Cory or anyone else who has kids with hypermobility syndrome

[BigWeeHag]

Hi, I'm taking DS1 to the GP today regarding his hypermobile feet and ankles - I was wondering who did the DX for you, and who I need to ask to be referred to?

I'm feeling a little rushed as he starts school in September and I want to be able to say to the teacher that this is what is going on, rather than giving what ifs and maybes.

TIA xx

Paed dxed ds's hypermobility.

physio, but on paed recommendation

OT referred to physio who made the diagnosis for DS2.

paediatric rheumatologist made first diagnosis, but confirmed by physio/OT/etc

our pead and every one else confirmed it , but no physio her or any thing else either even though her finger dislocate a month ago and slipped back in its self

my dd (19 m) was diagnosed by gp who referred us direct to physio(at child developement centre) when we lived in london but we moved ourt of london and hv advised us to get gp to re-refer us. but in this area we see a pead first who diagnosed the same thing. she has then passed us onto a physio (but pead also doing blood test etc to rule out any genetic conditions for which is may be a sympton)

How did you get on, BWH?

My dd was under the care of a paediatrician, who passed her on to orthopaedics (but most people are sent to rheumatology). They then sent dd to surgical appliances for Piedro boots etc.

Trace, some doctors still think that hypermobility isn't a problem and isn't painful (oh yes it is). Some also don't think that physio is necessary - although I know of kids that have hydrotherapy, physio and OT help. It all depends on where you live, and who you see.

Waste of time, thought it might be. She said she would do a referral if I wanted but thought it would be better to wait and see the paed, who he was referred to in May. No appointment for that yet either.

We were there about his face picking - he has given himself impetigo AGAIN and is on oral + cream anti-biotics for I think the fourth time this year, not good.