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Regression?

17 replies

hanaka88 · 13/07/2010 08:30

OK so we are sill waiting for support / a diagnoses on DS but things seem to be getting worse. When he started pre-school he was happy and very social, maybe not so much with children but he could have extremely long conversations with adults about things that interested him. He was also extremely loving, the nursery staff always commented on how he would just come up and kiss their hands and tell them he loved them, it was lovely...even thugh his behaviour was always a bit odd (or horrendous lol).

fastforward to today. DS is not speaking properly at all now, just repeats phrases he has heard other people say or from TV. recent example - me 'are you having a good time?' ds 'you dont do that to your best friend' he has stopped making eye contact and it is almost impossible to engage him in anything. he has also lost his loving side, the only thing that comes out now is anger.

I spoke to his key worker about this (resisting the urge to cry) and she says she has noticed exactly the same and is hoping the ed psychs see it when they observe him and move things along faster.

so my question is this, why is he regressing? is this normal? how far is he going to regress?

I dont want to loose my son

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fanjoforthemammaries7850 · 13/07/2010 08:35

Has he ever been tested for epilepsy?

I would push for a referral for tests..we have just had a lot of tests for DD, thankfully they were clear so she is still a mystery but there might be something he can treat.

The neurologist I saw said that many cases of regression he saw were metabolic or epilepsy related.

hanaka88 · 13/07/2010 08:39

the doctor has written a referral to a paed but havent heard anyting back yet, is that where he will be tested?

I didn't even think of epilepsy I thought you had fits. Eveyone had been saying ASD as he is funny about his routines. thing is regression only appears to be social and behavioural not academical

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fanjoforthemammaries7850 · 13/07/2010 08:41

My DD mainly had language regression, this can go along with behavioural regression if epilepsy related, as far as I know, epilepsy can also be found with ASD.

My DD had an EEG while asleep to check for epileptic activity in sleep..it was clear but I am still convinced she is having some absences/partial seizures.

fanjoforthemammaries7850 · 13/07/2010 08:41

My DD was tested in hospital.

fanjoforthemammaries7850 · 13/07/2010 08:42

I think they WILL test him, we were told that most ASD regression occurs before age 2, and when it happens later it CAN be caused by other factors, hence the testing.

Sympathies, it is a very very hard thing to see as a parent..one year on and I still find it hard.

hanaka88 · 13/07/2010 08:47

absences? like stopping and staring into space and not responding to anything? because he does that often.

Thanks for your help, I'm so glad I found this site

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fanjoforthemammaries7850 · 13/07/2010 08:47

Yes, that is what my DD does too.

Anyway I don't want to get you all worried, I hope you think of it as something they can maybe treat and help.

hanaka88 · 13/07/2010 08:49

I dont think I could get more worried at the moment. Something else weird he does - calls himself 2 different names, one is just his first name and then one is his full names. he treats these as 2 different people (one good and one bad) it's freaky sometimes he punched himself in the stomache the other day saying 'get out of me x your making me cry'

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fanjoforthemammaries7850 · 13/07/2010 08:52

I hope your referral appointment comes through quickly, it's so hard waiting, ours was lost the first time, do chase it up if you don't hear anything.

hanaka88 · 13/07/2010 08:56

thanks! i hope it doesnt get lost i woud scream lol! how long should i wait?

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fanjoforthemammaries7850 · 13/07/2010 08:57

not more than a few weeks I'd say!

hanaka88 · 13/07/2010 09:02

thanks...its only been a week...im just impatient

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Davros · 13/07/2010 09:16

If he does have ASD then it is fairly typical to have a jagged development iyswim, 2 steps forward and 1 step back type thing. As they get older they may need to be "worked on" more, more reminding and prompting, possibly because things become more complex. Not sure this is any help. Definitely look into Epilepsy, it is quite common with ASD and there is a high percentage that develop Epilepsy at puberty.

hanaka88 · 13/07/2010 09:21

thankyou. He is just 4 so not quite at puberty yet (I dread to think that far ahead lol) But will definately ask about epilepsy, there is a little boy who has it in my class nxt year so I will have to start finding out more anyway

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Davros · 14/07/2010 08:08

I know, puberty is a long way off for you! It just demonstrates that there is a connection.

Tiggles · 14/07/2010 14:00

Stopping and staring into space could be an absence seizure which is a form of epilepsy, but not associated with having fits.

www.patient.co.uk/health/Epilepsy-Childhood-Absence-Seizures.htm

hanaka88 · 14/07/2010 15:32

Thanks! I'll look into this...I think I need to write everything down before his paed appt in case I forget something lol

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