baby girl born with imperforate anus.....complications after surgery....can't find any answers :(

[sugarbea]

my baby girl was born in december with an imperforate anus with a vestibular fistula.. she avoided a colostomy and had a psrap (pull thru at 2 months old)......since then she has had around 6 IUA (investigation under anasthetic) and dialatations.....(i have not had to dialate at home) at the last IUA they discovered a rectovaginal fistula (which i think has been present for a while as i had noticed poo in that region before) she is due for more major surgery in august....she will be 9 months old....

i have tried for months to make sense of it all and it is no comfort that all the things that have happened to her have (in the doctors words) "just been one of those things"... it makes an otherwise positive mum question just how many more things can happen without cause or explanation.

wikipedia is my enemy....as the condition is so rare the information that i have found on it differs so greatly im still none the wiser...

im scared for her future, her continence, her happiness she on the other hand couldnt give a monkeys..... she is the happiest baby ive ever known...surpassing all her milestones (crawling at 5 months standing at 7) shes determined to make up for any abnormalities.

wondering if any other mums have a child with this condition or any mums that were born with it.....im sick of the statistics...

Hi sugarbea
sorry no helpful advice but didn't want to leave you unanswered. my ds had an op at 10 months on an anal fistula which was horrid and scary but thankfully a one -off

your dd sounds gorgeous btw

sorry no answers either...but I'll bump you in case anyone else has

There is a poster called Purplelostprincess whose DS had IA. You could start a thread with her name in it.

The other place you could try is a forum called 'Special Kids in the UK'

I dont know anything about vestibular fistula but i had a large rectalvaginal fistula as a teen.
as i was older an the tear was so big, i had a colostomy in the hope it would repair itself.
3years later it hadnt so they did a repair using part of labia (sorry tmi)all went pretty well with no incontinence/problems.

im 25 now and the only way it affects me now is, i cant have a normal birth and meant to take laxatives daily although rarely needed.

Hi, I know this is a late entry, but just come across the thread! I was born with an imperforate anus, had an operation to correct it at around 15 months, I think, and had to have a few years of dilation etc.
It is hard to find information on it, I have tried but its not really out there, but I've never had any problems with continence and like xbeckyx, the only remnant of it is have been told by docs I will have to have a c-section (next month!)to avoid any damage/colostomy etc.
Hope this helps, I know it is pretty rare but I have never had any real problems,apart from having to eat mountains of fruit and veg!

weebleball and xbeckyx
I have just checked this thread..Thankyou so much x :)