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SN children

Here are some suggested organisations that offer expert advice on special needs.

Hello, I have been directed here by lougle - thank you.

25 replies

mumoftrio · 12/07/2010 22:31

I have a 6.5 year old ds - looks like he has a moderate - severe processing problem (whatever that is really?) and may well be on the spectrum.... (I went to someone privately, a friend, but theyre not really able to diagnose this is just the findings)

I am freaking out, unsupportive school / need to change schools asap and I guess I need some advice / support please I guess

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TheCrunchyside · 12/07/2010 22:35

Hi mumoftrio

the route round my way is get gp to refer you to the dvelopmental paed/ occuptional therapy and social communication pead. In terms of schools there seems to be a massived difference in approach between schools as regards SEN (with or without dx and statements). have you rung around and had chats with the sencos at neighbouring schools?

mumoftrio · 12/07/2010 22:40

I dont even knnow what sencos are? Thats where I am at! [blush

Not many schools round here (VERY rural) that have sen departments or anything.

I NEED to change his school and it is freaking me out as I am worried how he will feel about this as he has been to toddlers, nursery and one year of school in one place but within one year he is miles behind now and problems becoming more evident and theyre just not up to giving him the help he needs ......

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TheArsenicCupCake · 12/07/2010 22:46

Hi trio

welcome to the board...

Senco = special educational needs coordinator.

There are two things you can do with schools.. One stay where you are and fight for help.. Or two go through the schools available in your area and talk to them.

I'd ash you gp to refer you to the community pead for starters ... List reasons and examples of.

Hth

mumoftrio · 12/07/2010 22:47

right to the GP I will go! Thanks!

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TheArsenicCupCake · 12/07/2010 22:48

Ask your*

TheCrunchyside · 12/07/2010 22:51

Every school will have a SENco - make an appointment to see yours and ask what they can do for your ds.

When you go to gp be prepared with specific examples of your concerns and decide on what you want i.e. a referral to a community/dvelopmentmetal paed. Then decide in your own mind that you wont leave till you get the referral.

come back and tell us how you got on

mumoftrio · 12/07/2010 22:53

I feel like I dont have a label for my son so I cant understand how to help him yet whats a label but I feel like I want to understand him best and sending him to school is crap I just feel like sheltering him away with his siblings

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mumoftrio · 12/07/2010 22:54

Thanks he had paed input as a baby young one as he never crawled/ late walker was tiny / food fussy / etc wonder if that was all linked

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TheCrunchyside · 12/07/2010 23:01

it is shit and it seems like two steps forward and one and half back. my ds is 4.5 with global developmental delay (is more like a two year old) but we are waiting for a formal dx of asd and have now discovered he has medical problems poss related to asd which are holding back his development.

Even though my ds had quite severe special needs I've had to intiate everything. The gps/nursery etc have been quite supportive but leave it to us to suggest the next step in terms of investigations and even treatments. it is a horrendous responsibility. This board has been invaluable.

You will get there but it will be a royal pain in the arse!

mumoftrio · 12/07/2010 23:17

crunchy I love your style made me laugh lol

My 6 year old (nearly 7) son acts/seems as if he is 4 maybe has gdd?

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TheCrunchyside · 12/07/2010 23:27

He certainly seems to have developmental delays but they wont be global unless there are pretty much across the board.

Actually the fact that he has coped till nearly seven without support is either a sign that his problems are not scarily severe or an indication that school is scarily shite in not putting in place help before.

Either way it sounds like it is time that you too entered the SEN world of pain.

mumoftrio · 14/07/2010 19:19

world of pain EEK Dont tell me that!!!

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AgnesDiPesto · 14/07/2010 21:04

I would suggest ringing round the schools and asking specifically if they have had children on the autistic spectrum before and what level of support they would be able to put in place for a child who does not yet have a statement. Here schools have to put in up to 20 hours 1:1.

A diagnosis will bring some help from an autism outreach service (if thats the diagnosis!)

You could apply yourself for a statutory assessment of his special educational needs - there will be info on your council website but also look at ACE, IPSEA and NAS. Failing to make progress is a ground for a statutory assessment so you could apply for a statement.

However it would depend what help that would bring - unless you have an array of specialist provision locally the assumption will be he will stay in mainstream and a statement may bring more hours of 1:1 with a TA. But then the TA may not have much experience so your child does not learn. So IMO getting a supportive school who is experienced or very willing to learn quickly is key.

It is quite possible that if he is on the spectrum the difficulties that throws up for learning has caused him to fall behind rather than him having GDD. Children with autism tend to have delayed language skills so of course that makes everything happen later and also don't learn in the same ways eg they imitate and observe far less. They also tend to be absorbed in their own interests, more distractible and learn less through play etc. So as a result they fall behind.

ASD children can often have spiky profiles eg they might be ahead in some skills and very behind in others.

Your council will have a parent partnership officer who can send you a list of schools and may nudge you in the right direction. Or ring your local NAS branch and ask for parents recommendations of schools.

