Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Gahhh

6 replies

TheArsenicCupCake · 27/08/2010 11:18

arghh ive just looked at the calander for the first two weeks of September, so that I could fit in a family commitment whilst tAlking to my mum

When ds2 get back from being at his dads we have no time to prepare him for the onslaught..
He is starting secondary school, we are meeting old friends who we haven't seen for a year two days later, the flowing week after school we have an orthodotic appointment, a behavioural therapy appointment, family commitment the day after, an evening free and then he is at his dads the following night for the weekend.

I can't get out of any of it... < blubber>

can I just sit and rock in the corner at the thought of what is to come?

OP posts:
glittery · 27/08/2010 12:06

Oh i know how you feel, a while back i started keeping a calendar next to the phone with ds's appointments/school stuff/deliveries/meetings etc....basically anything ds related that i need to be involved in/stay in for/go along to.
looking back over the months its quite scary!

In February i had 16 different ds related entries, June was the least at 6 but only because we were away on holiday that month!
over the last 10 months it averages out about 11 ds "things" a month!!

i only have one appointment so far for september but august was like that then ended up with 12!!!

TheArsenicCupCake · 27/08/2010 13:45

It is an utter nightmare ( yes I was the one who has pushed for appointments but even so!)

my main issue is the time that I need to prepare ds2 for these things. Cripes it normally takes me a week in little bits to let him get used to changes in routine when his routine isn't already out of whack.

Put on top of that .. It takes at least a week to recover from bring at his dads ( where there is no preperation or routine) from an extended time I.e summer holidays.

Then we are already a bit wobbly about starting big school..lots of people, new people, new routines, longer day, time tables and a huge building.

Barring sensory things rountine and preparation is key to keep his behaviour on an even keel.

I want to cry really... Mind he may come home and be a changed boy!

OP posts:
glittery · 27/08/2010 14:05

ah ds's problems are all physical and ds's dad never takes him so thats one issue i dont have thankfully...he'd probably just forget to give him his drugs or feed him if he did!
ds is only in primary 2 but they have just merged with another school into another building which is so damp and delapidated its causing havoc with his chronic lng disease but thats another story....

TheArsenicCupCake · 27/08/2010 14:17

Glittery .. When I win the lottery I will make sure all of our dc's have what they actually need.. And we will all enjoy a glass of something nice in the sun together.

We only have very minor physical issues.. I do count us as very lucky.. ( particularly as I grew up as a sibling in a house with big complex phyiscal disability).

It just that I am so tired, always playing the game four moves ahead.. Even when ds2 is away, I'm still sorting his things out for him.. but I guess I wouldn't actually have it any other way...

Got to fit in something nice for ds1 as well.. When they go to their dads, ds1 ends up as main carer for ds2. He'll be tired and careworn when he gets back.
( wish I could change things for them both).

OP posts:
glittery · 27/08/2010 14:30

ahh yes many times i have dreamed what i'd do with a big Euromillions win!
i'd build ds a new school (only around 8 million apparently!) and get everyone i know the equipment their kiddies need oh and some respite! maybe tonights the night!! Grin

pokhara · 27/08/2010 18:12

sorry, its mine tonight, but i might share. im having respite this weekend ds's dad taken his to caravn til mon, im going up tommorow to stay for 1 night then back sun for another 2 days of peace and quite.

New posts on this thread. Refresh page