3 year old with trouble with walking

[Tiny19944]

Hello, I was just wondering if anyone can suggest anything that can help.
My ds is 3 years 10 months old and is having trouble with mobility.
He walks but on his tip toes all day, he can jump but also on tiptoes. He can't pull himself off the floor, will need hand or sofa.
He just learning to climb stairs holding banister and hand. He falls over all the time.
He is being seen by pediatrician for suspected ASD and ADHD.

As well as the paediatrician, has DS seen a physio? Does he have ongoing physio? What about OT? Including a home OT assessment. Has the paed ruled out other causes?

Is DS in nursery? Does he have an EHCP?

Have you applied for DLA?

He was seen by physio and been discharged saying its a waiting game but been an ongoing issue since he was 2.
He does have an EHCP and dla
Pediatrician did checks on brain and he has a deep dimple on back so checked that too.

He been referred to a muscular hospital but waiting to been seen.

If DS has an EHCP, physio and OT can be included in there. As can things like hydrotherapy, rebound therapy, horseriding. All of which can help mobility. You can request an early review of the EHCP to look to improve the EHCP.

Ok I will mention that thank you so much

Sounds a lot like my 3 year 11m DD op. We have been having physio since she was about 2, really shocked he has been discharged! I would request re referral - we have been using Pierdo boots from the physio for over a year I would say and they help a lot. They’re heavy so keep her heels down & help with ankle stability which in turn reduces the amount she falls over.

My DS is 8 and walks on his tip toes most of the day. He has an EHCP, with OT provision at a specalist school. We got him assessed by a private OT 3 years ago. His current school has an OT on site. He recently had a private physio assessment and diagnosed with low muscle tone. But no one mentioned hydrotherapy or rebound therapy. I have heard of craniosacral therapy and osteopathy though.

My question is how do I find out more about what therapies are available out there? How do I figure out what is most appropriate to my child's needs? Shouldn't this information come from the qualified professionals (OT, Physio) when they do assessments? Or should I do all the research myself (spending hours on the web, forums, etc) and then speak to an OT/PT? Sorry for so many questions.

Good assessments for an EHCP would absolutely include hydrotherapy, rebound therapy and so much more where they are reasonably required. The problem is, many reports undertaken by the LA (including where they use the NHS to fulfil their duties) are poor.

Were your independent assessments undertaken by professionals who have experience of writing medico-legal reports for an EHCP? They are a world away from the majority of LA reports, most NHS reports, and independent reports not written for the purpose of the EHCP by someone with that experience.

Personally, I would never leave it to professionals.

Yes, the independent assessments were carried out by professionals who had experience of writing reports for an EHCP.

When you say you never leave it to professionals, what alternatives do we have?

If the reports were written by professionals with experience of writing medico-legal reports for EHCPs, they should include all provision within their remit that is reasonably required.

The alternative is researching things yourself, speaking to a range of other people, understanding the law and how to advocate for DC.

He was referred twice to the same physiotherapy and discharged him twice. The same women seen him both times and said there is no magic wand. It will take time and blamed his ASD.