Usually you can tell by the reaction of the receptionist when you say you have a child with suspected ASD and want to come and look round!

Often money for SEN is distributed on deprivation indexes so the schools in the less well heeled places with the more mixed intake tend to be the ones with the most experience of different learning needs and the most money to take on 1:1 staff etc. Often village schools really struggle to pay for the extra staff and training etc.

Late walking and food issues are common with ASD.

You can also self refer to the local authority educational psychologist - its a good idea to get on that waiting list asap as they can advise on what will be needed and settings.

Lougle · 14/07/2010 21:14

Glad you found us

NickOfTime · 15/07/2010 00:11

have you made an appointment to discuss with the school senco and the class teacher? (assume your ht may be the senco if it is small rural) - they will have access to the ed psych from the lea for assessment purposes (you can be doing this whilst waiting for a gp referral to a community paed who does developmental assessments.

i know you are thinking of moving him anyway, but if you haven't properly been down this route with the current school, then you won't be doing any favours for children that follow iyswim. the school need to know that they are failing on this score so that they can improve... (there will also be one of the governors who is responsible for sen).

remember, all you are asking for at the moment is an assessment, so make a list of the things that concern you - this should be relatively easy if you have already had a friend do an assessment (curious why if this friend is a professional that they won't write it up as a professional opinion? that would definitely help - people pay out a fortune for private assesssments to help them get services, if you've already had one done that would be a huge step along the way to a diagnosis)

mumoftrio · 15/07/2010 22:49

thanks for info

his present school are crap

non compliant with us now as they left (wait for it) our 5 year old ds alone in the empty school for 15 mins by the main road as they forgot to take him with them. someone returned him, they had not noticed him missing. they didnt tell us but didnt bank on the fact he could. he was hhysterical in day of question, handed to me with label 'emotional day'. we complained,they got rollocked,, now they are non compliant as a punishment it would seem sigh

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NickOfTime · 15/07/2010 23:50

oh.

moving him seems reasonable then...

mumoftrio · 15/07/2010 23:55

But I am scared cos he doesnt like school and where he is he doesnt get bullied, more like ignored but he doesnt mind that and i am scared stiff the big school i have lined up for him will be a disaster.

I really am very anxious but feel my hands are tied.

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mumoftrio · 15/07/2010 23:59

If i admit to myself I am feeling so very anxious, this past year, his first at school has been hell and the thought of a new school and new issues is scary

but it may go better, it might, tell me it might?

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NickOfTime · 16/07/2010 00:34

of course it might

have you discussed potential issues with the senco at the school you are going to send him to? i always use the 'asking for advice' line to flatter their professional ego - detail your concerns and ask for their professional help and opinion. it has stood us in good stead so far.

only natural to be anxious, but it doesn't have to be a disaster - larger schools are often better set-up for children with additional needs - maybe a learning support department etc. they usually have greater expereince too. obviously it varies, but think positive. it can't be any worse, right?

also, bullying at such a young age is not usual tbh - most kids until 8 or 9 are fairly relaxed about differences of all sorts. dd2 drools and staggers, wears glasses, and has a squint - she's going into yr 2 and to be fair is going to be a prime candidate for bullying, but so far, not a whisper...

amberlight · 16/07/2010 09:59

Mumoftrio, having moved mine out of problem schools twice, it's been the best move we could have done for him. He found the changes very stressful at first, but he's of an age now (late teens!) where we have a really decent chat about it and he says it was the best thing we could ever do for him. He hated one school so much that he made no progress in 18 months. If anything he was going backwards, whilst they described him (basically) as thick. Well, he's got 9 GCSEs now and good friends and he's a school Prefect and a leader of the rugby team plus working at the school in the holidays on their playscheme for the younger ones. All because we didn't accept cr*p from a school and we kept going.

Was it hard work at times? Yup. Was it worth it? Absolutely.

Meet the head teacher and the SENCO. If they are cheerful and lovely and positive and want to be proactive about helping, that's the school to be in. If they're formal and stuffy and you're having to do all the hard work in the meeting, forget it. Best advice I can give.

AgnesDiPesto · 16/07/2010 10:26

can you ask the new school to put in some 1:1 to help settle him in at least? It might be if they then see its needed they will continue.

another idea when you get to the new school is to set up a monthly sen parents group - just meet for a coffee in a room at school - often other parents are having the same issues and you can achieve alot more if you are all pushing the school collectively. It can also give you support from other parents in the same boat.

mumoftrio · 18/07/2010 20:37

thanks guys will take heed to your good advice. the only eligable school that can take him and meet his needs has rung back and said yes there is space!

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AgnesDiPesto · 18/07/2010 21:43

Yeah!
Fingers crossed.
have you visited?
Don't put off the statement perhaps agree half term assessment and then meeting to discuss whether to apply for statement
Be better if school back you but you can apply without

mumoftrio · 18/07/2010 22:52

going to visit soon hopefully

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