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SEN

Here you'll find advice from parents and teachers on special needs education.

Feeling helpless to support my daughter

2 replies

PolkadotParsnip · 09/07/2024 23:22

My dd18 has completed her A-Levels and should be enjoying her life. However, these past few years at school have been terrible. We’ve had years of her being unsettled at school, difficulties in forming and maintaining long lasting friendships and experiencing very poor mental health.

School and our G.P have been useless despite asking for help repeatedly. This culminated in us funding a private ASD assessment in March this year and surprise, surprise, she has a formal autism diagnosis.

Had this been suggested or offered, I feel that her life could have been so different. We could have accessed local support groups, school could have better supported her and her peers would maybe have been more understanding and and kinder towards her. As a family, we would have made sure she was supported. As such, none of this was identified or offered.

My dd is kind, friendly, fun and interesting. She is also lonely. She is so upset at seeing photos of her ‘friends’ at festivals or on holidays, yet she tries to be positive about it all. I know that she is hurting, I keep hoping that one of her ‘friends’ would call or message her. These are the same friends who were happy to come round to our house many times whilst they were all at school but they wouldn’t ever offer her the same courtesy.

My heart is breaking for her. I’m not sure how to support her. There’s only so much time she wants to spend with us. She’s currently looking for a new part time job, having quit her current one at a fast food venue to focus on her exams. I’ve suggested volunteering, hobbies, sports etc. I’m trying to keep her occupied as I’m trying to keep her mental health from plummeting. Obviously this is balanced with her own downtime.

I’m also feeling resentful towards my own friends who know some of the difficulties we’ve faced yet talk continually about their child’s huge group of friends, holiday plans and prom experiences. I realise they are excited for their children, as they should be. I’ve always tried to be understanding and considerate towards them and this feels like a kick in thr gut. My dd went to the prom by herself, tried talking to her ‘friends’ but they would generally ignore her and so she spent most of her time talking to her teacher before returning home after a couple of hours.

I suppose I feel upset as things could have been different if only we were aware of underlying issues. I feel I’ve let her down and just wish things could have been different.

Thanks for reading this far.

OP posts:
mummy1970abc · 10/07/2024 09:15

Firstly, well done for helping her. You are not responsible for identifying SEN. But her school is. Transfer your self-anger to them. They have a duty of care to identify and support SEN, they have let you both down.
In that sort of cliched way - she needs to find her tribe. She also needs to learn about what ASD means for her.
Is she going off to uni?
If so, have a look at what the uni offers in terms of SEN support. I have one about to go - so am looking at all of it right now.
Wishing you both happiness

BrumToTheRescue · 10/07/2024 10:13

Are there any support/social groups locally DD could join or a club for a hobby? Keep encourage the job hunting, volunteering, sports.

What are DD’s plans going forward? University, apprenticeship, job?

Can you encourage DD to stay off social media or at least limit the time and content she looks at?

Try not to dwell on the past. It can’t be changed and a diagnosis often doesn’t bring more support. Peers often aren’t more understanding either.

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