Hi everyone....I haven't posted on this thread since the beginning, but have been following it (3 DC with BJHMS, 2 also have speech delay)
I found out recently that DS has been diagnosed with Developmental Co-ordination Disorder. But NO-ONE told me. It was diagnosed in 2008, so since then he has been since by 2 physios plus a trainee physio, 3 paeds, 2 OTs, 2 SALT and a specialist SALT, SS, GP, A&E, OOH GP, Opthomologist, Orthopaedic chap, numerous hydrotherapists, pain clinic, and someone else whose title I can't remember. And none of them thought to tell me. I am absolutely furious. It has been like a kick in the teeth to find he has another problem. I feel like you SparkleRainbow, he is my precious baby, and I feel they were being inconsiderate by not letting me know. I'm also wondering if there are any more little gems they doctors have kept to themselves.
And, today we got out some old video footage of when the kids were little to show them. (DD1 and DS have the hypermobility the worst) DD2 is sitting up unsupported on Christmas morning, pulling open presents, holding toys, putting them in her mouth, pulling to stand, etc, all the usual baby things all aged 6 months.
DD1 at 6 months is not quite so developed, but still sitting with minimum support, waving her arms, kicking her legs, holding toys, turning her head to look round, etc.
DS at the same age is lying in a reclining chair as he couldn't sit upright even if supported, hardly moving his arms and legs and when he does it is in very jerky movements. He cannot support his own head, can't turn to look at sounds, is having trouble grasping rattles I am trying to give him, and he can't get them any where near his mouth. In the next clip I am feeding him. He is having youghurt and fruit puree, he is having trouble keeping it in his mouth, let alone swallowing any. Then in the next clip he is lying on the changing mat, not really moving, just a few jerky arm movements. 
He was also born at 36 weeks, so technically premature and I think it shows, and had jaundice but had no extra treatment or checks which I found surprising.
I got very upset seeing the difference between the children, DS is the youngest and the worst affected, and I knew something was not quite right. But what is really upsetting me is the fact that I took him to HV, GP, paed, etc. asking for help, telling them there was something wrong, but I just got told I was being neurotic. The bastards professionals must have noticed he was so behind in his development. He missed every single milestone . And, of course he had no treatment until he was four. I wonder if he would be further along now if he had of received physio/hydro/something earlier on.
DS is nearly seven now, and still has trouble sitting up, he needs cushions to prop him up, and even then he just falls off chairs and slithers of the settee. Stools are a big no-no. The children have all started guitar lessons recently, and DS is really struggling with keeping himself on the chair and concentrating on the guitar. I am going to ask his OT if there is anything she can suggest, maybe another chair I can buy him or something. Have you ladies got any ideas maybe? He has a Tripp Trapp type chair I bought him, so his feet are supported, and some non-slip mat on his lap to keep the guitar up, but, I am not sure what else I can do.
Sorry for such a long, depressing post, just needed to get all that out!