CAHMS refusing to intervene...so many excuses, what can I do?

[hanaka88]

well to cut a long story short my ds's nursery has been attemptingto refer my ds to CAHMS since september with no avail, they keep refusing, first it was 'try the IEP, if it doesn't ork we'll intervene, next it was try x, or x or x. Nothing worked so nursery called again. Next peice of advice...have a CAF then we'll come to the CAF review....ok so we did that....they refused to come to the CAF review stating that ne outcome of the review may be a referral to them...then they would help.

So after all this was done, they still told the head of the nursery they would not help yet...and why? Apperently I have to access parent support over the summer and IF there are still concerns then they will intervene.

Urrm excuse me....I have a degree in Early years, I am a aprimary school teacher, my behaviour management in school is always commented on as excellent. the nursery have seen me work with children as I was on placement there for a year, they have also seen me wit Dylan during stay and play and one girl who works there lives opposite me...they know im a good mum.

So the head of the nrsery told them all this and they said....'well that's just the way it is'

GRRRRRRRR what can I do?????

The head said she recorded the phonecall as sher was extremely pissed off, but he is no longer at nursery now he starts reception in september so it will be up to the school (who arent great) to do it....can I do anything or do I just have to go to these parents support things and wait forever?

We had referral after referral turned down. Although its not an actual policy of CAMHS, they dont like to accept referrals for children under 5.

really? That's awful. Thing is he needs something. I dont think I can take another day like yesterday, he bites me so hard he draws blood =(

Could the gp refer to Cahms with a strongly worded letter? We had years of delay because of the policy of bouncing severe concerns in several settings (ie nursery and home) and that all other interventions have been tried -so perhaps a dual response will help.
Good luck!!

Thanks, Im taking him to paed on wednesday, maybe I could ask him? should I ring myself or leave t up to them?

Ps is your child already seeing a paed? Perhaps they could refer too. we had the same situation as claw - turned down time and time again, until at last (4 years later) he was seen and given a Dx of severe autism WITHOUT any formal asssessment by them - mind you the asd mld school had tried to turn him down as too autistic!!!

Poor you In my area, they have a sub division of CAMHS who go into schools TAMHS (Targeting Action Mental Health in School) i dont think many areas have this, but might be worth checking.

Do you have Paed? might be worth asking them to refer.

Sorry x-posted.

He has only just been refered to a paed, first appointment on wednesday but I will ask him to refer too...claw3, doubt my area will have something like that, looked on website and nothing there.

magso...too autistic? That's ridiculous!

Exactly - I think it was a tactic to help ds get his disability dxed and adiquate funding. It worked and ds got his place!! Wonderful school!!

here

Its more of a resource which school can call upon, bit like ASD Outreach etc.

Thankyou!

This does seem to be pretty normal from IME and from what I have heard from others.
I call it the bounce factor..or the pinball effect... I don't know why they do this as early intervention is really important..

deffinatley ask your pead to refer when you see them.. take a list of concerns, examples and paperwork from other agencies/school etc.. I have learnt to go in armed to the teeth so you don't get any ' mum says' or ' mum is anxious about..' comments.
also video footage of odd behaviours, communication and any meltdowns etc is a good way of being able to 'show' behaviours rather than trying to explain them.

you may have a PFSA ( parent families support something) attatched to the school ( maybe nursery).. they can also refer to CAMHS

as can your GP.

Could you ask your nursey to refer to the SEN team and ask them to inlove an ed psych?.. this does seem to hold some weight against the bounce effect ( if you get a good EP that is).

hth

with regard to help yourself in the meantime with challeninging behaviour have a look at the parent bit for stratagies that you can try out, they may help and won't do any harm if you try them out.

Definitely lean on the Paed to refer and/or go to your GP and put pressure on him/her. The Paed route would be good, because CAMHS do not generally go against Paed advice.

In the mean time, pay lip service to the parent support people. See her/him, get their advice, follow it through and then write to them cc-ing in everyone relevant saying that you have implemented x,y and z strategies and they havent worked (if they dont - which if your child has complex needs they may well not).

EP are supposed to be cming t observe ds sometime over the summer...no appointment time as of yet tough...went t the positive parenting thingy today...what an experience...sat there with about 6 different couples who's children where in care being spoken to by a woman with exactly the same qualification as me....lol...oh well...I'll do anything to get ds the support he needs