the very latest after the Paed had given his initial diagnosis of ASD. I spoke to them directly and they said if the school wouldn't bring them in I should get my GP to refer instead.

Less than one week later the inclusion lady did an observation of ds and came up with a frankly eyepopping report of his problems in class, plus a big list of recommendations to be implemented prior to formal involvement of the ASD team. She could see what his teachers plainly could not, probably on account of her specialist knowledge and experience in relation to children with autism in the classroom environment.

I was so sad and at the same time furious that he had got to year 4 in school with not one of his teachers bothering to raise how much he was struggling. The inclusion report made heartbreaking reading. Like your ds, my ds1 has a good standard of achievement and that's basically all they were interested in.

Once we had the report from the Inclusion Team (which incidentally only took a week) things started to improve for ds at school. He had moved seats, been given a wobble cushion (although I had to buy him one myself that suited his needs better), been given his own area for keeping his equipment etc etc Best of all, more of the staff have now been informed of his problems and he is finally getting more patience and understanding.

I think all LAs have Specialist Inclusion Teams. I found all the details about ours on the Local Council's website, so that might be a good place to start. Even if they have been in, if they are anything like our inclusion team, they will be angry that his problems are being sidelined and ignored and should want to help.

It sounds like none of these people know much about autism and therefore can't see an additional need or problem when its right in front of them.

I have been there, without the dx though. With noone believing that ds1 had a problem and treating me like a troublesome neurotic mother. I now know that his problems were plain to see for anyone who cared enough to look. I honestly think they didn't bring in the AIT because it meant they would either need to stretch their allocated hours, or purchase extra hours to accommodate ds's needs. Once again, it all comes down to money. Angry