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Here are some suggested organisations that offer expert advice on special needs.

Worn out from smiling and nodding

14 replies

MistsAndMellow · 06/10/2010 14:27

DS saw the non-ASD trained dietician earlier.

You can imagine Grin

I'll soon have DS eating anything and everything as long as I insist he eats three meals a day with us at table. Would never have thought of that.

I did have an opportunity to test my theory that all the professionals I happen to meet are programmed never to engage if I mention gastric issues arising after MMR.

She completely blanked me just like everyone else. Top marks!

Any other smile / nod moments for you recently?

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StarlightMcKenzie · 06/10/2010 15:37

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RaggedRobin · 06/10/2010 21:43

not so recent, but when ds was 3.6 and we had a long awaited paed appointment, i asked if the paed had any insight as to why ds's sensory seeking behaviours would flair up every few weeks. he suggested not giving ds irn bru to drink. i wondered, as i smiled painfully and nodded, how many years of medical training it took to have that kind of insight.

Claw3 · 06/10/2010 21:58

Oh i love dietitians, he gave me a list of food that ds should be eating, very helpful i didnt realise what made a healthy diet! Apparently he will only the food he does, if i make it available. Withdrew his usual diet, huge weight loss, discharge from Dietitian as he "couldnt deal with ds and he needed psychiatric help". Only to be referred back to dietitian a year later and given another list of food. Who says the NHS waste money!

and community dentist gives me a list and tells me off for food and drink that causes tooth decay! DOH if only i knew this before i reached 40.

sneezecakesmum · 06/10/2010 22:45

Dietician: 'feed him 3 nutritious meals a day, with snacks in between' despite the fact DGS has a stomach the size of a walnut and will puke the lot at the drop of a hat.

Comm. Paed. 'He's still not on the chart maybe we should consider a PEG perhaps its his swallow reflex?' He's never been on the chart but follows a line just under, never lost weight, eats bloody toast and drinks water so no swallowing issues!

Dental surgeon 'You have to stop bf at night its decaying his teeth' Nothing to do then with the IUGR and lack of enamel laid down before birth and the b. milk is the only milk he drinks?

As a sensible grown adult woman my DD had every intention of having a perfect pfb who didnt know what unhealthy food was til he was 20 but life seemed to have other ideas!

Hmm Experts!

MistsAndMellow · 06/10/2010 23:47

Grin at frowning.

Milk is DS' only source of protein and most importantly it gets him to sleep so no, community dentist I am not going to stop it or get up and brush his teeth just after he has dropped back off several times a night and risk waking him.

Could be an interesting discussion with the Paed (lovely Melatonin) v dentist v dietician all arguing their individual agendas.

Hard on your DD sneezecakesmum, my son wouldn't touch formula until we hit on Hipp Organic follow-on which tastes of vanilla. I was shattered doing all the night-feeds for two years.

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herjazz · 06/10/2010 23:57

I'm sick to bloody death of seeing dieticians. Was referred to another one t'other week to see what her magic solution to a porky child who has severe physical disabilities, restricted growth and an inability to fast meaning she needs to be fed every 2 hours and overnight via peg to maintain blood sugars. Alas she didn't have one- other than cakes and sweets are v fattening and salad is good

Righteho..

NickOfTime · 07/10/2010 00:41

i actually don't know why the nhs employs dieticians tbh. ours lasted one session (where i nodded and smiled) and we never went back. you'd think they'd be put ot better use re-designing hospital food, really... (celery soup for 5yo most recently Hmm)

StarlightMcKenzie · 07/10/2010 14:08

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NickOfTime · 07/10/2010 15:08

oh, our slt pretty much saved my sanity, without her dd2 would be fed by tube now. she literally kept me going through the first two years.

if we're putting slts into room 101, can we leave out the feeding specialists? pretty please?

StarlightMcKenzie · 07/10/2010 16:14

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NickOfTime · 07/10/2010 21:47

Grin perfect!

sneezecake · 08/10/2010 11:09

ha ha yeah like ma said the firs time I saw a dititian she advised me that ds should:

have breakfast, and mid morning snack

lunch with a desert, and mid atfernoon snack,

dinner with a desert and then a snack before bed time.

I don't think she understood that it's not that we have a food shortage and that I'm just not feeding him. I would LOVE ds to eat all that, but he just WON'T.

SALT - just as bad but now that she has seen ds drinking water, she is a bit better, ' well you cant get thinner than ater and he's managing that ok'

ShadeofViolet · 08/10/2010 11:26

Our GP told me that to build DS up I should add a spoonful of sugar to all his drinks.

He also tells me everytime he sees DS that he is very small (like I dont know!)

The community dietician offered me cooking lessons Hmm so that I can cook for DS - now I am no Nigella but I do cook food for the family and offer DS some every night but he doesnt want it, and I dont need to learn how to make toast, unpeel a babybel or wash grapes - which is all the preperation DS's diet needs.

Then we saw another one who recommended that I cook unsmelly foods Hmm or I made his food into liquid so he could drink it. She was very agast that he couldnt use cutlery at 3 years old and said I must 'sort that situation out immediately' (like I havent been trying!)

MistsAndMellow · 08/10/2010 12:08

HV told me to cut down on DS' milk by trying him on Nesquick milkshakes. WTF?

I hate it when people assume you don't know what your children should be eating and when. I filled in a sheet for my NT DD when I went so I could show her that I do have some idea Hmm

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