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I threw a tantrum, now having a rant! sorry!!!

5 replies

wotsleep · 06/09/2010 00:20

in car for hour and a half to take ds (asd + sensory) for day out. he was good as gold all the way once car stopped and we got out he went into major meltdown!! screaming at the top of his lungs throwing himself about on the ground, dh and dd were trying to deal with him while I was getting things out of car. when I looked up all I could see was people looking at him, some actually stopped and were standing glaring, dont get me wrong some were smiling. I just blew!! dh asked what was wrong , I yelled in response ds putting on a performance so everyone can have a free show watching the autistic child!! I know was childish of me but I get so frustrated at times when people gorp at him! Not as bad as a few weeks ago when some silly cow actually said to her son who looked a few years older than ds (who is 3) look at the naughty boy!! I could of ripped her head off but I just looked at her and said he cant help the way he acts, but you can help being a biggot!! dont you think it would be more productive for you to teach your NORMAL child that some children are different and find it hard to cope! maybe it's asking to much of people not to stare instead be aware!! I wish the bloody government would put some of the funds they waste into a campaign to highlight the difficulties of children with disabilities ( the obvious ones and the invisible) oh and whilst they are at it get extra training for hv's who dont seem to be able to spot the early signs of asd ( in my personal experience anyway) SORRY rant over just get so aaaaaaaaaaaaahhhhhhhhhh with people!!!

OP posts:
tallwivglasses · 06/09/2010 01:33

Wooh! I hope by now you've taken a deep breath and had a nice cup of tea! Poor you x

The whole getting out of the car thing - I sympathise. Ds loves car journeys and needs warnings (nearly there, get out soon, etc) but he still clings like a limpet onto seatbelts, wriggles onto the floor, etc., just not quite as much. Taxi drivers love us.

I'm old with poor eyesight, wotsleep, but the gist of what I'm getting is your annoyance at peoples's reactions. I know it's shit.

There's loads of good threads on here about dealing with the fuckwits out there. I've found that cultivating a serene smile that can transform into a 'YES?...WHAT?' expression has improved our lives considerably.

StarlightMcKenzie · 06/09/2010 09:36

This reply has been deleted

Message withdrawn

wotsleep · 07/09/2010 22:49

yes, thanks for responses. I think my reaction was mainly due to being in limbo until ds was diagnosed back in april.
I'm learning to deal with public outbursts but what these people who glare dont see is the 24/7 intervention we are doing with ds to help him.
I'm actually jumping with joy and not fury today after getting my notes together for next appointment and could actually see the drastic changes we have acheived in last months.
thanks for understanding.

OP posts:
tallwivglasses · 07/09/2010 23:04

Ha ha, Starlight - I've taken a bow before, but never thought of passing a hat round. Damn!

Wotsleep, I'm glad your jumps are joyful today Smile

kidsncatsnwine · 07/09/2010 23:51

Where I work (special school) the staff that work with children who have severe ASD carry cards which can be handed out to anyone who witnesses an incident inpublic.

My guys are big severely autistic teens and we have had the odd incident where someone gets hurt in public or the young person behaves in a VERY dangerous manner and has to be safely handled. The cards..business card size, simply states that the young person attends X school, is autistic and that staff are fully trained and carrying out prescribed management procedures (and to contact the phone number if they need more info)

Quite a few parents have adopted this for themselves..an explanation card that they can hand to nosey onlookers. I used to use them myself for my own son.

Of course I was always tempted to have my cards say 'he's disabled, get over it!' but I figured that education people gently was probably a better way forward:):)

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