Apologies, I did not see these replies, thank you for them!
In the last couple of weeks, we have just decided to home ed our DS, I had to give up work anyway. A few months ago I was a bit scared of the idea, now I am more than happy. I did always wonder if he could ever do school with PDA profile and his personality, but the school have completely put us off the school idea now. Especially with all the new bills coming in, I feel he would be better protected out of the system, rather than get stuck in the wrong place. And i can meet his needs 1 to 1, as his mother and continuously working at keeping him regulated. Its the best choice for us right now.
Its a shame, my ds was soo excited to start school, he hates it now, the idea has been ruined for him.
As for your questions, I could ask for a meeting with more staff as suggested, but i've requested twice, they are being as difficult as they can be. I'm worn out with the fight, it would be easier just pulling the plug and him just being home ed.
Yes, they could do alot more. all reports from experts handed in, say no time outs, no punishments. But, yet in the last few months I have found out more from my ds and others, Ive been digging. Time outs given straight away, I am pretty sure hardly any time is given to regulation. If he does something wrong, he is shouted at, he shouts back, the teacher shouts louder, he cries (this isnt every single time, but happens alot) he is given time out, which makes him miss play time, dinner time (so he misses half his lunch to eat) and also misses his favourite lessons. He also struggled last week in his worst lesson, motor skill issues and overwhelm on his brain. He got frustrated as he couldnt do it so they gave him time out, out of class and wouldn't let him do the next lesson. The next lesson is his favourite and they wouldnt let him do it until he had finished the previous work, which he struggles with. So missed the whole of the lesson he loves.
Definitely not proactive, looking at triggers or taking time to regulate him. I am pretty sure they are just expecting it to click and he will fit in. Tell him to sit down over and over, time out, miss the good stuff, a day out of class, given a box of fidgets, sat down to talk about bad behaviour and how you are supposed to react and engage with others. They will never change their mindset, its just punish, punish and the child will eventually conform and he isn't so they are getting heavier with the time outs and bad behaviour chats.
They are sounding even more horrendous, the more I find out.
I know his full budget isnt just for him and thats not how it works, but he is getting nothing of it to be honest. They have just spent alot of money (that they apparently didn't have for more TAs) into setting up another income source, setting up a new part that brings more cash into the school.
The EHCP hasn't much in it, but we are now working on a bullet proof one (for home and his future not for that school) I highly doubt they would ever carry it out anyway, as I have heard of others with specific things in F in the EHCP and its still straight to time out. No regulation.
I recently handed in a very thorough report to school, focusing on regulation, I had been recommended to the professional by several people saying the person had done wonders for their kid at school. I thought it would help the school too.
One item was a very simple thing, my child could do thereself, it would take 2 minutes, he just needed a reminder. It was to be minimum every 2 hours, but more often if the child was getting dysregulated. There were other things on the report obviously, but this was a quick fix that could be tried as a minimal effort maybe every hour, 1 hour 30 as needed. I was told it would be only done at break time, lunch time and afternoon break. I said that defeated the object, it was to help regulate. But was told by the teacher it would be done at those times and that was it, the report said every two hours, so it would be done no more. It was minimum 2 hours, so they are pushing it as they can. The thing is the starting time they have picked is an hour after he gets to school, so they have picked the two hour slot to fit into what suits them, not my ds.
From my point, I was foaming, but it told me everything I needed to know. There was going to be no time put in to help my son regulate, if they couldnt even give him a nod, to go off himself to do something that would take one minute, there would be no focus on helping him or understanding him. Its there way, or punishments. Yes, it isnt in his EHCP yet, but still, if you cared you could help with that small thing. There was definitely no point in bringing up other things in the report, like body checks and all other OT things, they dont even do the things off the first OT report we put in.
Thanks again for your time, but I think we have been completely burnt in this process, its consumed nearly all of my time for months and longer and I will be happy to have nothing else to do with it for aslong as I can (new bills dependent) and will enjoy this summer educating my DS in a fun, relaxed, regulating way :-D
I can also put alot more time into his fine and gross motor skills progression, than could ever happen with him just sitting at a desk. Thank you!