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SN children

Here are some suggested organisations that offer expert advice on special needs.

Some positive and encouraging stories needed, please

28 replies

Lougle · 04/08/2010 19:17

The DLA form has got me dwelling on DD1.

She has poor fine motor skills. Her fingers curl slightly. Grip strength low, can't draw beyond a scribble, (approximate) circle and (approximate) cross (she is 4.7). Hands/arms tremor slightly, but I don't know if it is the epilepsy (Paed thinks so because he only noticed it in January), or if it is a motor issue (I kinda think it was always there).

Anyhoo...

I got to thinking today, about school, writing and so on. I think she is a long way off writing. I wonder if she will write at all, but could be being very pessimistic.

Then I thought 'I suppose she could use a laptop.' But right now, she doesn't have enough fine motor control to use a laptop track pad. She can't even make a 'click' by tapping the pad. Her hands are too weak and she doesn't have a definite enough 'prod' or enough control to keep her finger in one spot. A mouse is impossible because her hands shake, so the cursor zooms across the screen when she tries to move it at all.

I know she is still young, so perhaps I am expecting too much (I just see posts on MN about their 3 year olds loving to use the computer, and friends who have DCs allow them 'computer time')

SO, who would like to make an orderly queue to tell me that their child was the same at this age, and is now writing prose and using a laptop with ease??

OP posts:
Lougle · 05/08/2010 20:03

Thanks everyone - interesting times for us all, hey?

Ineed2, that is a very kind offer. I will hold off at the moment though, thank you, as I want to see what school's approach will be so that I can be consistent with them.

OP posts:
Ineed2 · 05/08/2010 22:05

No problem, that is probably a good idea, it would be daft for her to have to learn 2 different things. It's not going anywhere at the moment although I might get round to boxing it up at somepoint.
If you change your mind in the next couple of months just put a post on sn,I think I could be around for sometime.

NickOfTime · 05/08/2010 22:51

dd2 started by using a v-tech smile with a joystick and the three buttons? (she used to press them with her whole hand rather than fingers). she was pretty rubbsih to start with tbh, but we persevered (the physio/ ot at the time were wondering whether she would be able to control a powered wheelchair as the pattern of her muscle control meant that to self-propel she had to put her head down...)

anyway, she did get the hang of the v-tech eventually (but the first six months was mostly us sitting next to her helping) and then we bought an sn keyboard (the ones with the much bigger colour co-ordinated keys?) that we just plugged into the normal pc.

she's always had 'likely to require a laptop' in her statement. clever ot

she is now attending upper and lower case workshops with the ot - she'll still be a laptop user long term, but we're all keen for her to maximise pencil use as far as possible.

(she has basal ganglia damage too, minty. original dx spastic quad, but now athetoid)

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