OMG its just hit me

[alfiemama]

I haven't been on here for ages but finally after nearly 2 years I have just been given a full and final diagnosis for Alfie. He has autistic spectrum disorder.

Ive always known, but to be sat in the room and hear the verdict, well its just really hit me, doesn't help I am 7 months pregnant and hormonal.

I am a little worried though now as she wants him tested for fragile x, she doesn't think he has the full blown but could be somewhere in the middle.

Do they test routinely for fragile x? What are your thoughts on this.

Sorry for waffling think I'm still in shock.

Oh Alfie I am so sorry LOL

AM Peachy!

(Oh ds1 is 10, as; ds3, 7, asd; ds4 2.3 years but still BF becuase anything that might just help with ASD, you know?)

Oh and by the way the Frag X test is routinely done here in Suffolk. We're awaiting results too.

Not sure what good it will do. I'm not having anymore kids!! I'm not convinced my ds will ever reproduce either.

Peachy lol, how the devil are you?
Totally agree with the breastfeeding.

Breastfeeidng, GC / CF, single emasles......

hard work but tbh something is working, he's sociable and very verbal amd we just have to get to three witbout a ds3 style regression now....

We're fine btw

psych has admitted ds1 has bullemia so another eeek, but OTOH ds3 has settled in amazingly at his SNU and we are trying to get ds1 a palcement at a specilaist AS comp provision. His statement has just increased to ahlf time so optimistic.

Great news about the baby.

Well thats good news, you can but try.
No wonder you wish they would test for frag X.

Can I ask of topic, what was ds3's regression like, ds2 is 3.5 nearly 4?

How will they help with the Bullemia? Alfie has eating probs so always worry about this, at least they can help him now, must be a major worry, food is a big issue.
Glad ds3 has settled into the snu aswell. Sounds like things are finally getting sorted.

Only took 2 months to get bfp, so bit of a shocker and guess what, were having a girl, after 2 boys lol. Wasnt bothered either way, would quite like another boy aswell, mental I know.

It was so sudden we almost missed it

One week he ws sat in the kktchen excited that there was a rabbit (school, on loan, think we may have killed it ) here, and then the language just went

Gradually, with no fanfare, and then one day I found myself at bursery saying he's still in nappies and that's probably becuase he's a late summer baby only to be called in and gently told that we needed to see someone with him.

You'd think with ds1 we'd have relaised but i actively recall standing by his highchair with DH and smiling that he seemed to be NT.

It also happened as ds1 was diagnosed so our heads were elsewhere for sure.

And now we're watching ds4 very closely becuase we've been told ds2 is dyspraxic, albeit mildly. he's poretty clearly mild adhd as well but we haven't bothered to see anyone.

And am a year into an MA in ASD, becuase I have learned you have to do it yourself.

OOh a girl- what's one of those?

With the bullemia ds1 has a psych assigned and she seems good and is focussing firstly on drinks refuysal

But alst week she told me off for ebing too responsible and taking too much on board and told me that yes, ds1 may end up with severe bullemia and yes, he might well end up in priosn but I have to satrt looking after myself and being a 99% parents and getting by, rather than a 110% one and collapsing.

She's very wise indeed.

I agree with your Physc, we see one for Alfie and she has helped loads, worth their weight in gold. She said when will we accept that all he will eat is a certain type of chicken bites lol.

Will be watching ds2 and dd3 very very closely. It must have been one hell of a time for you.

Thanks for your help Peachy

MrsT ahd good rsults with deprogramming really strict dietary exclusions IIRC (another namechanger you'd know but can't out her LOL)

Was a hell of a time, Dh lost t for a hwhile and got really ill but he was amde redundant lst year which yes was awful but ahs meant he could change his lifestyle from nights and now he's a student and self employed and is so very much happier and healthier.

hmmm youve got me intrigued now. I hope she comes along soon, as would love to know about deprogramming, as food is a massive issue for us, as I know you will understand.

Sorry about dh, but sounds like he is a lot happier now. Men seem to really struggle with it all, oh at least my man lol.

Ooh congrats on doing the MA aswell.

Look out for MrsTurnip (or permutations thereof)

Ah thanks, think I know who it is

Glad to see you back and congrats on your pg!!

Or at least I thought I did.
Is it like a very old childrens prog?

alfie - I remember some of MrsT's posts about it - think it was something the school started off - idea was you would get something like crisps, that her DS would eat, then put a tiny smidgen of baked bean sauce on - and then if he ate that, work his way up gradually to eating baked beans in general.

silverfrog has also posted about it - I know one of the techniques involves getting kids to look at/touch/have on plate food they won't eat so at least they get used to it as food iyswim, to work up to seeing if they will try it.

I am the proud owner of a fussy eater, so I do sympathise and take an interest. if you haven't already read it, there's a good book called Can't Eat, Won't Eat. No magic solutions, but lot's of ideas and sympathy from a parent that's had to cope with it.

Thanks Tc, I remember we had similar issues with food, tis very hard lol.
Paed said today, to try and put one different flavor crisp in bag he will eat but to take it that slowly. We have been going too fast to be honest and we just wont accept that all he will eat is chicken dippers, we try and push the boundaries but maybe too far for him, saying that I did get him to kiss a raspberry last week, he didn't like it but also didn't gag for the first time.

I have that book but defo need to read it again.

Paed did say today finally, that the eating phobia is asd linked for Alfie.

How is your little fussy eater doing?

Thanks Tc, I remember we had similar issues with food, tis very hard lol.
Paed said today, to try and put one different flavor crisp in bag he will eat but to take it that slowly. We have been going too fast to be honest and we just wont accept that all he will eat is chicken dippers, we try and push the boundaries but maybe too far for him, saying that I did get him to kiss a raspberry last week, he didn't like it but also didn't gag for the first time.

I have that book but defo need to read it again.

Paed did say today finally, that the eating phobia is asd linked for Alfie.

How is your little fussy eater doing?

oops

no, no clomid here

Ah I see, its just you said you dealt with it the same way, sorry I'm not firing on all cyclinders today.