Who do I ask about hypermobility?

[Ineed2]

My daughter is currently being assessed for possible aspergers but I have also noticed that her joints are very mobile, her elbows bend too far and she sits in a very odd way with one leg over the other and leans on it [difficult to explain]. I have 2 others and have worked with children for 20 years and have never seen another child who sits like her. She often complains that she twists her ankles and runs in an unusual way [like the clip of pheobe from friends on here the other day]. She also struggles with hand writing it is inconsistly sized apparently and she cannot join. Although she has conned the teacher that she can by writing her letters so close toghter that they look joined some of the time.
She is due to see the pead agian soon and is seeing the GP tomorrow. Who should I mention it too?
I am not desperately worried as she seems fine generally but she cannot run like her friends and is beginning to notice, she is 7.
Hope someone can help

Anyone ??

link here should help.

1st stop is to get your GP to refer you to a consultant in rheumatolgy (hypermobility is counted as a joint problem so comes under this heading), if you are in London or Leeds the link I posted will have the country experts. But a consultant should be able to do a basic Beighnton scoring assessment.

Thanx for that, will talk to Gp tomorrow.

OT might be able to help with the handwriting - you may already have this though?

My DD has hypermobility in most joints - her running is also strange (will seek out the video clip of Phoebe from Friends!).

OT has given us lots of exercises for hand strength and also core strength as DD has it in hips (also low muscle tone in trunk area which makes it all much worse ).

No don't get OT and don't know how to go about getting it. Err that makes me seem really dim doesn't it. The trouble is that the pead wants to sit on the fence so I haven't been offered anything, in fact to be honest I don't even think I have mentioned the hypermoblilty to her. I find it really diificult to get my point across to her. Sometimes she seems to take my concerns seriously and then others she says that school don't have a problem so I shouldn't worry.
Sorry am rambling now, why can't kids come with a handbook.

Ineed2 - We were referred to OT by physio but GP could also make referral and so could pead. I do know that a girl in my sons class at school was referred to OT by the school.

Would be worth getting a referral even if they discharge you after assessment as they may be able to get equipment to help in school - pen grips, seating, writing board etc.

i told the paed that ds was v. clumsy and falling over and into things. he then refered us to the physio she said hypermobility and put ds into piedro boots it transformed his walking. i's also suggest asking for OT.

Thanx both I am going to have to be a bit more pushy I think. As I said the pead is happy to sit on the fence as regards the Aspergers, but I think Dd3's differences are becoming more obvious now she is getting older.
She is very clumsy, always hurting her self especially her arms and hands because she swings them arround all the time.

Yes, you have to be pushy, I am hypermobile and it took 3 years to get a diagnosis, about 3 physios and 4 osteopaths and a chiropracter and a podiatrist (for the orthotics in my shoes) to get anywhere near being well again.

I'd also see about another paediatrician for a second opinion.

ds saw paed who refered to orthitcs he wears afos .

We see Ot but well choclate teapot honestly have had more problems with them than the Lea

didn't get far with the Gp, too busy talking about behavioural coughing, throat clearing , selective hearing and other stuff. Will go back without her I think or wait to see the pead.
Interesting that ypur OT was a chocolate teapot round the bend cos round here they are as rare as rocking horse s..t!!
Thanx anyway.

Our OTs otoh were brilliant, can't praise them highly enough.

Hi, we are off to the GP today with dd1, she has Aspergers and seems to have hypermobile joints and low muscle tone, i have been trying to get help for her for over a year but no one will take me seriously . I'm hoping to get a referral to physio or OT today. We have been refused OT in the past for my other daughter as the OT no longer see's children with ASD (due to staff shortages) . Dd1 sits in odd positions and sleeps in what i call 'the frog position' (knees by her sholders). Dd1 is having problems with her feet and legs, her feet turn inward at the ankle and now her legs are starting to turn, this is really noticable (but not to a gp).

Oh there report assement was good ds below 1% gross fine etc but lol no plans or stragiss to help with it .kinda makes the whole battle had to get Lea put in statement waste of tine