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Advice pls - Is a Diagnosis Worth It in Mild Cases?

26 replies

mistybluehills · 30/09/2010 10:21

Please forgive me if I don't use all the correct terms, I have been lurking for a while, but not plucked up courage to post until now.

Have long suspected DS1 (4.5 just started reception p/t) has HFA (and possible ADHD thrown in). We seem to have good and bad phases and whenever we are in a bad phase I wonder if DS1 would benefit from a diagnosis (feel guilty for burying head in the sand previously Blush). Then it passes and I think we are best managing it ourselves.

After reading much about the length of time it takes to get a diagnosis (and then seeing what little is often done to support people) I am left wondering whether it is even worth getting a diagnosis at all.

It was much easier for me to prop him up socially and explain emotions etc. to him as a pre-schooler. Now that DS1 has started in reception at a new school, do I inform the teachers of my suspicions or wait for the teachers to initiate it if and when they notice a problem? I haven't spoken to the new teacher at all yet. We are having a major bad phase at home since he started school part-time.

I am really worried about doing the wrong thing and want him to have a 'normal' school experience. He comes over as happy and clever, but also a bit odd and disruptive. He is so borderline that all of his grandparents think he is just a normal 'geek' who is clever and a bit obsessive.

FWIW the problem behaviours are obsessive and repetitive play, not listening or responding to direct questions, talking at people but not replying, not understanding social rules (but is learning them by memory), very limited diet, superb memory, really high energy levels, trouble getting off to sleep (rocks to sleep), sensitivity to smell and some lights.

I would really appreciate and advice, experiences or suggestions at all Confused.

OP posts:
Aero · 01/10/2010 23:03

Misty, you have described my ds2 to a tee in your OP!! He has an unofficial dx of AS/HFA. It's not written down as both the paed and I are not sure it's in his best interests long term. Reading this I'm having second thoughts! He is well supported at school (no learning problems - all social issues like you described), and they are supporting him as if he did have a dx. My concern is whether this support and understanding wil continue when he reaches secondary school. He's 6.5 and in Y2.

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