Pain from pulling at hands and feet

[Huffledor]

My auADHD DC14 is constantly pulling at their fingers, hands and feet then complaining of how much they hurt. They've had some physio to address hypermobilty and strength building but this hasn't helped with the pulling, which is largely related, I think, to their anxiety and also maybe just general stimming. But they get very upset about it and say they're always in pain. Who can I take them to about this? Is this an OT thing?

Do you have a Paediatrician? They should be able to advise and make the correct referral to help you to unpick who or what might help.

Have a look at this book. Might help with this or other needs if it’s related to SPD.

https://www.amazon.co.uk/Out-Sync-Child-Grows-Processing/dp/0399176314/ref=asc_df_0399176314?mcid=ae4c8b5728793026a2b71e6a15b4ce21&th=1&psc=1&tag=googshopuk-21&linkCode=df0&hvadid=696450770348&hvpos=&hvnetw=g&hvrand=18317611584657588179&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9195089&hvtargid=pla-449492188482&psc=1&gad_source=1

An OT may be able to help with alternatives to pulling at hands/feet. Although not all ICBs commission sensory OT on the NHS, but if your area does, it is worth a referral. In some areas you can self refer.

Some find putty, bluetac or an elastic band works.

Is DC receiving any support with anxiety?

No, we don't have a paediatrician. Seems you only get one when you're referred (unlike in other countries I've lived in, where children see them regularly). GPs I've spoken to haven't been very helpful. DC was referred to physio but I don't think this is really a physio thing. No referrals to OT for ND issues where I am. Will probably have to look for a private OT.

I've been trying to get her support for anxiety. GP said they couldn't do CAMHS referral and told me to call the NHS mental health crisis line. And all the crisis line did was take DC's details to make a referral to CAMHS, and asked why the GP didn't refer to CAMHS. That was a month ago and I've heard nothing. DC won't talk to people she doesn't know, so that limits therapy options. Also won't leave the house much these days.

Does DD have an EHCP? If so, OT and MH therapies can be included in there even when DC wouldn’t meet the local threshold normally. If DD doesn’t have an EHCP, you should request an EHCNA - IPSEA has a model letter you can use.

Some DC find therapeutic input that relies less on verbal communication and taps into their interests easier. For example, animal-assisted therapy. Or if DD enjoy Y’s gaming you could look at Mindjam.