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Here are some suggested organisations that offer expert advice on special needs.

So,had Ados test.....

11 replies

fightingthela · 03/09/2010 16:26

today and been advised that ds definitely does not have any ASD. May have sensory issues which are causing various difficulties so will need sensory assessment at some point. SA has just begun so not sure what difference,if any, this will make. Am obviously relieved in a way but still not sure what his problems are.

OP posts:
Lougle · 03/09/2010 16:47

Glad one test is out of the way. I hope you get some answers soon.

justaboutawinegumoholic · 03/09/2010 17:34

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fightingthela · 03/09/2010 18:09

They didn't mention SPD as such just that a lot of his problems could be caused by sensory issues. His speech is very advanced, he has a brilliant sense of humour but gets upset easily and angry with other children. He has lots of Asperger traits and EP said she thought he had high-functioning autism as did Senco.Salt & OT did the Ados test and we spoke to paed and they say they are absolutely certain he has no ASD. Behaviour Support I guess will need to do more work in school to try to support him but I don't know what the solution will be.

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justaboutawinegumoholic · 03/09/2010 19:35

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sugarcandymonster · 03/09/2010 19:44

Must be very confusing for you. Are you happy to accept the results of the test or do you think an AS dx would have been appropriate? Is there another dx which you've read about that you think would fit?

I think it's often the case that it's the parent who ends up researching on the various dx's and ends up convincing the appropriate professional that it's the right one - you know your child best after all.

Have you been to BIBIC or another specialist service for sensory needs?

fightingthela · 03/09/2010 20:25

Sugar, have not been to Bibic or another service yet. Will wait for their confirmation letter,test results and consider what to do next. Told that the test is very accurate and he wasn't even borderline. He has some literal understanding though so can't see how that can be down to sensory problems.

OP posts:
Claw3 · 03/09/2010 21:09

Hi Fighting, does the SALT/OT who assessed your ds specialise in ASD?

Claw3 · 03/09/2010 21:23

Also do you feel your ds was his 'typical' self during the testing?

My ds was his 'typical' self and dispalyed his usual behaviour while he was tested and observed. But i have heard others says that their child didnt behave anything like their usual self.

fightingthela · 03/09/2010 21:40

Hi Claw, they do all the Ados testing so presumably specialise in Autism and know what to look for. Ds did appear to be his typical self - charming,chatty and amusing. They said he was a lovely boy with a great sense of humour which is what most adults say about him. His difficulty is in relating to his peers. He also likes routine and eats his food in a particular order but they explained that it could all be down to sensory causes. In other ways he is a lot like other dc's discussed on this board with AS/ASD dx's so I think he's a bit complex. Hopefully SA will mean more support (long shot I know). School have already said they will have an area he can go to when he needs to calm down so hopefully this will help too.

OP posts:
sugarcandymonster · 03/09/2010 22:47

I found Bibic useful for sensory issues, they take a very holistic approach I thought. They don't dx but can give you a short therapy programme to carry out at home, plus recommendations to support them at school (although your school may ignore them, ). It's £50 for two days assessment, I think (plus travel/accomm in Somerset).

Claw3 · 04/09/2010 11:16

Fighting, i would second Bibic we went there in December and they provided a sensory diet for ds and the sensory swimming pool is great. The provided a good report too. Sugar is right its £50 and was well worth it. Although ds's school ignored all recommendations. They also do an ASD scale (not a dx, but a indicator as to whether they are on the scale)

you might find this helpful, i did

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