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Finally pushing to see an ED Psych

39 replies

moid · 08/10/2010 14:13

Hi,

DS1 is 9, after years of rubbish and lack of help from school I am finally pushing to see an ED Psych through the school. Couple of incidents and I have pushed to have a meeting to talk about this.

Started to prepare a list of all his strange behaviours - one or two looks quirky but stacks of them look like Aspergers. He is pretty high functioning and does appear to know when he is doing wrong, checking to see that I am looking for instance. So I can understand why they think that I am one of those "middle class" mums who blame their bad parenting on a special need Hmm

Two questions:

  1. What should I ask the school? What will they ask me?
  1. Could he have Aspergers when he definitely is not totally social dsyfunctional?

Many thanks

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moid · 12/10/2010 21:59

Well went to see Senco today - not particularly helpful. Basic message he isn't that bad, not as bad as X,Y,Z all statemented kids in his year.

She did say go and see GP, probably won't get a diagnosis, maybe aspergic tendencies, certainly not a statement. Don't really want a statement, just want them to supervise the playground better and be more understanding of his behaviour.

Anyway he is trying very hard and doing well in school at the moment so now I wonder if it is all in my imagination, I should just let him be and not go and see a GP. But then the mind plays powerful tricks...

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AttilaTheMeerkat · 13/10/2010 07:13

Hi moid

Its all too easy to slip back into denial mode and denial is a powerful force. But you cannot allow the denial to not see what is happening to your son re school.

I would warn you now that he may well not cope at all in secondary particularly if there is no statement in place by then. Its very different from primary school. He is not coping really now at school is he?. They certainly won't supervise him in the playground at secondary nor will be more understanding of his behaviour. The Statement if he has one will open doors to you that will otherwise remain shut; at the very least the teachers will be aware that he is statemented. Its not a stigma.

Sod the SENCO and the naysayers; she would say no statement anyway as they follow orders from the LEA. All theis too about him "not being as bad as the other statemented children in his year" is all party line stuff and designed to put off parents from applying; parents whose kids really do need a Statement.

I reckon too as well you will get a diagnosis eventually via the developmental paed.

moid · 13/10/2010 07:17

Well he is not coping with the playground, mostly coping with the classroom, doing fine at lessons though starting to slip back maybe because there way of teaching is very group focused.

Thanks I will see the GP on Friday. I am loathe to talk about this at school to other mums however do have another friend who is a teacher and she is very supportive.

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IndigoBell · 13/10/2010 07:38

Getting a statement and getting a diagnosis are 2 very different things. Most kids with ASD don't have statements.

Nor do you need a statement to get extra help with playtime / social skills. All you need is a good SENCO....

But a diagnosis really gives you a lot of power when talking to rubbish SENCOs. Otherwise you'll continually have these self-doubts.

My old SENCO was absolutley rubbish and couldn't see that my boy had ASD - even though it was blindingly obvious to lots of other people..... They are not trained in stuff like this.

moid · 13/10/2010 07:47

I know she kept smiling at me and spouting party line, that if we talked to him about how hitting and being rude was bad..... I wanted to shout at her and what do you think we do at home!!!

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fightingthela · 13/10/2010 07:55

Know exactly how you feel. I am sure ds has AS as he ticks virtually all the boxes e.g literal understanding,appearing rude,not liking change,obsessions etc. However,have had Ados test and told he doesn't have it just'behavioural difficulties'. Also has sensory issues.Have asked for more assessments but paed says he is adamant there is no ASD. 2 EP's that have seen ds recently both suspect AS/HFA. He does have behaviour problems and school struggling to cope so now going through assessment to try to get better support. Seems that school is looking too much at behaviour and not at what is causing it. Good luck in getting the right support for your ds.

AttilaTheMeerkat · 13/10/2010 08:07

"Nor do you need a statement to get extra help with playtime / social skills. All you need is a good SENCO..."

I've only ever come across one really good senco in my experience and that was when DS was in Infants!. A good senco will try and go above and beyond.

It is true that you do not need a statement to get help with playtime and social skills but having one in place will help on all sorts of levels; it makes teachers more aware for a start that the child needs and receives extra support. The children who did receive extra help with playtime (particularly this time) and or social skills in DS's junior school were all statemented.

marriednotdead · 13/10/2010 08:59

My DS always had issues with playtime/social skills but SENCO (the head!) at primary didn't pick up on anything.
6 weeks into secondary he was suicidal as the changes overwhelmed him. Their brilliant SENCO suggested autistic tendencies and we got an emergency CAMHS referral. He was diagnosed with non-specific ASD which has many Apergers traits. DS doesn't have a statement but is on school action plus so has support where/when needed, and has social skills lessons in school.

Last weekend he accidentally left his phone behind when coming to meet us in the big shopping centre we use now and then. I had planned to ring him at a certain time to tell him where to meet. He managed to find my car in a multi-storey (there are loads of car parks but he remembered which one I usually use) and then politely asked passers by if he could use their phone to call home so that DH could let me know where he was.
I was amazed that he had the savvy/confidence as he hates unfamiliar situations, and was very proud of him.

