Hi everyone,
I’d really appreciate some advice from anyone who’s been through similar.
My son is 9 and has autism, ADHD and DCD, along with severe mental health difficulties. He hasn’t been in school since July 2024 and currently can’t leave the house or have anyone visit – not just professionals, but anyone at all. I’m a single parent (with two older children) so the impact on life is pretty huge.
His EHCP was issued in February and names EOTAS, as education outside school is the only option, but there’s no actual provision written in. Since it was issued, the LA haven’t arranged or funded anything new.
Right now he has five hours a week of MindJam (online, camera off, originally organised by his primary school but the LA now fund), which we’ve built up gradually over time. It’s the only thing he can currently manage. My plan was to build on this by adding another online provider once he has the right setup at home.
In July I sent in a personal budget request for home-based learning — online and interest-led — including a gaming PC, as he doesn’t have suitable tech and it’s needed to progress with MindJam and add another provision. I also asked for a few educational subscriptions to support him at home. I am currently home educating him and funding these things myself.
I made a complaint which was upheld at Stage Two (in July), but the only offer was financial recompense for missed provision (which I didn’t accept). Today I’ve had an email confirming their panel have refused the personal budget in full, without offering any alternatives or next steps other than saying he needs to build more relationships with other adults (this is being dealt with separately by social care).
It’s with the Ombudsman, but no caseworker has been allocated yet, and we’ve got a tribunal in April as the EHCP doesn’t reflect his actual needs or provision. I’ve also contacted my MP twice but had no reply.
I just don’t know what to do next. The constant fight for everything but ending up with nothing is actually soul destroying