Hi, I was wondering if anyone could advise. Submitted an EHCNA request for DD9 in November, got the rejection on Fri 20 Dec (at 4pm 🫠). (Before the school submitted the appendix 2).
Background:
- DD diagnosed with ASD in March last year, primary struggles are emotional awareness and regulation, sensory modulation, rigidness of thinking, cannot cope with uncertainty/transitions/things out of routine, communicating with peers outside of one or two best friends.
- Private sensory OT assessment concluded she had "significant sensory modulation challenges".
- Masks heavily at school, hates to show weakness, however ruminates for hours about every small interaction she has had.
- Longstanding toilet anxiety - incredibly anxious about there not being toilets available/being allowed to go. Part of daily routine that going to toilet has to be very last thing she does. At its worst, has been unable to leave toilet (and therefore house) for over an hour as too anxious. Part routine/part transition/part anxiety/part increased interoception.
- Have experienced low-level EBSA for past two years in that she's said she doesn't want to go/morning distress about about clothing (big sensory issues) and/or toilet. Had always managed to eventually get her in however, albeit 1-2 hours late.
- However, this has escalated since October half-term to point there are days we cannot get her in at all. When I did the EHCNA request, her attendance for academic year was 87%, it is currently 72%.
- Was previously greater depth for reading, now expected. Expected in all other areas. I don't think she is reaching academic potential.
- Sensory OT also highlighted fine motor skill and handwriting challenges. I don't believe her handwriting is at the standard of others of her ability, but the school say that although it is large (and she also struggles with keeping to margins, mixing lower and upper case) it is basically fine.
- Sensory OT also highlighted huge discrepancy between visual perception (87th percentile) and visual motor integration (19th percentile).
- Due to masking, school had only put in low-level support/accommodations until recently, found out that she had only formally been considered to have had SEN support since Sep 24 and even now does not have a 'personal plan' (SENCO said to me today that they were for children who had significant needs across the whole four areas).
- School have since put in things like: weekly therapy dog visit, weekly 1:1 with student social worker to do emotional regulation exercises, soft start provision activities, sensory circuits, 1:1 time 3x a week with teacher to build relationship. However, we are still struggling to get her in regularly enough to benefit from these.
- SENCO has just done an application to take DD's case to Local Inclusion Forum Team for further advice.
So reasons for LA refusal:
We have decided that it is not necessary to carry out an EHC needs assessment for XX at this time because the information we considered suggests that your child’s needs can be met from the resources available to all schools and education settings.
There is insufficient evidence of relevant and purposeful intervention at SEN support stage including involvement of parents/carers and XX and agreement between them and the setting regarding the interventions and support to be put in place, the expected impact on progress and dates for review.
I think we have a better case now (also more evidence of things we have tried, eg CAMHS referral (refused), School Health referral (refused as we have started paying a private play therapist for weekly sessions), 30-min phone consultation with LA EP (insightful, but generic advice).
I also have the school's appendix 2, which was not submitted during the request (obtained during SAR).
This does detail all of the support and interventions that the school has employed (so refuting the LA's insufficient evidence of interventions claim), but critically it states that they do not consider further provision/higher level funding necessary.
Would including it in the appeal be worth it? Laughably, one of the few targets it has for DD is for her attendance to increase to 95%!