ASD can be a double-edged sword sometimes, and it's not all doom and gloom.
A diagnosis helps make sense of certain behaviours for us.

The SENCO explained to me that ASD is not who my DS is, but that it is an essential part of the jigsaw that makes him complete.

moid · 13/10/2010 09:31

Thanks so much - our SENCO didn't even suggest ED Psych or the school counsellor. Just go see the doctor - very much wash our hands of it.

Secondary scares me already, we have two years to go and have already looked at schools. Both state and one private option.

Thinking private highly academic boys school with loads of structure and experience with aspergers boys. Just have to get him to pass the exam Grin

Though my husband now agrees he needs help I have still not mentioned the "ASD" word to him. He will not be impressed, to be honest both of us are probably quite ASD.

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moosemama · 13/10/2010 12:31

Oh dear. I'm not surprised the SENCO wasn't much cop, good ones seem to be very few and far between. Our school doesn't even have one at the moment. Hmm

Just about everyone I've come across who has a child with special needs, particularly ASD, has been told their child won't get a statement so its not worth applying. Standard schpiel (sp?) I'm afraid. We have been told this by the old SENCO and the Head and been spun the old 'he needs to be X number of years behind his peer group academically to get a statement and your ds is academically advanced' line. They are just trying to put you off.

Talk it through with your GP and get your ds in to see someone who knows what they're talking about. SENCOs are 'Special Educational Needs Coordinators' they simply don't have the training to make decisions about whether or not a child has a certain condition or syndrome, let alone whether or not they will get a diagnosis or statement and its not their job anyway. They are there to coordinate the help and support that children on their school's SEN Register are getting.

Twelve months ago I was where you are now, doubting myself and being told I was making a fuss about nothing. If it wasn't for this board I would probably have chickened out and that would have had dire consequences for my ds. I am not the type of person to push myself forward or rock the boat, but I came to the conclusion that I had to change that for the sake of ds1. I have since been told by several professionals that ds is likely to get a dx of ASD possibly with a comorbid dx of Dyspraxia, he has also been given an preliminary dx of Aspergers by the Paed. Just last week we met with the Ed Psych for the first time and she said there is little doubt in her mind about ds having ASD. My ds is very similar to yours.

We have only seen or spoken to any of those people because I made it happen. I went the GP in the first instance, rather than the school. I figured if they'd been so useless as to deny he had a problem for four years, they were unlikely to be much help. It was me that brought in the Ed Psych as well, I called the centre where he is due to be assessed and said both we and he couldn't cope and could they suggest anyone we could contact for support while we waited for his assessment. They were disgusted that the inclusion team weren't aware of him and told me to call them myself. They also told me call the Ed Psych crisis line and explain the situation. The duty Ed Psych called me back the next day and talked to me for over an hour, then took ds's case to their weekly meeting and they took his case up from there.

I spoke to the Inclusion team, who were not at all impressed that the school hadn't mentioned him, as they are at the school every week anyway and it wouldn't exactly have been hard for them to at least put him on their radar so-to-speak. They told me to get a GP referral for him instead as the school was obviously being obstructive.

Finally they told me to call CAMHS for further advice and get a GP referral for them as well. I did both and they have since put us in touch with a local ASD support group that we weren't aware of.

I also got him an Occupational Therapy referral regarding his dyspraxic type problems.

My ds is finally getting some support in school and they have been making an effort since all the other professionals have become involved, although things are still far from perfect.

Its well worth pushing it yourself, I honestly wish I had done it so much sooner.

moid · 13/10/2010 16:04

Thank you so much for all your support. I'll let you know how we get on on Friday.

I am trying to remember all of his history, even the strange way he used to like us to read books to him when he was a toddler.
Very repetitive the same books every night and we had to make up stories based on the pictures in picture books and then he wanted us to repeat the stories over and over again.

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moid · 15/10/2010 09:09

Going to see the GP shortly, just re-read the thread and that has been really helpful. Really really nervous, I am awful at asking for help.

He is being lovely at the moment you wouldn't think he had any problems Smile so that makes me doubt my instincts even more.

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moid · 15/10/2010 10:19

Hi just got back from the doctor. Lovely female GP, I showed her my list and we talked through some of his issues, she didn't see an obvious link to AS. Which is fair enough because I am not sure that I see it.

She asked lots of questions about my family, relationships with me and my husband and his younger brother. Initially she said that she would like to see him so have made another appointment next week. Mentioned that CAMHS might be the next step, but we could talk after she saw him.

I did feel that she was taking me seriously which is more than his school does. Also agreed it was important to tackle this before he moves to secondary. So feel a weight has been lifted now that I have shared this with someone outside my family.

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marriednotdead · 15/10/2010 12:04

Good stuff, glad your GP was listening Smile

Do push for CAMHS if the referral doesn't automatically get offered. GPs by nature are not necessarily specialists in mental health and that's what is needed.

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