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respite care

5 replies

devientenigma · 07/09/2010 20:30

my ds had a weekend stay at his usual respite care centre. He has always been challenging at respite though this is nothing new. We couldn't get him from the car to go in and he was extremely distressed.
However the SW today phoned saying well we gave it a try lets call it a day and that was it, no offer for anything else!!
Thanks for the rant x

OP posts:
jardy · 07/09/2010 20:41

Explain why respite is important to you both and talk to the staff about why it went wrong.SN children hate change,it needs to be in tiny baby steps.My ds was like this but we did work hard with the respite centre and our ds.It was fine in the end but does take work and someone on your side.Something needs to be in place instead of.Don`t be disheartend.A lot of good may come from this.

tallwivglasses · 07/09/2010 20:43

Devient Shock That's not good enough!

I remember you're local to me. If your ds can cope with playscheme/support workers, etc and they can cope with him, it should be no different in respite.

Could you get in touch with SN Network, Contact a Family, Pathways? Is there a school parents' support group?
If they're not paying for respite surely that should free up lots of money for something else.

NEVER take 'No' for an answer! (I think that'll be etched on my grave...)

Ooops, a bit ranty there myself, sorry!

saintlydamemrsturnip · 07/09/2010 21:02

Good grief - I have problems getting my son in every time - he's fine once in. Have they heard of transition problems?

How often does he go. I have told SS that one offs are no good - it has to be regular or my son won't be able to cope.

TotalChaos · 07/09/2010 21:05

that's rather unsatisfactory - nice for reducing SS budget but crap for you. hope you can get SS to get a grip - as surely they should have staff qualified to deal with challenging behaviour...

devientenigma · 08/09/2010 15:35

thanks everyone, I have took it all on board and I am not going to let it drop.
Contact a family have worked extremely hard for us, however they pulled out saying to all involved that although they are there for the family they do express what is good practice etc, so felt they weren't getting anywhere.
TWG, do I have you on FB?? if so is pathways...the pathways for all??
Saintly he's been going for 2 nights fortnightly. Though this is the 2nd time he has refused to go.
Jardy how did you go about your tiny steps?? just wondering if this would work for my ds.
TC hope your ok.
Take care everyone x

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