Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Can I just scream?

11 replies

asdx2 · 22/08/2010 11:25

Ds15 doesn't sleep, has never slept and is currently driving me potty.
A couple of weeks ago removed the chest of drawers and the bed base because he kept jumping off them during the night and put beading on the door frame to stop him swinging on it.
He still has all his entertainment in there though so he could if he chose watch dvd's play computer games or anything else he enjoys doing.
So why does he now choose to kick the walls instead?
I am getting so fed up of going to bed grabbing a couple of hours sleep whilst dh has ds and then being woke up the minute ds has no one "available"
I try and ignore him thinking it's for attention but I don't get any sleep. I go in repeatedly and I don't get any sleep.
I'm not even sure he knows he is doing it tbh because when I tell him to stop he stares at me blankly and has sometimes started again before I am back in bed.
It's probably worse now because I can't sleep during the day but I feel like I am going mad because I am so tired.
Any suggestions?

OP posts:
sarah293 · 22/08/2010 11:32

This reply has been deleted

Message withdrawn

asdx2 · 22/08/2010 11:40

Tried medication when he younger melatonin didn't touch him, Vallerghan and another sedating one sent him hyperactive and so was bouncing off the walls for three days.
Nowadays I would have a huge battle to get him to take anything and can't bear the thought of a grown man sized child being manic for three days if it didn't work.
Oh well two more weeks and then at least I can nap during the day. I suppose it's got an end in sight anyway.

OP posts:
daisy5678 · 22/08/2010 11:41

What about a safespace? I'm guessing the issues are a) the noise and b) his safety www.safespaces.co.uk/

sarah293 · 22/08/2010 11:42

This reply has been deleted

Message withdrawn

asdx2 · 22/08/2010 11:51

Will get onto paed again and tell him it can't carry on as it is and see if he has any thoughts. Trouble is he has an iron will, the ability to vomit up anything he doesn't want in him and the strength of a couple of oxen.So everything is down to negotiation and he negotiates like a fascist dictator Grin

OP posts:
daisy5678 · 22/08/2010 12:07

What about a safespace? I'm guessing the issues are a) the noise and b) his safety www.safespaces.co.uk/

asdx2 · 22/08/2010 12:11

I know I'll need to talk to OT about those. Are they totally indestructible do you know? Feel pretty sure ds would go beserk if shut in and if he couldn't destroy it he'd self harm badly. I think that is my reluctance tbh.

OP posts:
cansu · 22/08/2010 12:34

Lack of sleep is just about unbearable on top of everything else. My ds was very destructive, aggressive and slept v poorly. As well as Melatonin, and occasionally vallergan - he is now on Risperidone. This has made massive difference to both his behaviour and sleep. Not sure if this is any use to you. Risperidone pretty difficult to get- was prescribed by psychiatrist for my ds as there were concerns about possible bi polar disorder as well as his ASD

saintlydamemrsturnip · 22/08/2010 13:27

I was going to suggest a safespace as well. They're meant to be calming. DFG's can pay for them (might be a battle but they can).

colditz · 22/08/2010 13:29

Hmmmm if he's jumpting and kicking, could you find something quiet and safe fopr him to jump and kick? Maybe sticking mattresses to the walls?

saintlydamemrsturnip · 22/08/2010 13:30

The OT's suggest padding on our walls at one stage, so that could be an answer.

New posts on this thread. Refresh page