Support as your children age

[Ponderingwindow]

Just wondering if other parents feel a bit isolated as their children with SEN get older and their issues become more idiosyncratic. I used to feel like I could post online and get support because I was posting about generic problems that could be happening with any parent of an ASD child. Now that DD is nearing adulthood, I find myself writing posts because I need help and emotional support, but deleting without posting. I don’t want her to find something I have written because she is googling her own issues. Even though my intentions are good, it is so easy for something written to be taken the wrong way. It is isolating because I really could use support these days, but I don’t feel like I can really share.

If you want to post online but don’t want it hanging around for a long time, you could post on SN Chat. Threads there disappear after 90 days. Or the 30 days only board would be even less time. There is also the OTBT board, which disappears after 30 days and supposedly threads there don’t show up in search engine results. Although I know there are things you won’t want to post online about at all. Have you looked if there are any parent carer groups locally?

Thank you for the tips on boards.

I have looked for local groups. We have one, but it is for people whose children have a different presentation than my child’s.