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First autism meeting today

6 replies

Tiggles · 09/09/2010 21:22

I had the first meeting with the school age autism team today for DS1 (8).
Outcome being that the nurse thinks he has lots of very definite characteristics for AS and she will be going into school to assess him there.
She also was asking about the other DSs and has flagged up that she is also worried about DS2 having lots of warning signs for autism too, so double :( today.

OP posts:
cansu · 10/09/2010 08:08

Really feel for you. I have been through this with my two dc's and remember the whole diagnosis time as being especially hard. Have you noticed the things the nurse has noticed too? The positive aspect of dx (if they are indeed dx as ASD, not all children with some characteristics will be) is that it opens the door to getting support and help. You will have to push for the help as the number of messages on these boards will testify to, but nevertheless it will help your dc's in the long term. Take care of yourself.

Samloumum · 10/09/2010 11:18

It's a horrible time, but it does pass... and you will survive it. Good luck, you are not alone and this is wonderful help and support out there.

Tiggles · 10/09/2010 11:45

Thanks :)
I was reeling yesterday a bit as the assessment lady made it very clear they are JUST an assessment team, once you have a dx you will be on your own, but the NAS website will be very helpful.
Just seems so wrong to have to rely on charities etc for support, not the nhs. And yes I do realise it will be a money thing (sigh).

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mariagoretti · 10/09/2010 13:27

You will NOT be on your own. You personally will have mumsnet sn, nas and hopefully a local support group. Some GPs are very supportive of SN parents.

If need be your child will have an NHS ot and salt. DLA can be used to buy in help too. The school have to provide appropriate support and will probably get the ed psych in too. Yes, if the needs are enough for a statement, actually getting one is often hassle. And parent partnership will help.

IndigoBell · 10/09/2010 14:53

And your child won't be any different after dx than they were pre dx.

Tiggles · 10/09/2010 16:03

Thanks maria :)
Indigo that's what worries me GrinWink!
(Actually, it is DSs AS 'symptoms' that make hhim DS, so I wouldn't have him any other way, but could do with him not throwing himself into walls/cars etc if he gets in a ggrump on the way to school.

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