DS1 is 8 and has a dx of Dyspraxia and a verbal dx of aspergers. We have been waiting over a year now to see PDDAG who are the only ones that can apparently make a formal assesment. In the interim, we have liased with school as much as possible but feel that we don't seem to be getting anywhere.
DS sees the community paediatrician but this is rather hit and miss and although he should have been seen in August, they are so far behind and can not fit him in for about 2 mths.
The major issue that we have at the moment is DS's incontinence. He has not been at school this week as I really do not know what to do - I have spoken to the Senco regarding this and she was not help whatsoever.
DS poos a lot. He pooed 14 times today and he has no idea that he has been. I have tried to explain this to school and the paed in the past but they don't seem to grasp that he really has no feeling and only knows when we notice and change him.
We have tried sitting on the loo after meals and also have tried every hour which has helped but he is still having accidents day and night and I wondered if anyone else had suggestions as to what to do.
He doesn't currently have additional help at school but he is supposed to have someone check him on an hourly basis but this also is not happening as he has come back from school with poo, sometimes appearing as if it has been there for a long time.
I have seen the GP this week as an alternative to the paed but they only said that we need to see the paed.
I dont know how else to help him at home and when he is back at school and I don't know if there is anything else that we can try to stop the accidents and reduce the amount of times that he is having a poo and would really welcome any help and advice.