I need to write a speculative email.....help

[KatyMac]

To various consultants/experts asking for help with DD

What on earth do I write?

My DD was diagnosed with non-organic sight loss in February 2010; she is seeing a psychologist about once every 10-14 days. What else should I be doing to help her recover. I have been told to ignore it and it will go away, is this the correct course of action?

Sounds a bit sparse, will it do?

She got to school to phone to say she is ill (tummy pains) we had a very busy weekend travelling & she ate lots of fruit (& drank coke which she doesn't normally do) so I said she should get on with it. School are down playing the bullying.

& do I send it?
Individually
Put them all in the to field
BCC them all

How?

how about

My DD (age) was diagnosed with non-organic sight loss in February 2010; she is seeing a psychologist about once every 10-14 days. I have been told to ignore it and it will go away, in your opinion would this be the correct course of action? In the mean time this is causing her a lot of problems at school as they will not support her in any way and as a very concerned parent I am finding this a difficult approach to accept.

I would greatly value your advice or reassurance that this is what is right for my dd.

I'd send individually, I think you'd be more likely to get a response. Hth

I'd send seperately cause they might see youve sent it to eg 6 other specialists/professionals and think oh we will let so and so deal with that. IYSWIM
Good luck

My Dad says as they have specifically asked me not to look for alternate diagnoses' & treatments I shouldn't send the email

Oh bugger I have major indecisiveness

katy, send it, it's not going to do any harm to your dd and she is the most important person here. Speaking for myself, the sn world has some incredibly dedicated and effective people but there are also a group that are the opposite and make you battle for everything you need for your child and at the same time make you feel like the crappest parent on the earth. You are perfectly entitled to get a second/third/fourth opinion and I would be wary of anyone telling me not to tbh.

Katymac - you can word it so that you are looking for reassurance, rather than saying they don't know what you are talking about, IYSWIM.

And anyway, last time I checked, YOU were her mother, and they are not in a position to make demands of you. They are not allowed to refuse you the right to seek further opinions. You are her legal guardian. You have the responsibility to care for her the best way you can. I would be kicking up a fine stink, I can tell you.

Do send them; I would send them separately. Sorry you're having to go through all this

So:

My DD (nearly 13) was diagnosed with non-organic sight loss in February 2010; she is seeing a psychologist about once every 2 weeks or so. I have been told to ignore it and it will go away, in your opinion would this be the correct course of action?

In the mean time this is causing her a lot of problems at school as they will not support her in any way and as a very concerned parent I am finding this a difficult approach to accept. She is also being teased/bullied about the sight loss.

Is that OK or is it still too interrogatory?

"My DD (nearly 13) had a sudden, unexplained sight loss in x 2010, and was diagnosed with non-organic sight loss in February 2010. She currently sees a psychologist about once every 2 weeks.

I have recently been told that the best course of action is to ignore it, and that it will go away. Obviously, this concerns me, becuase it goes against my instincts as a mother. I understand that you have an interest in non-organic sight loss, and was wondering if you could explain how ignoring the sight loss promotes recovery? I want to take the very best course of action for my daughter, and feel that if I could better understand it, I could better facilitate her recovery.

As all support has been withdrawn at school, in line with medical advice, my daughter is struggling with day to day activities. This is hard to see as her mother. My daughter has also revealed that she is being bullied for her sight loss.

I would be very grateful for any information or advice you could give me, so that I can support my daughter in her recovery.

Katymac.

It kind of questions while going under the radar - you never ever say that you don't agree, or ask if it is the right approach, but still ask "HOW ON EARTH IS THAT GOING TO HELP????"

Why are you better at this than me??

Well actually I know why, it's because I am so close & upset about it all

Thanks

Not better

You are like a sheet being taken through a mangle. You are having all your resolve wrung out of you, because you are being told that only a bad mother persues help for her daughter.

We are just here to rehydrate you and reassure you that there ARE ways to tread the frankly ridiculous line that they are painting, while still getting the help that you need.

Yep mangle is very descriptive
Still haven't decided I can actually end it tho'

I am such an obeyer of 'rules' even ones I don't like

I really like lougle's wording.

One possible minor amendment to the slightly blunt bit about 'how does ignoring it help?' . EG 'I would welcome your guidance about how to effectively implement the 'ignoring' strategy. i would also find it useful to have some more information about how and why it helps her condition, to assist me in putting it into practice properly.'