Please or to access all these features

SEN

Here you'll find advice from parents and teachers on special needs education.

What is going to happen with these children?

7 replies

WestCountryDragonBalls · 04/09/2025 06:26

I’m trying not to sound provocative or alarmist.
As a SEN parent, I see a lot of posts from frazzled parents of children with additional needs, which may or may not be formally diagnosed. Posts I see daily:
My child will not walk (any distance)
my child will not eat (anything but two safe foods)
my child regularly hits to get their needs met
my child hits me if I take their iPad away after 8 hours (‘but it’s their way of decompressing’)
my child refuses to go to school or leave the house.
This is becoming a pandemic of unhappiness. But part of me thinks, have we lost our way with parenting?
The feedback from other parents is nearly always ‘go with what the child wants’ but it’s become a sort of echo chamber of ‘enablement’ for lack of a better word.
Don’t get me wrong, no one is happy in these situations, but aren’t we becoming less optimistic and strengths focused, by changing the rhetoric from ‘my child can’ to ‘my child can’t’?
This is NOT to say that we need to be strict or invalidate our child’s emotions, or that we don’t believe our children, but that we need to support them to do things which may feel initially uncomfortable. Otherwise would any of us survive our first days at work, uni, first dates or even get on a plane?
Instead, the current trend is to demand change, but not necessarily in a way that will benefit their child long term. So your child won’t walk into school from the car and you demand to use the school car park, how do you and your child move on from that? Especially with autistic children who get used to things being a certain way?
Resilience is frowned upon but honestly it needs to be seen as a common stage of development. We all become resilient. What are we doing if we don’t encourage our children to work through things they find difficult, within reason.

OP posts:
flawlessflipper · 04/09/2025 09:47

Not sure why you think children and young people’s SEN &/or disabilities are the result of unhappiness. Some DC with SEND, which legally doesn’t require a diagnosis, will be unhappy, but not all. Those that are, the cause of the SEND will be far wider than pinning everything on unhappiness. Requiring adjustments doesn’t mean DC are unhappy.

Reasonable adjustments and special educational provision are not ‘demands’. They are adjustments and support provided because of a child or young person’s disability &/or SEN. A parent requesting either is not demanding.

Forcing a child to cope with overwhelm without support doesn’t build resilience. In many, it will cause further difficulties and/or trauma. Giving DC the support and adjustments they need whilst young saves the state a fortune later in life.

Requesting to use the school car park is a perfectly reasonable adjustment. One that can happen in adulthood, too.

You are demonstrating a lack of understanding of certain eating disorders if you think forcing DC to eat food not on their safe food list will build resilience.

DC unable to cope with school and outside the house need specialist therapeutic support. Not forcing them causing additional trauma. It is about starting at their point and providing support, including therapeutic support, that will enable them to progress. Not forcing them because of ‘resilience’.

You may not be trying to sound provocative, but that is how your post and the lack of understanding comes across.

SL22 · 05/09/2025 21:22

WestCountryDragonBalls it's like your not seeing autism as a neurological condition and implying its somehow parenting & how parents steer & guide children that's the problem.

I think the pandemic of unhappiness is true yes. But not how you describe it , it stems not from 'losing our way of parenting' but from the sheer lack of support and resources for us 'frazzled parents'.

As the mother of two autistic children I'm completely burnt out .
Especially during the summer holidays where there is hardly any provision to accommodate them.

Just for reference ive got 3 dear children, all with the same nurturing, grounded. Measured and most importantly loving household, two have asd and present as you describe and one NT flourishing in mainstream secondary. Other two in a sen school. Its a neurological thing.

I have found the support out there abysmal and I truly feel for the sen parents doing it alone. Your doing great .

NuovaPilbeam · 05/09/2025 21:57

Giving DC the support and adjustments they need whilst young saves the state a fortune later in life.

So this is the hope we all hang our hats on but is it really true?

Ive got 3 older friends with kids who are late teens.

They've all got asd or audhd diagnoses and 2 have been lucky to have supportive schools that accommodated a huge amount to support them, the 3rd was eventually home ed.

The kids seem... happier (I think?) In that there are fewer meltdowns. But none have come out with any qualifications to speak of & it seems to be taken as writ that they won't be able to manage any sort of job.

The base premise seems to be not to require them to do anything they don't want to do, but I'm not clear how they have been prepared for adult life really.

flawlessflipper · 05/09/2025 22:05

Yes, it is true.

For example, the right support as a child and young person can be the difference between:
A residential placement being required or not.
2:1 support in the community and 1:1 support as an adult.
24/7 support and support for only part of the time.
In contact with the justice system.
Being independent or not or being more independent or not.
Someone working (even a few hours) and not working.
A young person moving on the HE during their late teens or them not and the EHCP continuing until 25, or 26 in some cases.
Someone being eligible for CHC funding or not.
The carer reaching carer burnout or not.
I could carry on.

Even looking shorter term. A child provided with the right support before they reach the point of education placement breakdown costs less to support than if the child reaches the point of education placement breakdown and needs a costly placement or bespoke EOTAS/EOTIS package.

It is highly unlikely you are aware of the full circumstances of your friends’ DC. It is far more likely they are unable to do things than not wanting to do things - they need more support, not judgement.

NuovaPilbeam · 06/09/2025 06:52

I have another friend and every time the school accomodates her daughter more, it seems her daughter actually gets worse in school.

The argument back is then that it is because her "needs" are being met so she stops masking

But how do we know she didn't just need more structure & a sense that adults are in charge to feel safe? Anxiety is often central & too many kids have parents hovering to make sure they never experience any discomfort whatsoever

flawlessflipper · 06/09/2025 08:31

If you actually think DC with SEN struggling in MS don’t feel discomfort then you have not got a clue.

Needlenardlenoo · 06/09/2025 09:25

I've got an (adult, 40s) friend who became unexpectedly physically disabled in her 30s and works as a peripatetic music teacher. She drives and has a blue badge. Some of the schools she works at refuse to let her use a disabled space. This worsens her day and means she can't work as much as she'd like to. This is compounded by stupid "cliff edges" in the benefits system.

She spends a LOT of time filling in forms. She was just about the only friend who actually understood what I'd gone through with the EHCP tribunals.

What "happens" is arseholes continue to behave like arseholes and the disabled and their families continue to muddle on without a lot of help or understanding.

New posts on this thread. Refresh page