Please or to access all these features

SEN

Here you'll find advice from parents and teachers on special needs education.

School refusal is leaving me struggling to cope

4 replies

BubbleH · 09/05/2023 11:50

Hi,

I'm completely new to this but I don't know where to turn anymore. I'd appreciate any advice or even to hear from others about their own experiences because I feel like the only one unable to do this.

I have three children, all with SEN. My eldest and middle son have ASD. My youngest has ADD & PDA. I'm also a single parent.

It's never been easy but right now I'm at breaking point. My eldest has been in a specialist school since year 7 and the school is brilliant.

My youngest is in a mainstream primary school. He has just got his EHCP.

The problem is that both my eldest and youngest are constantly refusing to go to school. With my eldest, it's largely anxiety based. He was off for over a month and with the help of CBT, has just started going back. It's still hard work getting him in. He would usually get a taxi but often I have to take him or pick him up. It can take hours of talking in the mornings and evenings to hep him deal with this.

My youngest is the largest issue though. His self esteem suffered with the ADD. He went from being a confident little boy, to no longer believing in himself, saying he was stupid and saying school was pointless. He has a lot of issues and clearly his needs are not fully being met at school but specialist previsions are hard to come by.

He's gone from constant refusal to even go in or not making it until lunch time just after covid to then getting in between 9-9:30am almost every day.

The school continued to apply pressure, mostly via me. Attendance meetings and the threat of fines. Now my son has gone backwards and is refusing to go in.

I've contacted Early Help and my eldest sons school are heading up that meeting but I don't have a date yet.

I just don't know what to do. I can't see anything my youngest sons school puts in place is going to work at this point and it feels like they're just very good at making it look like they're ticking the boxes. I don't know how consistent or helpful they're being to my son during the school day but some things he tells me suggest they're not doing a lot. They seem to want to shift the blame to me, saying they have these things in place but he's not coming in consistently enough for it to work. The problem is, I don't think these things will work at all and the things I've asked for are apparently impossible.

The stress is making me unwell. I'm tearful, exhausted, and having panic attacks for the first time in my life. I've tried to work out where these feelings come from and pinpointed it to my youngest sons school. In the morning when my eldest is being difficult about school, I'm stressed but deal with it. In fact, I hardly have to say much to the school. They simply understand and trust that I'm doing all I can.

If my youngest refuses in the morning, the stress level is multiplied. Many mornings I have to take myself off because I'm tearful and don't want him to see. One morning I had a huge panic attack right there in the doorway. I know they're going to keep calling me to ask when he's coming in. They're going to mark him as unauthorised absence, they're going to show up at my door (which makes my son even less likely to go). They're going to remind me the council will send fines & that he's missing vital education, as if I don't already know.

I've thought about taking my youngest out of school too. It would be hard because he's very full on and school is my only break. He's not going to be easy to teach either but I'm starting to wonder whether it's less stressful and harmful long term than our current situation.

Thanks in advance for any ideas.

OP posts:
ThomasWasTortured · 09/05/2023 12:39

It sounds like you need an early review of DC1’s EHCP to better meet his needs. If DS can’t attend full time the LA must provide alternative arrangements and anything detailed, specified and quantified in F.

For DC3, if you want SS but the LA haven’t named one in the EHCP have you appealed? It sounds like the content needs amending as well. If DC can’t attend, again the LA must provide alternative arrangements to ensure DC receives a suitable full time education and anything specified and quantified in F. Unless the school has genuine doubts about the authenticity of the absences they should be authorised.

Personally, I wouldn’t deregister and EHE. Parents often find it easier to get support when they stay in the system. If you deregister the LA will say you are making suitable alternative arrangements thereby relieving them of their duty.
Whereas if you don’t EHE if DC can’t attend school the LA must provide provision via s.19 of the Education Act 1996 and you can pursue EOTAS via the EHCP. EOTAS can provide far more than the vast majority of parents EHEing can.

Rather than just early help have you had social care assessments? A carer’s assessment for you and an assessment via the disabled children’s team for DC.

alltheevennumbers · 09/05/2023 20:51

Sorry the school isn't being more helpful - if DC isn't attending due to MH issues linked to neurodiversity I don't know why that wouldn't be coded as I rather than as unauthorised. Have a look at the schools attendance guidance on gov.uk. I'd also formally write to school requesting the register codings are reviewed and remarked in line with this guidance. Move to a formal complaint if you need to.

The Not Fine in School website has good advice in this area. I hope School sort it out quickly as that will take the pressure off. I hope too that you are getting RL support?

Try and keep you chin up - are there any local groups with SEN parents going through similar? There's quite a lot of parent blaming about in services, sadly. I'm not sure if this is borne of ignorance or because it's an easier option than addressing a child's complex needs in school? If you haven't come across it already, Yvonne Newbold's The Special Parent's Handbook is a good read, and has loads of practical tips, including for meetings etc.

Hope it gets better soonFlowers

Ilovechoc12 · 10/05/2023 06:07

I've got a pda child and it's very difficult - so hopefully today is going to be a better day.

What's in place on the EHCP? A full time 1 to1 ?

Do you like the LSA? Understand your child?

School needs to be exceptionally flexible or it's not going to work.

What age is your youngest? Demands of schools and tests increase the older they get and it can get too much for them...

Everything I've read said cbt doesn't work for ASD kids .... so check that out too.

A pda child has to want to do school otherwise there is just no hope .....

2 things are important for pda kids 1. The environment of the school - does the child like it 2. The people

Some teachers can be nice and can be flexible. Other teachers don't want to be as they don't want to understand or have the time to help..... always a mixed bag which ever school

Good luck - don't de register your child - make it the LA responsibility ..... to help otherwise you will be in a hole

ThomasWasTortured · 10/05/2023 11:41

CBT can work for some with ASD if it is adapted and with someone experienced in delivering it when there is ASD involved.

New posts on this thread. Refresh page