Calling all Gluten/Dairy free experts

[mumgoingcrazy]

DD2 is 3.2yrs, BIBIC asked us to make her dairy free 3 months ago. We did it for 10 weeks and it made no difference at all.

5 weeks ago she went gluten free and she has made some lovely progress. Unfortunately she also started therapetic Listening (for the 3rd time) at the same time as going GF so we're not entirely sure it's down to being gluten free but she has made changes in areas that hasn't affected her before with the Therapeutic listening, so I think being GF has played a part.

I know many on here do both DF and GF, BIBIC say I should now do both together which I will if it'll help but I tried dairy free and it did nothing, so will it make any difference now?

I find being one or the other ok, but doing both is a pain (not quite in the swing of it yet).

Also, my last question, what is the difference between being dairy free and casein free?

Thanks in advance

bump

We do gluten free and dairy lite and afaik it's mostly gluten that leads to dairy intolerance (my ds is a teen tho, so a bit easier now).

I will be back later, I promise. Just cooking dinner now so can't respond just now. Didn't want you to think you wouldn't get a response from anyone.

Nightcat, what do you mean dairy lite? reduced dairy intake?

As far as I know, DD2 isn't allergic or intolerant but BIBIC wanted me to try it to se if she became a bit more 'aware' and 'with us'. She has made good progress though, but that was when she was gluten free, not dairy free.

Hello! DS 2 is dairy free, he has previously been gluten free but not both together. He is NT but has had an intolerance for a long time and there have been major steps forward in his social skills, which were a bit lacking before hand, since going DF.

I have this book (I think, the front cover is different but the content seems the same) that has lots of recipes and really helped me get my head around it. I still use a lot of them but as I've got more used it I've adapted my own. I also found that a breadmaker really helps. I can guarantee DF free bread and it was the only edible bread I could find when we were GF.

Hello, BIBIC wanted DD2 to go DF to improve her social skills but being gluten free has definately made the difference. This is why I'm reluctant to make her dairy free when it didn't do any good when she did the 10 week trial.

I agree about the bread, the best one is 'genius' I think but even this one is pretty foul. I'll brush the dust off our breadmaker and give it a whirl.

Thanks for the book advice.

xx

My son is GF and dairy lite too (Goats milk-much less casein than cows milk).

So rather than make DD2 dairy free, would the dairy lite have the same effect?

What do you do about milk being in biscuits/cake etc do you get full dairy free ones?

I think every kid is different and its a personal choice re how you approach this. I wasn't brave enough to eliminate dairy from my sons diet totally as he was only 3 when he started it. Without the gluten, he became a different child. He stopped repetitive behaviours and seemed much calmer overall. We have now limited his milk intake(he was craving masses of goats milk)and he gets normal yogurt and butter but no cheese. I would try and talk to a dietician before you implement any drastic diets.We spoke to a dietician at the NHS who told us everything was ok. As long as plenty fruit, veg and fish it should be ok. Hope this helps-sorry its a bit rambling! PS It takes 6 months for gluten to leave the system totally but we saw a noticeable difference in behaviour within a week

Thanks, I might do the same as you and do goats with a bit of yoghurt. DD2 loves cheese unfortunately and the dairy free stuff in Holland and Barratt is horrible. Cheese may be a problem. Is goats cheese pasturised?

DD2 has been gluten free for 5 weeks and everyone has seen changes in her, she's much more aware of her surroundings and her language is coming on. I had no idea gluten took 6 months to get out of the system.

I havn't spoken to an NHS dietician, it's the dietician at BIBIC that has been taking me through this.

I'll speak to her tomorrow, but I think I'll do the dairy lite rather than DF, DD2 also just 3 so very young to be taking big food groups out of her diet I think.

Hi we tried gluten free for a while but at the same time as treating the anaemia so not sure what made him more related and switched on. I didn't do diary free as i couldn't face so many dietary changes.

Hospital now want to test for coeliac disease so I have had to put him back on(they have to have gluten for at least six weeks before test). I didn't notice any difference initially but know i wonder whether he is drifting off again.

Tis tricky because he is also poorly at the moment. the problem is the children don't cooperate with pure scientific testing!!

My ds is dairy, gluten, tomato, soya and nut free. He was just dairy, tomato and nut free but when we removed the gluten and soya (for other reasons) his behaviour improved so much you have no idea. He's intolerant to all though but certainly I would say the gluten was affecting his behaviour.

We found it very hard right at the beginning but I've got it sorted now (been doing it all for 6 months now). I would say start slowly, maybe tackle breakfast 1st. Then when you've got that sorted move onto lunch and then move onto dinner. That way you'll get it into your routine and break yourself in easily. You'll understand it all better as well I suspect.

Plus also I found that when I changed it all at once ds went on hunger strike because all the food wasn't "right". This was less change for him because it was so slow.

What you need the most is support from a dietician as its so difficult to make sure you get his meals well balanced as well.

Thank you both. What a pain to have to go back onto gluten for weeks for this test, coeliac or not he's off gluten anyway.

Thanks Rebl, luckily DD2 eats anything and lots of it, so she did the 10 weeks dairy free no problem without even noticing. We've done 5 weeks of gluten free and again she's hasn't batted an eyelid. She's a bit of a dustbin really

Can I ask 'why tomato'? That is one of DD2's favourite foods and she eats loads of them in every form.