Urge incontinence, has anybody had successful treatment

[VoldemortsNipple]

DD has always had urge incontinence. When she was little we were under the hospital and tried medication to no avail, feckin star charts to no avail and wait and she will grow out of it. She is now 14 and still suffering.

She did have some tests when she was 6, which one consultant said she had a small bladder and that the lining of the urethra was very thin. But then he left for a different trust and the new consultant didnt agree.

We have just been refared back (October appointment) and was wondering if anybody knows of any treatments for this so we can request something. At least they wont expect her to do star charts anymore, and surely now they wont be saying she will grow out of it.

Ok. Luckily I know absolutely nothing about incontinence. But - I know some people have had success with retained reflex theray for inconctinence.

See this thread

I'm a huge fan of retained reflex therapy - but am using it to help my boy with ASD not incontinence.

Anyway, it's a total long shot. But I thought you might be interested in some odd-ball advice :)

Well I have had urge incontinence (all my life actually from childhood on). I saw an absolutely goddess-like specialist physiotherapist who said my pelvic floor muscles were particularly weak and helped me to really build them up. For the first time I was able to hold on and not feel anxious about having an accident. Could your DD do a similar programme? It really did work for me and was the only thing that did.

Thanks indigoBell Ive had a quick look at that thread, I dont know whether it would help DD but will have a better read up into reflex therapy, it might be something that could help DS who has processing disorders.

niminypiminy That may be something to push for. The nurse specialist who we used to see used to ask DD to try and stop weeing mid flow and count for as many seconds as she could. She wasnt much good at it and would only try if I was in the bathroom with her and reminded her to do have a go.

When I spoke to DD about getting refared back to the hospital she seemed keen, but when it was time to go to the doctors she dug her heels in and made a fuss. I know this is mainly because she feels embarrassed, but she really does need some help. Her personal hygiene is much to be desired and we are constantly having to tell her to get washed because she smells. ( She would happily sit in smelly clothes)

I did see a girl on Embarrassing Illnesses get treated for urge incontinence with botox injections which had great results, but I dont know if it is something widely availible on the NHS or whether it would be benefical to DD but I am going to mention it anyway.

Now that she is older she would be able to follow pelvic floor execises although Im not convinced that she would do them regular.

The thing that the goddess-like physio used was a probe-thing (it belonged to me nobody elsed used it) which went in my vagina and was connected to a laptop, so when I used my pelvic floor muscles I could see patterns. It sounds really weird (and I was really glad it was just me and her in the room) but the thing was seeing the muscles working visually helped me to feel when they were working. It might really help your DD because it was actually very rewarding seeing the patterns getting better and better. Much better than trying to stop in the middle of a wee (which I'm useless at too, and she advised me never to do). Where are you? If you are near here (Cambs) I could find out her name and you could try referral to her?

We are in Liverpool. We are lucky as we have Alder Hey Childrens Hospital on our doorstep. Sounds good though, treatment through technology, now thats something she can relate to.

Now if you could just squeeze your pelvic floors to navgate around Facebook we would be on to a great winner.