ASD further investigations?

[DecisionsDecisions26]

Hi,
Has anyone gone down the route of further medical nvestigations? NHS in the past, or private now (as it would be very unlikely to get anything like that on the NHS now).
DS has diagnosed ASD, very likely ADHD, we have had alot of private assessments and advice, some more planned. Then it is adjusting life and time will tell, using procedures put in place and specialist provisions, reasonable adjustments.

He had no heartbeat at birth and didnt breathe himself for 6 or so minutes. I just wonder at times if there is another root cause we could be looking at aswell, it does happen.
MRIs privately to look for brain damage or inflammation aren't too expensive if spreading the cost, its the cost when GAs are needed that causes real problems.

Is there anything else you can pay for that could check things, maybe genetics? Or anything?
I just worry that we could spend on more assessments, more fighting for provisions, go through different educational settings, then more tests down the line reveal something in the brain, knowledge would have helped in advance.
Hes 6, obviously there will be no further tests on the NHS. And I just think what if we paid 800 or so for an mri and he just lay there (which he wont) then they found something that needed treatment medication to help the situation. Or we needed a different plan in place. Or there was nothing so we are doing right keeping on with correct provisions and reasonable adjustments.
Im just a person i guess that needs to know alot of the facts so I can then plan the best actions for his learning and future. Being more proactive than finding something else out 15 years down the line. Happy to book a private appointment for testing and pay (within reason) as I know the NHS can't do all that. Or maybe im just off on a goose chase!
(My sister had NHS mri for undiagnosed ASD and it showed some brain issues, but that was over 30 years ago they will be alot more detailed now)
Maybe I should let this go, but it just niggles me there could be more, the need to know.

God forbid, if they found anything that meant he would only learn so much in life, I would forget the fights, forget the paperwork, forget the special schools, the stress caused and just keep him at home and have a happy life, whilst learning.

Sorry, ive been googling and pondering since 3am this morning, oops!!!

When DC are diagnosed, part of the assessment is, or at least should be, considering differential diagnoses. For some, that includes genetic testing (often Array CGH testing is the first step when genetic testing is judged to be required) &/or MRI scans, so it is possible for those to be done on the NHS. Although for many even if genetic testing shows something it doesn’t change the support/care required.

If you suspect a genetic condition, you could request a referral to paeds (who may then refer to genetics if required). You can go privately but it can be expensive.

Similarly, if you think a scan is required, you could request a referral to a paed if you wanted to go down the NHS route. If you go privately, it wouldn’t just be the cost of the scan. You often (mostly? Always? for this type of thing) need a consultant appointment too.