As above, our 10yo DS-recently diagnosed, recently medicated (Medikinet XL 15mg) masks a lot in school. He is bright, articulate and sociable. V likely PDA profile-so typical of this. With ADHD meds on board, his focus appears better (early days though). However, his Autistic traits are more apparent and he's more controlling of his environment, angry about perceived injustices to friends/himself and more 'direct'. He's clashing with one of his teachers and is regularly refusing school. We're in NI. No EHCP. No Statement, school have repeatedly said he doesn't really need accommodations. He is achieving (though is clearly highly intelligent but scores are just above average).
They have suggested a few things, but these are fairly impractical IMHO. Reasons below.
- He can have velcro under his table to touch when he needs. This might actually work well. (he has been told off for fidgeting & is now anxious about doing it consciously. Still does subconscious finger flicking/lip licking etc).
- He can ask the teacher for a movement break (he HATES drawing attention to himself and won't -high masking. There won't necessarily be someone available to take him out-he has no CA. Also-he has alexithymia and doesn't recognise his sensory needs until he explodes).
- Sensory Circuits may be introduced in the school for ALL kids or for certain groups (this will be seen as another 'demand' and won't necessarily be available when required).
- He has an elastic band on his chair already & likes it. But is afraid of making a noise whilst using it.
- Wobble cushion-tried this before and it's too 'obvious' for him-again, masking.
Do any of you have kids like DS? He's never had an OT assessment and I'm wondering if sourcing one might help? Would an Ed Psych assessment help? There is a dire lack of funding and legislation in NI for his type of need, but I want the best for my DS and want him to be a happy well adjusted adult. I feel like I need to start trying to figure this out now....he hates school, and it's so sad and so difficult for us and his siblings.