I apologise in advance for long post, background story I have a child who’s 5 and he is under speech and language and he has just started full time school.
In nursery they have commented that he wouldn’t sit still for snack time, he was boisterous, and they picked up on he’s speech delay and referred to salt. He then has been going to the salt weekly for a year, she has said on many different sessions he has asd/adhd and she has commented on he’s attention span, not wanting to sit and learn, constant moving/fidgeting, being self absorbed, easily distracted ect and she has said he will need a lot more of these sessions because of this, she told me to go to the gp and ask for a referral. I always thought adhd since he was about 2 but didn’t want to put a label on him I just thought maybe I am reading too much into it but as he has got older it has got worse and more noticeable. Hes eating is my main concern because he will only eat the same meal each day and same breakfast he won’t try any new foods he will heave gag be sick So I took him to the gp and as soon as we got into the office he was running riot not listening climbing and fidgeting ect and the gp said he has 100% got adhd but he can’t have asd because he’s too friendly to strangers (didn’t make much sense to me as I have looked into asd and it’s a wide variety I’m not 100% clued up on it all as I am learning) anyway so he has made a referral to be seen by the community Paediatric clinic. Currently still waiting. During school my son does seem okay he’s eating and drinking is an issue which they have to monitor and encourage but because he’s doing a lot of playing and barley any work as it’s only reception he is alright. But I had my sons senco phone me as I did ask her to go in and observe him and she phoned me and said I went in for 15 mins to have a look and because he looked at me when I called he’s name and because he wanted to participate in the activity she has no concerns so I was quite annoyed at that as I never said he doesn’t make eye contact and I know he will participate but she also said if the Paediation contacts her she will say she has no concerns and it can cancel my referral. (Idk how true it is as I am new to all this but I did think I would need school to work with me not against) so again I explained all my concerns and she just responded with I don’t see anything and then tried to blame my parenting. It is frustrating because I would like them to try and work with me rather than against as that is how I feel I know my son is masking during school and that does worry me as he comes home every day and he has a massive melt down and there really bad and now I’m unsure what to do. Some of the things he does; bites and chews clothes, very clumsy always having accidents, doesn’t look where he’s going, constant fidgeting, constant tantrums, lacks concentration, lying in weird positions, repeats himself over and over , butts into conversations, touching things, does things before thinking, doesn’t know how to control or deal with he’s emotions, he will play with children but loves to play by himself, runs off, charges into things/people, no fear, hurting himself/others, constantly tapping feet, loves physical running ect, The repetitive sounds, songs, sayings and rhythmic first / foot banging are constant all day long ect that is just some. He doesn’t sleep good he goes to bed late wakes up early and during the night. He goes to football and the coach came up to me the first session and commented on how he is and he also suspected adhd and now they work with him during the sessions rather than against him I have had parents come up to me and family members it’s like everyone can see it but the school so if I do get my referral turned down what should I do as in the private route. I have seen people say OT therapy, assessment straight away, I just don’t know how to go about this and where to start.
Any advice is appreciated and thank you if anyone does actually read this.