DS is getting a statement!

[starfish71]

Thought I would do a quick update to say that have heard this morning that panel agreed to DS2 (6) needing a statement. Am so relieved and just a bit sad if I am honest. Though I know I would be more sad and upset if he had been refused (sure you know what I mean.

They are recommending an ASD school (choice of 2 in area) but no places at either at present. Been told that while DS is waiting his mainstream school will provide up to 15 hours support?

Been told that should receive proposed statement within 2 weeks. Thank you for your help and support so far, sure I will be asking loads more when the proposed statement comes through the door....

Thats great news. :) I hope your not waiting too long.

My DD (5) has a recent dx ASD but no report yet, they mentioned 'issues' with school but didnt suggest statement. Im freaking out that DD will not progress/be ignored as shes quite happy to play along side/in her own world at school. She talks but doesnt respond in conversation....doesnt understand.....Im probably overreacting as she only started MS school last Thurs!

Starfish

Great news indeed re obtaining a statement.

Parts 2 and 3 of this document are the most important parts. These need to show provision that is both specified and quantified. Do write on these pages when this statement doc is received.

starfish

they can make room know friend had this and ended up sending solictor letter they found room for her dd

woolytree, my DS is similar to your DD by sounds of it, passive, happy to amuse himself, be in his own world and as you say not progress much and have a tendency to be ignored where he is now. Hope you will apply for a statutory assessment. But hope your school is better than mine!

Attilathemeerkat I will definitely come on and ask for advice when the proposed statement comes through.

Roundthebend4 I have already phoned one of the schools and arranged to go and have a look on Thursday(its the one further away but have been told it is the better of the two) so I will ask about spaces if I like the look of it for DS.

This is all new territory so will be asking for advice alot I think. :)

I may apply....still in denial a bit. :( Was waiting fot the next appointment for the detailed dx, so far said not AS due to langage problems so lower down the spectrum. School is good...on the face of things, and has a few SN DCs but in jan will have upto 60 kids in one room...two teachers/registration groups...Im sure she will be lost in the crowd. I had it in my head that she wouldnt get a statement....denial again.....shes not SN enough...denial. Have seen a few threads about statement probs...putting me off. On what grounds are people refused? DD seems good at the moment, tantrums have calmed....maybe Ive just adapted to things, I know shes not NT but Im at a loss how to help her.

Having a similar freak out about applying for DLA....guilt/denial/wont get it!

Oh dear Im ranting/highjacking/being a misery guts.....I shall go put the kettle on...cuppa always makes things a bit better! :)

Hi woolytree,

Not "may" apply, will!!!. Make WILL your mantra!.

Forget the denial and tell it forcefully to sod off (although I do know it is a powerful force) and apply directly to the LEA on your DDs behalf. You need to write to the Chief Education Officer at your LEA and give this bod six weeks to apply. The earlier you do this the better it will be for both of you. You will be kicking yourself otherwise for not acting sooner particularly a year or two down the line.

Educate yourself further re the Statementing process; it is still possible to get one of these documents and a legally binding document like this will help your DD at school. It really will. School will have to follow it and it will show them that her additional support needs are recognised properly by the LEA.

You are your child's best - and only - advocate. No-one else is better placed than you to fight for her right to an equal education amongst her peers.

Look at IPSEA's website re the Statementing process www.ipsea.org.uk. Have a cuppa whilst you are looking at it.

Apply for DLA as well; again stuff the guilt (you have NOTHING to feel guilt for or about honestly) and denial and kick those into touch.

You can always ask on here too!.

Excelent news, well done! The added support at MS school as well is a bonus

Do your shoulders feel slightly lighter now?

Congratulations Starfish

Roundthe bend is right - they are not bound strictly by numbers - they can do and do make room.

Thanks atilla Ill look into it. :)
Sorry starfish for the highjack...hope your visit goes well on thursday, let us know!...Ill be asking you for advice soon

Starlight Did you get my message in your facebook inbox?

(Sorry to hijack)

Starfish how was the school?

Thanks all re SA advice. :)

Hi woolytree, well I was a bundle of nerves going up and in some way hoped it would not be very good as it is around 15 miles away and will involve a taxi journey if DS was to go there but It was lovely!

Really small school, lovely headmisstress, they have such a positive attitude to autism and intergrate as much as child can cope with and they expect every child to succeed academically. Really, really positive.

Will go and see the local ASD unit which is down the road, about 30 minutes walk but have been there before and wasn't totally convinced about it.

Unfortunately DS's school at the moment don't seem keen at all to put any support in place while we wait for the statement to be finalised (hope to get proposed statement next week).

I understand how you feel when you say about being in denial, it is very hard to accept and I think I have been focusing on the Statement process as my way of dealing with the diagnosis. It does feel really good to have got this far even if I would wish that things were different.

I hope you are ok and your DD is doing ok at school this week, and I do hope she has supportive teachers and that you apply for SA - it is the only way our children will get the right support, sorry for rambling and I am still very new to this so forgive me if what I am saying is rubbish! (smile)

Not rubbish at all...Im a fellow rambler!
Glad the school was great, Id like to find those kind of places for my DD but Im sure she wont get a place, as she copes in MS school...so far! I will ask though. Im more concerned about the number of DCs in Jan, will it be too noisey, sensory overload and no extra attention. She was great all week at school but today had an emotional, teary morning. We think because she was tired but she was easily distracted by lunch! :) This afternoon she told the teacher when another DC was upset and then sat next to her....she hates when people cry, even babies. Was made star of the day for her lovely gesture.

Im waiting for next fridays assesment, complete dx hopefully, then formulating my master plan!...MMMWWWHAHHAHAHAHA!