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Here are some suggested organisations that offer expert advice on special needs.

IEPS, experts recommendations and notes in lieu

70 replies

Claw3 · 03/10/2010 11:42

(deleted my last thread, as i was giving away too much information) LA have refused to issue a statement and offered a note in lieu. Ds currently receives more help on his IEP, than what is written on the note.

My question is on ds's IEP 4 areas are addressed, it is smart and not bad as for as IEP's go. Then school lists 13 areasto be developed, which cannot be covered by the IEP and states these should come from statement objectives if there is one. What happens to an IEP if more difficulties/recommendations need to be added as the note in lieu is suggesting?

For example his IEP addresses anxiety, eating, motor skills and social skills.

The note in lieu is suggesting developing seven areas all to do with language, communication, social skills and play.

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Claw3 · 04/10/2010 21:11

Wassup, we have had Movical in the past, it didnt work for ds.

Went along to a continence assessment appointment a couple of weeks ago, apparently it is a "behaviour management" problem and i was basically told to go home and manage it! I had to pick the type of poo he does numbered 1-6!

I was advised to sit him on the toilet at regular intervals, he is 6 years old, not 2 and has none of it, i cant just pick him up and put him on the toilet.

He doesnt go the toilet regularly because of his limited diet and the same as your ds, he doesnt "feel it" when he does need to go, so cant see the point of just sitting on the toilet, if he doesnt feel he needs to go.

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wasuup3000 · 05/10/2010 10:27

I know what you mean claw, it is not easy. Feeling a bit sad this morning as his classmates clearly didn't want to play with him this morning and kept pushing him away when he tried to talk to an old friend who was with them.

Claw3 · 05/10/2010 12:30

wassup, your poor ds, other children can be so mean cant they, it is heartbreaking.

Ds was quite enjoying being the new boy at his new school and all the attention of everyone wanting to find out and play with the new boy. That novelty has worn off now.

I did shed a tear when i read recent EP observation of him in the playground, walking backwards and forwards along the edge of the playground on his own, not seeking to interact with anyone (and no one seeking to interact with him either) and him telling her school is a dark and scary place Sad

Makes you want to wrap them up in cotton wool and protected them from the mean kids and the scary world doesnt it.

Did you say anything to the child who was pushing him? i would have been very tempted!

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wasuup3000 · 05/10/2010 13:05

It was a couple of children. One took the place of being his old friends new best friend and the other likes to be a bit bossy when he can to show off.

The teachers are too busy talking to notice but parents are not really allowed into that area of the playground due to child safety issues.

My ds is not really self aware. So he doesn't realise when people are being mean or not.

Luckily my ds does have his youngest brother and his eldest brother at the school who look out for him at break and dinner times.
The youngest tells me when ds has fallen over and that he cried - its more than his teacher/dinner person/class TA would tell me.

It is heartbreaking claw when they are so unhappy.

I am going to have a word with his teacher and also ask when his new IEP is due as we have not had one this term. I am going to ask that he has his own buddy and they do some play skills with him and a few classmates.

Wish me luck!

Claw3 · 05/10/2010 18:24

I do wish you luck, although having a friend or just other children not being mean to you should be the law!

Hope it goes well Smile

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ArthurPewty · 05/10/2010 20:41

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Claw3 · 05/10/2010 21:27

Leonie, glad to hear and good luck to you too. If im honest my heart sank when i opened the envelope and saw a note in lieu, i was convinced i would get a draft statement.

Note in lieu or draft statement, I would have had to go to tribunal either way, so not the end of the world.

You can and will do whatever it takes Smile

How is your dd, is she doing her 'chicken' stimming thing?

Ds has started to do this hand flapping thing, which looks like a Mexican wave!

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ArthurPewty · 05/10/2010 21:42

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Claw3 · 05/10/2010 21:50

Ds does lots of it, we have had vocal tics, head shaking, hand flapping, spinning in circles, he just goes from one to another, pretty typical ASD behaviour i guess.

Have you booked your SALT, EP, OT etc for tribunal yet? Just trying to book mine now, waiting lists are so bloody long.

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ArthurPewty · 05/10/2010 21:52

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Claw3 · 05/10/2010 22:02

Well done, wished id booked mine sooner. Good luck.

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ArthurPewty · 05/10/2010 22:09

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Claw3 · 05/10/2010 22:15

Right on top of Christmas as well, double ouch!

Im going for 3, triple ouch! its got to be done though, sausage and mash for Christmas dinner Smile

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ArthurPewty · 05/10/2010 22:35

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ArthurPewty · 05/10/2010 22:36

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ArthurPewty · 05/10/2010 22:37

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Claw3 · 05/10/2010 22:52

[grin]@selling yourself, they had better make it quick, you wont have much time with all the paper work, Christmas and birthdays!

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ArthurPewty · 06/10/2010 08:01

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wasuup3000 · 06/10/2010 10:17

LOL @Leonie - I was fortunate/unfortunate to have some one drive into the side of my car who offered me cash in hand for the dent. (They were elderly had only recently crashed before as well). The dents still there but the money paid for a private SALT and a couple of other things!

Did not get a chance to speak yesterday. Teacher came to me, "I noticed that he had an accident" said she. "I asked him if he had and he said no". "SO I asked the TA to take him to the toilet and he had, had an accident, so she cleaned him up. Here's the bag".

Then she went on to ds who was not taking any notice as he won't talk about it; "You must always tell me if you need to go to the toilet, Mum will tell you that you must tell me if you need the toilet, as well."

"I won't be in tomorrow the TA will be so you must tell TA if you need the toilet".

"So who will be teaching?" I ask

"The TA"

Ok so for one ds won't understand what the hell his teacher is on about him having an accident because of his literal meaning. Two he has soiling issues. Three he doesn't like talking about them. Four what was she going on about to him about me telling him for, using loads of words instead of keeping it simple. Five so he is having a TA teach his class tomorrow, he is already having job share teachers anyway but another change as well to deal with -thanks for the advance notice.

They can't even understand the basics - parents evening will be fun next week! NOT!

Wheres the brick wall?

I have to get my daughter from her transport so basically that was anytime that I wanted to say anything used up, so I just smiled and said bye.

ArthurPewty · 06/10/2010 10:36

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