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HRM DLA for ASD (Aspergers)- useful info

11 replies

Lougle · 12/10/2010 10:00

I found this info about one person's fight for HRM DLA despite no professional involvement due to discharge, and the steps they took.

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NorthernSky · 12/10/2010 15:12

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SanctiMoanyArse · 12/10/2010 15:56

Thanks Lougle- will save thread

Lougle · 12/10/2010 17:05

Glad it is useful - I was quite surprised that they were allowed to use video and photographic evidence - I will keep DD's mammoth 45 minutes to get 80metres effort on HD, I think Wink

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GraveyardMistsAreYellow · 12/10/2010 17:45

I might start filming DS when he refuses to walk when we're out shopping. It could be hours before he even gets up let alone walks a step when in meltdown if we don't intervene.

I had the classic "your DS is making a conscious refusal" in my HRM turn-down as well as, "behaviour not severe" Hmm

I do wish the decision-makers would do their jobs properly by coming out and seeing what it's like just trying to walk into a shop to buy a paper with unfettered DC for example

Lougle · 12/10/2010 18:07

"Severe behavioural problems

61376 People are treated as having severe behavioural problems if they exhibit disruptive
behaviour that

  1. is extreme and
  2. regularly requires another person to intervene and physically restrain them
2.1 to prevent them injuring themselves or others or 2.2 damaging property and
  1. is so unpredictable that they require another person to be present watching
over them whenever they are awake1. It is essential that all three conditions are satisfied. The disruptive behaviour does not need to be displayed at all times but it must be extreme. The word ?extreme? is an ordinary English word which here refers to behaviour which is wholly out of the ordinary. 1 SS (DLA) Regs, reg 12(6)

61377 People who have severe behavioural problems may

  1. be destructive
  2. be reckless with dangerous things
  3. be aggressive and attention seeking
  4. self-mutilate or abuse themselves
  5. be hyperactive
  6. display persistent body movements
  7. disrupt the household during the night.
Note: This list is not exhaustive.

61378 The conditions at DMG 61376 can only be satisfied if the disruptive behaviour is

  1. a regular occurrence and
  2. a constant risk.
Aggression, destructiveness, hyperactivity and self injury may require physical restraint.

61379 The claimant?s behaviour must be so destructive and unpredictable that they require
the presence of another person to watch over them whenever they are awake. This
is in all aspects of the claimant?s life both indoors and out. If a claimant displays
behavioural problems at home but elsewhere, for example at school, is well
behaved then the test will not be satisfied.

Example
Jane, although displaying some behavioural problems, is capable of playing alone in
her room with the door closed. The claim to the higher rate of the DLA mobility
component failed as the carer is not required to be present and watching over Jane
whenever she is awake as the bedroom door was closed with the carer on one side
and Jane on the other1.
1 R(DLA) 09/02

61380 The claimant?s condition must be such that the constant presence of another person
is required to intervene, and restrain the claimant, to deal with unpredictable
behaviour. The restraint must be a regular occurrence. If supervision, or a structured
environment, short of physical restraint prevented the claimant from being
disruptive, or from being disruptive on a regular basis the test would not be
satisfied1.

1 R(DLA) 07/02
Example
Benjamin is disruptive at home whenever his mother leaves the room, or her
attention is diverted from him, or he does not get his own way. Whilst in the
structured environment of his school Benjamin displayed no behavioural problems.
The claim to the higher rate of the DLA mobility component fails on two counts. At
home it is the presence and active interest of his mother that is sufficient to prevent
disruptive behaviour. At school it is the structured environment and supervision that
prevents the disruptive behaviour."

The test is pretty strict, and you have to be able to fulfil all the parts.

If you read this guidance, and think that your DS qualifies, then you need to appeal.

Interestingly, it isn't how disruptive their behaviour to you as a family that counts, so he could spend 4 hours led on the pavement, and it would fail. But if at any time he would walk in front of a car, or lie down on the road, etc, that is more likely to suceed, because there would be danger to either himself or other road users.

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daisy5678 · 12/10/2010 19:50

Arrgghh. You've reminded me that, after that very long, torturous process and the Tribunal and the win, I'll have to fill in the form again and prove all the same stuff again soon. Joy!

keepingupwiththejoneses · 12/10/2010 22:43

I have won at tribunal now the dla are questioning the tribunals decision. Only to have to reapply in June. Don't you love the system.

daisy5678 · 12/10/2010 23:04

Shite, shite system.

SanctiMoanyArse · 12/10/2010 23:07

DS is on HRC and LR mobility; yet I restrain him daily (tonight we had a particualrly erm, interesting display but mights start a thread)

Is dangerous to people, must injure me or a sibling at elast every other day

Always ahs soemnoe within a room's distance or so, with all doors open- teh only exception is the bathroom as he won;t have it, baths usually end with him climbing unwashed from a window or being lifetd in by dh adn me

Tonight he was on teh roof climbing down a neighbour's fire escape

But becuase it's all so bloody normal in my ehad I start to wonder if it's just usual behaviour

it's not though is it?

NorthernSky · 13/10/2010 07:17

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SanctiMoanyArse · 13/10/2010 09:43

Yup. And I worry about ds2 as well and the effects on him; he's just been promoted to cubs second and the leaders had to goa round every six to find one for him and they all said no becuase he's too silly; he thought that was funny.

Is he silly for attention with his siblings?

Is he silly becuase of the ADD and dyspraxia school started to identify then bailed out on when thir budget shrank?

Or is it something else?

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