Help please with NHS rejection not sure if its local or governmental. Navigation needed please!

[Nickersnackersnockers]

Does anyone have any up to date info please? The GP was perfectly happy to proceed with a shared care agreement for adhd for dd then came across an email from 22 Dec 2023 with new guidelines stating those with a private diagnosis will no longer be accepted onto the NHS.

So she suggested the only way to get into the NHS is to wait until dd's name reaches the top of the waiting list for an NHS assessment. However, upon ringing to check where she is on the list I've now been told that if a private diagnosis has been given, it's not possible to get an NHS one.

Please can anyone shed any light. Is this a local thing or governmental and how the hell do I navigate round it??

Absolutely gutted at the thought of what this means for us 😢

I don’t believe this to be a national policy.

This sounds fishy. First thing I'd do is find out which commissioning group this GP is in and ask for their policy on shared care for ADHD.

You can also try: Sossen; Ipsea; your local Facebook group for ADHD parents (try googling 'local offer' plus your local authority name) and your MP.

Choose and Book is worth exploring with the GP/another GP and I've found Care Opinion useful to flush out who actually manages different waiting lists.

Lots of LAs are having to use private assessments for EHCP due to the waiting lists. We've had all sorts of issues but acceptance of private assessments isn't one of them.

Thank you for your replies.

phineyj that's so helpful I am not familiar with any of the info you have given so I will go and do some googling! Thank you.

I did not mention dd is 25. I don't know if its relevant but I checked my post when you mentioned EHCP and realised. Sorry if it appears I drip fed 😊

I think the biggest difference that information makes is that she can do some advocacy for herself with your support.

I'm afraid she wouldn't be able to advocate for herself.

I have already found and emailed the commissioning group...thank you very much

Does DD have capacity? If she does the emails need to come from her even if you support her to construct them or she needs to give permission for you to act on her behalf.

She has given consent for me to act on her behalf in all areas. It has been in place from 18.

Are you talking about medication? If yes it’s correct. It’s not that the diagnosis isn’t accepted but only the person who deemed medication appropriate can prescribe. This is standard.

I don't think that is standard. Our DD's been on melatonin since 2020 and only the first batch was prescribed privately. All the rest has come from our GP. They had no pre existing arrangement.

When it come down to it you need to know specifically what your GP's procedures are (they're independent businesses after all) and above then the commissioning group/PCT who are paying.

Above them, sorry.

Shared care isn’t unusual and a blanket policy against shared care isn’t a national policy or standard. It happens for more than ADHD medication. But the GP doesn’t have to agree to shared care.

This is what worries me. When we decided to go private, our GP had said it would be possible to get an SCP, he even gave me a list of meds the formulary would not dispense so we didnt come unstuck, but the practice appear to have changed their policy (or commissioning group have) and are now saying if you've gone private you'll have to stay private.

DD is also on the NHS waiting list for a local adhd assessment as I was assured we could get an assessment that way when her name got to the top, but they appear to be now saying the same thing....gone private......stay there.

Aaaarrrrggggghhhhhhh!!