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Here are some suggested organisations that offer expert advice on special needs.

PROMPT SALT

37 replies

saintlydamemrsturnip · 26/08/2010 08:33

Has anyone tried this? Usually when I come across something new I look at ds1 and think 'yeah right' but I found a video on YouTube of a 12 year old boy with autism doing this (and other things as well, I spotted some Kaufman cards). He started with 3 sounds and a year later had a number of words. , . I was really impressed and quite moved.

It looks as if his early speech was as disordered as ds1's and I'm really thinking about giving it a go with ds1 (if I can find a SALT, no-one very local, I have a UK list from the PROMPT institute). Just wondered if anyone had done it. DS1 tries very hard to speak- he is very vocal. He just can't. Now he can imitate he will try to copy sounds but again can't. (For example he's been trying very hard to say 'shut' this morning but it comes out as a fired 'ta').

PROMPT Institute website here

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moondog · 27/08/2010 22:42

Nowt wrong with thinking like a Tory. Wink

I know this isn't a discussion about SALT provision per se but fact is that so much of one's time taken up wading throguh paperwork, admin, ludicrous hoop jumping and proving that one is number crunching that the time spent actually doing anything useful (ie direct therapy) just gets less and less.

I truly believe there are many people in the NHS (and other public sector jobs) whose actual hands on doing-what-it-says-on-the-tin type work is non existent.

I'm completely fed up with it myself and sorely tempted to go private route.
Every bloody day is like wading thigh high through tepid porridge.

saintlydamemrsturnip · 28/08/2010 00:04

Lol - every year I give a talk to 2nd year SALT students (it's how I recruit my helpers - chuck my email adress up at the end - have some brilliant ones this year) and have tried to warn them of that.

One SALT student (she didn't go to my talk so nothing to do with me) left the course because she said she signed up to work with families then found out that wasn't going to happen. She trained as a counsellor instead.

The big problem I see with NHS SALT is that everyone is meant to be in a consultant type role, but none have enough hands on experience to be any use at all.

Lol- I knew you'd say that about Tories. Our best man was a Tory so we have lots of chats about toryism :) it wound work for salt thoughi think because the difference between a SALT with lots of hands on experience and your average nhs consultant is so stark.

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moondog · 28/08/2010 09:07

I think a regular slot of listening to a talk from a parent would be a very good thing for practicing SALTs too.

I don't thin k a consultant role would be a bad thing if SALTs were able to train people in simple experimental design and data collection, meaning that consultative visits would be used to scrutinise this and tweak as appropriate. This is the most single useful thing I have learnt from ABA and moreover, the overwhelming majority of staff nad parents respond very positively as data collection is fun, interesting and gives thier efforts both direction and gravitas.

However, most SALTs don;t know how to do this so continue to give largely meaningless vague advice which can never be quantified, leaving both parties feeling dissatisfied. In the main, they know what needs to be worked on but are not so sure of the how to go about it and measure progress, which is madness as without that, what is the point?

Meanwhile expensive 1:1 hourly clinic visits for children with superficial language and speech difficulties continue-most of them being the middle class worried well.

How in God's name this stil lcontinues is beyond me. Costs a fortune and utterly unjustifiable in all but the most severe cases which require assessment (and even then, if severe, the SALT needs to be getting out and engaging with the people who deal with that child on a day to day basis, not sitting in a clinic.)

saintlydamemrsturnip · 28/08/2010 09:50

And the more severe the less likely a SALT is to engage at all with your child...... Locally if you can't be fixed in 6 weeks you won't get any hands on SALT.

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moondog · 28/08/2010 10:10

A manifest example of Parkinson's Laws in action, particularly the third one.

herjazz · 28/08/2010 10:40

Ooh thanks mrst for posting this. Was really keen to find out more about this a while back. Have heard some great things about it from this mostly American support group for cri du chat I'm part of

Intend to have a nice cuppa and proper read of thread and links when I've got a minute. On my own with the kids at mo

saintlydamemrsturnip · 29/08/2010 15:44

How strange.

I went to pick ds1 up from respite today and without mentioning anything the manager said that she thought ds1 really need someone to help him with his speech. She said they had very few children like ds1 who have "so much to say" but no means to communicate at the level his brain is working. Or something like that, but basically it confirmed my opinion that ds1 tries very hard to communicate but doesn't have the tools to do it. It was good to have someone from outside the family (my mum always says it but she definitely has rose coloured specs on when it comes to ds1 who can do no wrong in her eyes) say it umprompted.

She is going to talk to a SALT she knows who she thinks might be able to help (she has been working at respite and has met ds1).

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justaboutawinegumoholic · 29/08/2010 16:30

This reply has been deleted

Message withdrawn at poster's request.

roundthebend4 · 29/08/2010 17:56

Hope they can help found with ds he was always classed as to severe to get any worthwell help

but he now after lots of fighting go to speech unit to see if they can help

saintlydamemrsturnip · 29/08/2010 18:20

Oh I think we'll have to pay her roundthebend - I will ask school and the school SALT as well.

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roundthebend4 · 29/08/2010 20:15

saintly i to looked for private salt but at my previous house was not one within 50 miles who was experianced with working with dc like ds

Im hoping unit can help if they cant will have to revise what to do next

saintlydamemrsturnip · 29/08/2010 20:35

I have the same problem - I think this SALT is newly qualified- am hoping she is willing to give it a go.

Otherwise we may have to make the 300 mile journey to Sharnay Mail (who seem very experienced) but I can't see how that would be workable!

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